Assembly Concurrent Resolution No. 171 CHAPTER 69 Relative to Parkinsons Awareness Month. [ Filed with Secretary of State June 01, 2022. ] LEGISLATIVE COUNSEL'S DIGESTACR 171, Nazarian. Parkinsons Awareness Month.This measure would declare the month of April 2022 as Parkinsons Awareness Month in California.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Parkinsons disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease in the United States; andWHEREAS, There is inadequate data on the incidence and prevalence of Parkinsons disease, but it is estimated to affect nearly 1,000,000 people in the United States, and that number is expected to more than double by 2040; andWHEREAS, Parkinsons disease is the 14th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; andWHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinsons disease; andWHEREAS, It is estimated that Parkinsons disease costs $58,000,000,000 per year, of which the federal government shoulders $29 billion, leaving American families to cover the remaining $29,000,000,000; andWHEREAS, It is estimated that more than 1,600,000 people in the United States will be impacted by Parkinsons disease by 2037, at an estimated economic burden of $80,000,000,000; andWHEREAS, Over 115,000 people in California have Parkinsons disease, costing the state $5,800,000,000 annually for direct and indirect health care costs; andWHEREAS, The California Parkinsons Disease Registry was created in 2017 through the state budget and became operational in 2018. The California Parkinsons Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinsons disease; andWHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected over 300,000 electronic records and formed reporting partnerships with more than 500 reporting entities, including health groups like Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care so that confidential patient data is automatically sent from the physicians office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; andWHEREAS, Research suggests the cause of Parkinsons disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; andWHEREAS, There currently is no objective diagnostic test or biomarker to diagnose Parkinsons disease; andWHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients medical needs and remain effective over time; andWHEREAS, The symptoms of Parkinsons disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulty, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; andWHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinsons disease and their families; andWHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today; now, therefore, be itResolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature recognizes the month of April 2022 as Parkinsons Awareness Month in California; and be it furtherResolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
Assembly Concurrent Resolution No. 171 CHAPTER 69 Relative to Parkinsons Awareness Month. [ Filed with Secretary of State June 01, 2022. ] LEGISLATIVE COUNSEL'S DIGESTACR 171, Nazarian. Parkinsons Awareness Month.This measure would declare the month of April 2022 as Parkinsons Awareness Month in California.Digest Key Fiscal Committee: NO
Assembly Concurrent Resolution No. 171 CHAPTER 69
Assembly Concurrent Resolution No. 171
CHAPTER 69
Relative to Parkinsons Awareness Month.
[ Filed with Secretary of State June 01, 2022. ]
LEGISLATIVE COUNSEL'S DIGEST
## LEGISLATIVE COUNSEL'S DIGEST
ACR 171, Nazarian. Parkinsons Awareness Month.
This measure would declare the month of April 2022 as Parkinsons Awareness Month in California.
This measure would declare the month of April 2022 as Parkinsons Awareness Month in California.
## Digest Key
## Bill Text
WHEREAS, Parkinsons disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease in the United States; and
WHEREAS, There is inadequate data on the incidence and prevalence of Parkinsons disease, but it is estimated to affect nearly 1,000,000 people in the United States, and that number is expected to more than double by 2040; and
WHEREAS, Parkinsons disease is the 14th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; and
WHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinsons disease; and
WHEREAS, It is estimated that Parkinsons disease costs $58,000,000,000 per year, of which the federal government shoulders $29 billion, leaving American families to cover the remaining $29,000,000,000; and
WHEREAS, It is estimated that more than 1,600,000 people in the United States will be impacted by Parkinsons disease by 2037, at an estimated economic burden of $80,000,000,000; and
WHEREAS, Over 115,000 people in California have Parkinsons disease, costing the state $5,800,000,000 annually for direct and indirect health care costs; and
WHEREAS, The California Parkinsons Disease Registry was created in 2017 through the state budget and became operational in 2018. The California Parkinsons Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinsons disease; and
WHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected over 300,000 electronic records and formed reporting partnerships with more than 500 reporting entities, including health groups like Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care so that confidential patient data is automatically sent from the physicians office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; and
WHEREAS, Research suggests the cause of Parkinsons disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; and
WHEREAS, There currently is no objective diagnostic test or biomarker to diagnose Parkinsons disease; and
WHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients medical needs and remain effective over time; and
WHEREAS, The symptoms of Parkinsons disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulty, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; and
WHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinsons disease and their families; and
WHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today; now, therefore, be it
Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature recognizes the month of April 2022 as Parkinsons Awareness Month in California; and be it further
Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.