| 1 | | - | Senate Concurrent Resolution No. 138 CHAPTER 86 Relative to Parkinsons Awareness Month. [ Filed with Secretary of State May 31, 2024. ] LEGISLATIVE COUNSEL'S DIGESTSCR 138, Roth. Parkinsons Awareness Month.This measure would declare the month of April 2024 as Parkinsons Awareness Month in California.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Parkinsons disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease behind Alzheimers in the United States; andWHEREAS, The symptoms of Parkinsons disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulties, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; andWHEREAS, Parkinsons is the fastest growing neurological disease in the United States; andWHEREAS, It is estimated that 90,000 individuals are diagnosed annually with Parkinsons disease in North America, 50 percent higher than research previously suggested; andWHEREAS, There is inadequate data on the incidence and prevalence of Parkinsons disease, but it is estimated to affect nearly 1,600,000 people in the United States, and that number is expected to more than double by 2040; andWHEREAS, Parkinsons disease is the 15th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; andWHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinsons disease; andWHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients medical needs and remain effective over time; andWHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinsons disease and their families; andWHEREAS, It is estimated that Parkinsons disease costs $52 billion per year, of which the federal government shoulders $29 billion, leaving American families to cover the remaining $23 billion; andWHEREAS, According to the Michael J. Fox Foundation for Parkinsons Research, over 120,000 people in California have Parkinsons disease, costing the state $5.8 billion annually for direct and indirect health care costs; andWHEREAS, The California Parkinsons Disease Registry was created in 2017 through the state budget and became operational in 2018. The California Parkinsons Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinsons disease; andWHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected hundreds of thousands of electronic records and formed reporting partnerships with more than 500 reporting entities, including health groups such as Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care, allowing patient data to automatically be sent from the physicians office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; andWHEREAS, Research suggests the cause of Parkinsons disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; andWHEREAS, Over the last twenty years, the Michael J. Fox Foundation for Parkinsons Research has raised over $310,000,000 for Parkinsons research in California; andWHEREAS, In 2010, the Michael J. Fox Foundation launched its landmark research study, the Parkinsons Progression Markers Initiative (PPMI), to better understand Parkinsons and advance new treatments; andWHEREAS, The Michael J. Fox Foundation has provided $2,000,000 annually each to the University of California at San Francisco, the University of California at San Diego, and the University of Southern California to participate in the PPMI study; andWHEREAS, As a result of the PPMI study, in April 2023, the Michael J. Fox Foundation announced the validation of the first-ever biomarker for Parkinsons disease. For the first time in the living body, researchers can objectively detect an abnormal protein in individuals with Parkinsons, and those not yet diagnosed with Parkinsons who do not show clinical symptoms. This discovery represents one of the most prominent breakthroughs in brain disease research of the past decade; andWHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today; now, therefore, be itResolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes the month of April 2024 as Parkinsons Awareness Month in California; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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| 1 | + | Enrolled May 24, 2024 Passed IN Senate April 22, 2024 Passed IN Assembly May 22, 2024 CALIFORNIA LEGISLATURE 20232024 REGULAR SESSION Senate Concurrent Resolution No. 138Introduced by Senator RothApril 16, 2024 Relative to Parkinsons Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSCR 138, Roth. Parkinsons Awareness Month.This measure would declare the month of April 2024 as Parkinsons Awareness Month in California.Digest Key Fiscal Committee: NO Bill TextWHEREAS, Parkinsons disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease behind Alzheimers in the United States; andWHEREAS, The symptoms of Parkinsons disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulties, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; andWHEREAS, Parkinsons is the fastest growing neurological disease in the United States; andWHEREAS, It is estimated that 90,000 individuals are diagnosed annually with Parkinsons disease in North America, 50 percent higher than research previously suggested; andWHEREAS, There is inadequate data on the incidence and prevalence of Parkinsons disease, but it is estimated to affect nearly 1,600,000 people in the United States, and that number is expected to more than double by 2040; andWHEREAS, Parkinsons disease is the 15th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; andWHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinsons disease; andWHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients medical needs and remain effective over time; andWHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinsons disease and their families; andWHEREAS, It is estimated that Parkinsons disease costs $52 billion per year, of which the federal government shoulders $29 billion, leaving American families to cover the remaining $23 billion; andWHEREAS, According to the Michael J. Fox Foundation for Parkinsons Research, over 120,000 people in California have Parkinsons disease, costing the state $5.8 billion annually for direct and indirect health care costs; andWHEREAS, The California Parkinsons Disease Registry was created in 2017 through the state budget and became operational in 2018. The California Parkinsons Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinsons disease; andWHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected hundreds of thousands of electronic records and formed reporting partnerships with more than 500 reporting entities, including health groups such as Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care, allowing patient data to automatically be sent from the physicians office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; andWHEREAS, Research suggests the cause of Parkinsons disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; andWHEREAS, Over the last twenty years, the Michael J. Fox Foundation for Parkinsons Research has raised over $310,000,000 for Parkinsons research in California; andWHEREAS, In 2010, the Michael J. Fox Foundation launched its landmark research study, the Parkinsons Progression Markers Initiative (PPMI), to better understand Parkinsons and advance new treatments; andWHEREAS, The Michael J. Fox Foundation has provided $2,000,000 annually each to the University of California at San Francisco, the University of California at San Diego, and the University of Southern California to participate in the PPMI study; andWHEREAS, As a result of the PPMI study, in April 2023, the Michael J. Fox Foundation announced the validation of the first-ever biomarker for Parkinsons disease. For the first time in the living body, researchers can objectively detect an abnormal protein in individuals with Parkinsons, and those not yet diagnosed with Parkinsons who do not show clinical symptoms. This discovery represents one of the most prominent breakthroughs in brain disease research of the past decade; andWHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today; now, therefore, be itResolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes the month of April 2024 as Parkinsons Awareness Month in California; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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| 14 | 23 | | |
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| 15 | 24 | | LEGISLATIVE COUNSEL'S DIGEST |
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| 16 | 25 | | |
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| 17 | 26 | | ## LEGISLATIVE COUNSEL'S DIGEST |
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| 18 | 27 | | |
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| 19 | 28 | | SCR 138, Roth. Parkinsons Awareness Month. |
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| 20 | 29 | | |
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| 21 | 30 | | This measure would declare the month of April 2024 as Parkinsons Awareness Month in California. |
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| 22 | 31 | | |
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| 23 | 32 | | This measure would declare the month of April 2024 as Parkinsons Awareness Month in California. |
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| 24 | 33 | | |
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| 25 | 34 | | ## Digest Key |
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| 26 | 35 | | |
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| 27 | 36 | | ## Bill Text |
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| 28 | 37 | | |
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| 29 | 38 | | WHEREAS, Parkinsons disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease behind Alzheimers in the United States; and |
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| 30 | 39 | | |
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| 31 | 40 | | WHEREAS, The symptoms of Parkinsons disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulties, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; and |
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| 32 | 41 | | |
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| 33 | 42 | | WHEREAS, Parkinsons is the fastest growing neurological disease in the United States; and |
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| 34 | 43 | | |
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| 35 | 44 | | WHEREAS, It is estimated that 90,000 individuals are diagnosed annually with Parkinsons disease in North America, 50 percent higher than research previously suggested; and |
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| 36 | 45 | | |
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| 37 | 46 | | WHEREAS, There is inadequate data on the incidence and prevalence of Parkinsons disease, but it is estimated to affect nearly 1,600,000 people in the United States, and that number is expected to more than double by 2040; and |
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| 38 | 47 | | |
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| 39 | 48 | | WHEREAS, Parkinsons disease is the 15th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; and |
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| 40 | 49 | | |
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| 41 | 50 | | WHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinsons disease; and |
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| 42 | 51 | | |
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| 43 | 52 | | WHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients medical needs and remain effective over time; and |
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| 44 | 53 | | |
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| 45 | 54 | | WHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinsons disease and their families; and |
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| 46 | 55 | | |
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| 47 | 56 | | WHEREAS, It is estimated that Parkinsons disease costs $52 billion per year, of which the federal government shoulders $29 billion, leaving American families to cover the remaining $23 billion; and |
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| 48 | 57 | | |
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| 49 | 58 | | WHEREAS, According to the Michael J. Fox Foundation for Parkinsons Research, over 120,000 people in California have Parkinsons disease, costing the state $5.8 billion annually for direct and indirect health care costs; and |
|---|
| 50 | 59 | | |
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| 51 | 60 | | WHEREAS, The California Parkinsons Disease Registry was created in 2017 through the state budget and became operational in 2018. The California Parkinsons Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinsons disease; and |
|---|
| 52 | 61 | | |
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| 53 | 62 | | WHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected hundreds of thousands of electronic records and formed reporting partnerships with more than 500 reporting entities, including health groups such as Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care, allowing patient data to automatically be sent from the physicians office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; and |
|---|
| 54 | 63 | | |
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| 55 | 64 | | WHEREAS, Research suggests the cause of Parkinsons disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; and |
|---|
| 56 | 65 | | |
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| 57 | 66 | | WHEREAS, Over the last twenty years, the Michael J. Fox Foundation for Parkinsons Research has raised over $310,000,000 for Parkinsons research in California; and |
|---|
| 58 | 67 | | |
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| 59 | 68 | | WHEREAS, In 2010, the Michael J. Fox Foundation launched its landmark research study, the Parkinsons Progression Markers Initiative (PPMI), to better understand Parkinsons and advance new treatments; and |
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| 60 | 69 | | |
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| 61 | 70 | | WHEREAS, The Michael J. Fox Foundation has provided $2,000,000 annually each to the University of California at San Francisco, the University of California at San Diego, and the University of Southern California to participate in the PPMI study; and |
|---|
| 62 | 71 | | |
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| 63 | 72 | | WHEREAS, As a result of the PPMI study, in April 2023, the Michael J. Fox Foundation announced the validation of the first-ever biomarker for Parkinsons disease. For the first time in the living body, researchers can objectively detect an abnormal protein in individuals with Parkinsons, and those not yet diagnosed with Parkinsons who do not show clinical symptoms. This discovery represents one of the most prominent breakthroughs in brain disease research of the past decade; and |
|---|
| 64 | 73 | | |
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| 65 | 74 | | WHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today; now, therefore, be it |
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| 66 | 75 | | |
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| 67 | 76 | | Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes the month of April 2024 as Parkinsons Awareness Month in California; and be it further |
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| 68 | 77 | | |
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| 69 | 78 | | Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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