| 1 | | - | Enrolled April 27, 2017 Passed IN Senate April 27, 2017 CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Resolution No. 32Introduced by Senator FullerApril 17, 2017 Relative to California Congenital Diaphragmatic Hernia Awareness MonthLEGISLATIVE COUNSEL'S DIGESTSR 32, Fuller. Digest KeyBill TextWHEREAS, Congenital diaphragmatic hernia (CDH) occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth; andWHEREAS, The federal Centers for Disease Control and Prevention recognizes CDH as a birth defect; andWHEREAS, The majority of CDH patients suffer from underdeveloped lungs or poor pulmonary function; andWHEREAS, Babies born with CDH endure extended hospital stays in intensive care with multiple surgeries; andWHEREAS, CDH patients often endure long-term complications, including pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflux, feeding disorders, and developmental delays; andWHEREAS, CDH survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury; andWHEREAS, CDH is treated through mechanical ventilation, a heart and lung bypass, which is commonly known as extracorporeal membrane oxygenation (ECMO), machines, and surgical repair; andWHEREAS, Surgical repair is often not a permanent solution for CDH and can lead to reherniation and require additional surgery; andWHEREAS, CDH is diagnosed in utero in less than 50 percent of cases; andWHEREAS, Infants born with CDH have a high mortality rate, ranging from 20 to 60 percent, depending on the severity of the defect and interventions available at delivery; andWHEREAS, CDH has a rate of occurrence of 1 in every 3,800 live births worldwide; andWHEREAS, CDH affects approximately 1,090 babies each year in the United States; andWHEREAS, CDH has affected more than 700,000 babies worldwide since 2000; andWHEREAS, CDH does not discriminate based on race, gender, or socioeconomic status; andWHEREAS, The cause of CDH is unknown; now, therefore, be itResolved by the Senate of the State of California, That the Senate designates April 2017 as California Congenital Diaphragmatic Hernia Awareness Month; and be it furtherResolved, That the Senate encourages that steps should be taken to: (1) raise awareness of and increase public knowledge about CDH; (2) inform all Californians about the dangers of CDH, especially those groups that may be disproportionately affected by CDH or that have lower survival rates; (3) disseminate information on the importance of quality neonatal care of CDH patients; (4) promote quality prenatal care and the use of ultrasounds to detect CDH in utero; and (5) support research funding of CDH to improve screening and treatment for CDH, discover the causes of CDH, and develop a cure for CDH; and be it furtherResolved, That the Senate calls upon the people of California, interest groups, and affected persons to promote awareness of CDH, take an active role in the fight against this devastating birth defect, and observe California Congenital Diaphragmatic Hernia Awareness Month with appropriate ceremonies and activities; and be it furtherResolved, That the Secretary of the Senate provide copies of this resolution to the author for appropriate distribution. |
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| 1 | + | CALIFORNIA LEGISLATURE 20172018 REGULAR SESSION Senate Resolution No. 32Introduced by Senator FullerApril 17, 2017 Relative to California Congenital Diaphragmatic Hernia Awareness Month.LEGISLATIVE COUNSEL'S DIGESTSR 32, as introduced, Fuller. Digest KeyBill TextWHEREAS, Congenital diaphragmatic hernia (CDH) occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth; andWHEREAS, The federal Centers for Disease Control and Prevention recognizes CDH as a birth defect; andWHEREAS, The majority of CDH patients suffer from underdeveloped lungs or poor pulmonary function; andWHEREAS, Babies born with CDH endure extended hospital stays in intensive care with multiple surgeries; andWHEREAS, CDH patients often endure long-term complications, including pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflux, feeding disorders, and developmental delays; andWHEREAS, CDH survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury; andWHEREAS, CDH is treated through mechanical ventilation, a heart and lung bypass, which is commonly known as extracorporeal membrane oxygenation (ECMO), machines, and surgical repair; andWHEREAS, Surgical repair is often not a permanent solution for CDH and can lead to reherniation and require additional surgery; andWHEREAS, CDH is diagnosed in utero in less than 50 percent of cases; andWHEREAS, Infants born with CDH have a high mortality rate, ranging from 20 to 60 percent, depending on the severity of the defect and interventions available at delivery; andWHEREAS, CDH has a rate of occurrence of 1 in every 3,800 live births worldwide; andWHEREAS, CDH affects approximately 1,090 babies each year in the United States; andWHEREAS, CDH has affected more than 700,000 babies worldwide since 2000; andWHEREAS, CDH does not discriminate based on race, gender, or socioeconomic status; andWHEREAS, The cause of CDH is unknown; now, therefore, be itResolved by the Senate of the State of California, That the Senate designates April 2017 as California Congenital Diaphragmatic Hernia Awareness Month; and be it furtherResolved, That the Senate encourages that steps should be taken to: (1) raise awareness of and increase public knowledge about CDH; (2) inform all Californians about the dangers of CDH, especially those groups that may be disproportionately affected by CDH or that have lower survival rates; (3) disseminate information on the importance of quality neonatal care of CDH patients; (4) promote quality prenatal care and the use of ultrasounds to detect CDH in utero; and (5) support research funding of CDH to improve screening and treatment for CDH, discover the causes of CDH, and develop a cure for CDH; and be it furtherResolved, That the Senate calls upon the people of California, interest groups, and affected persons to promote awareness of CDH, take an active role in the fight against this devastating birth defect, and observe California Congenital Diaphragmatic Hernia Awareness Month with appropriate ceremonies and activities; and be it furtherResolved, That the Secretary of the Senate provide copies of this resolution to the author for appropriate distribution. |
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