California 2019-2020 Regular Session

California Assembly Bill ACR76 Compare Versions

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Version 2 (New)

Old	New		Differences
1		-	Assembly Concurrent Resolution No. ~~76 CHAPTER 76~~ Relative to Diffuse Intrinsic Pontine Glioma Awareness Day. ~~[ Filed with Secretary of State June 04, 2019. ]~~ LEGISLATIVE COUNSEL'S DIGESTACR 76, Smith. Diffuse Intrinsic Pontine Glioma Awareness Day.This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Diffuse intrinsic pontine glioma (DIPG) is a malignant brain tumor that affects the brain stem. DIPG is almost exclusively a pediatric disease, and it is usually diagnosed between five and nine years of age; andWHEREAS, DIPG affects 200 to 400 children in the United States each year; andWHEREAS, Brain tumors are the leading cause of cancer-related death in children; andWHEREAS, DIPG is the second most common malignant brain tumor of childhood; andWHEREAS, Children diagnosed with DIPG have a survival time of only nine months; andWHEREAS, The Legislature recognizes that the quality and character of life in the communities across the State of California are reflective of the concerned and dedicated efforts of those organizations and individuals that are devoted to the welfare of the community and its citizenry; andWHEREAS, In this regard, the Legislature commends the efforts of the Jacks Angels Foundation and other similar foundations for their continuing efforts to raise awareness of, and fight against, malignant brain tumors; andWHEREAS, James-William Jack Demeter, the namesake of the Jacks Angels Foundation, lost the fight against DIPG at three years of age; andWHEREAS, According to Dr. Sabine Mueller of the University of California at San Francisco, DIPG is one of the worst diagnoses a patient and the patients family can face. Progress has been hampered by the perceived risk of biopsy of these tumors. To date, no therapy has been shown to be effective and children with DIPG are often treated on early phase 1 clinical trials with a trial-and-error approach; andWHEREAS, The Jacks Angels Foundation is a nonprofit corporation that established a DIPG research fund at the Childrens Hospital Los Angeles in 2013. The foundation is committed to promoting the most innovative research and clinical trials to help shed light on the nature of DIPG and the genetic anomalies that cause it. In order that there be greater hope for survival, the foundation also actively researches cures for DIPG through medical trials and scientific research; andWHEREAS, The mission of the Jacks Angels Foundation is also to support the quality of life for patients diagnosed with DIPG and their families; andWHEREAS, The mission of the Jacks Angels Foundation also includes increasing public awareness and understanding of DIPG, potentially increasing the protocol for pediatric brain tumor research, and increasing investment by pharmaceutical companies in research pertaining to DIPG; andWHEREAS, It is the intent of the Legislature to call attention to organizations, like the Jacks Angels Foundation, that serve to bring people together for the united purpose of actively pursuing improvements in their communities; now, therefore, be itResolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to honor those who raise awareness of, and fight against, malignant brain tumors, including DIPG; and be it furtherResolved, That the Legislature hereby declares May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from DIPG and their families; and be it furtherResolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
	1	+	Enrolled May 31, 2019 Passed IN Senate May 30, 2019 Passed IN Assembly May 09, 2019 CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION Assembly Concurrent Resolution No. 76Introduced by Assembly Member Smith(Coauthor: Senator Wilk)April 24, 2019 Relative to Diffuse Intrinsic Pontine Glioma Awareness Day. LEGISLATIVE COUNSEL'S DIGESTACR 76, Smith. Diffuse Intrinsic Pontine Glioma Awareness Day.This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Diffuse intrinsic pontine glioma (DIPG) is a malignant brain tumor that affects the brain stem. DIPG is almost exclusively a pediatric disease, and it is usually diagnosed between five and nine years of age; andWHEREAS, DIPG affects 200 to 400 children in the United States each year; andWHEREAS, Brain tumors are the leading cause of cancer-related death in children; andWHEREAS, DIPG is the second most common malignant brain tumor of childhood; andWHEREAS, Children diagnosed with DIPG have a survival time of only nine months; andWHEREAS, The Legislature recognizes that the quality and character of life in the communities across the State of California are reflective of the concerned and dedicated efforts of those organizations and individuals that are devoted to the welfare of the community and its citizenry; andWHEREAS, In this regard, the Legislature commends the efforts of the Jacks Angels Foundation and other similar foundations for their continuing efforts to raise awareness of, and fight against, malignant brain tumors; andWHEREAS, James-William Jack Demeter, the namesake of the Jacks Angels Foundation, lost the fight against DIPG at three years of age; andWHEREAS, According to Dr. Sabine Mueller of the University of California at San Francisco, DIPG is one of the worst diagnoses a patient and the patients family can face. Progress has been hampered by the perceived risk of biopsy of these tumors. To date, no therapy has been shown to be effective and children with DIPG are often treated on early phase 1 clinical trials with a trial-and-error approach; andWHEREAS, The Jacks Angels Foundation is a nonprofit corporation that established a DIPG research fund at the Childrens Hospital Los Angeles in 2013. The foundation is committed to promoting the most innovative research and clinical trials to help shed light on the nature of DIPG and the genetic anomalies that cause it. In order that there be greater hope for survival, the foundation also actively researches cures for DIPG through medical trials and scientific research; andWHEREAS, The mission of the Jacks Angels Foundation is also to support the quality of life for patients diagnosed with DIPG and their families; andWHEREAS, The mission of the Jacks Angels Foundation also includes increasing public awareness and understanding of DIPG, potentially increasing the protocol for pediatric brain tumor research, and increasing investment by pharmaceutical companies in research pertaining to DIPG; andWHEREAS, It is the intent of the Legislature to call attention to organizations, like the Jacks Angels Foundation, that serve to bring people together for the united purpose of actively pursuing improvements in their communities; now, therefore, be itResolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to honor those who raise awareness of, and fight against, malignant brain tumors, including DIPG; and be it furtherResolved, That the Legislature hereby declares May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from DIPG and their families; and be it furtherResolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
2	2
3		-	Assembly Concurrent Resolution No. 76 CHAPTER 76 Relative to Diffuse Intrinsic Pontine Glioma Awareness Day. [ Filed with Secretary of State June 04, 2019. ] LEGISLATIVE COUNSEL'S DIGESTACR 76, Smith. Diffuse Intrinsic Pontine Glioma Awareness Day.This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.Digest Key Fiscal Committee: NO
	3	+	Enrolled May 31, 2019 Passed IN Senate May 30, 2019 Passed IN Assembly May 09, 2019 CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION Assembly Concurrent Resolution No. 76Introduced by Assembly Member Smith(Coauthor: Senator Wilk)April 24, 2019 Relative to Diffuse Intrinsic Pontine Glioma Awareness Day. LEGISLATIVE COUNSEL'S DIGESTACR 76, Smith. Diffuse Intrinsic Pontine Glioma Awareness Day.This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.Digest Key Fiscal Committee: NO
	4	+
	5	+	Enrolled May 31, 2019 Passed IN Senate May 30, 2019 Passed IN Assembly May 09, 2019
	6	+
	7	+	Enrolled May 31, 2019
	8	+	Passed IN Senate May 30, 2019
	9	+	Passed IN Assembly May 09, 2019
	10	+
	11	+	CALIFORNIA LEGISLATURE 20192020 REGULAR SESSION
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5	13		Assembly Concurrent Resolution No. 76
6		-	CHAPTER 76
	14	+
	15	+	Introduced by Assembly Member Smith(Coauthor: Senator Wilk)April 24, 2019
	16	+
	17	+	Introduced by Assembly Member Smith(Coauthor: Senator Wilk)
	18	+	April 24, 2019
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8	20		Relative to Diffuse Intrinsic Pontine Glioma Awareness Day.
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10		-	[ Filed with Secretary of State June 04, 2019. ]
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12	22		LEGISLATIVE COUNSEL'S DIGEST
13	23
14	24		## LEGISLATIVE COUNSEL'S DIGEST
15	25
16	26		ACR 76, Smith. Diffuse Intrinsic Pontine Glioma Awareness Day.
17	27
18	28		This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.
19	29
20	30		This measure would designate May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from Diffuse Intrinsic Pontine Glioma and their families.
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22	32		## Digest Key
23	33
24	34		## Bill Text
25	35
26	36		WHEREAS, Diffuse intrinsic pontine glioma (DIPG) is a malignant brain tumor that affects the brain stem. DIPG is almost exclusively a pediatric disease, and it is usually diagnosed between five and nine years of age; and
27	37
28	38		WHEREAS, DIPG affects 200 to 400 children in the United States each year; and
29	39
30	40		WHEREAS, Brain tumors are the leading cause of cancer-related death in children; and
31	41
32	42		WHEREAS, DIPG is the second most common malignant brain tumor of childhood; and
33	43
34	44		WHEREAS, Children diagnosed with DIPG have a survival time of only nine months; and
35	45
36	46		WHEREAS, The Legislature recognizes that the quality and character of life in the communities across the State of California are reflective of the concerned and dedicated efforts of those organizations and individuals that are devoted to the welfare of the community and its citizenry; and
37	47
38	48		WHEREAS, In this regard, the Legislature commends the efforts of the Jacks Angels Foundation and other similar foundations for their continuing efforts to raise awareness of, and fight against, malignant brain tumors; and
39	49
40	50		WHEREAS, James-William Jack Demeter, the namesake of the Jacks Angels Foundation, lost the fight against DIPG at three years of age; and
41	51
42	52		WHEREAS, According to Dr. Sabine Mueller of the University of California at San Francisco, DIPG is one of the worst diagnoses a patient and the patients family can face. Progress has been hampered by the perceived risk of biopsy of these tumors. To date, no therapy has been shown to be effective and children with DIPG are often treated on early phase 1 clinical trials with a trial-and-error approach; and
43	53
44	54		WHEREAS, The Jacks Angels Foundation is a nonprofit corporation that established a DIPG research fund at the Childrens Hospital Los Angeles in 2013. The foundation is committed to promoting the most innovative research and clinical trials to help shed light on the nature of DIPG and the genetic anomalies that cause it. In order that there be greater hope for survival, the foundation also actively researches cures for DIPG through medical trials and scientific research; and
45	55
46	56		WHEREAS, The mission of the Jacks Angels Foundation is also to support the quality of life for patients diagnosed with DIPG and their families; and
47	57
48	58		WHEREAS, The mission of the Jacks Angels Foundation also includes increasing public awareness and understanding of DIPG, potentially increasing the protocol for pediatric brain tumor research, and increasing investment by pharmaceutical companies in research pertaining to DIPG; and
49	59
50	60		WHEREAS, It is the intent of the Legislature to call attention to organizations, like the Jacks Angels Foundation, that serve to bring people together for the united purpose of actively pursuing improvements in their communities; now, therefore, be it
51	61
52	62		Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to honor those who raise awareness of, and fight against, malignant brain tumors, including DIPG; and be it further
53	63
54	64		Resolved, That the Legislature hereby declares May 17, 2019, as Diffuse Intrinsic Pontine Glioma Awareness Day to honor those who work to make research and resources a reality for children suffering from DIPG and their families; and be it further
55	65
56	66		Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.