| 1 | | - | Enrolled March 14, 2023 Passed IN Senate March 13, 2023 CALIFORNIA LEGISLATURE 20232024 REGULAR SESSION Senate Resolution No. 17Introduced by Senator ArchuletaFebruary 15, 2023 Relative to Stiff Person Syndrome Awareness. LEGISLATIVE COUNSEL'S DIGESTSR 17, Archuleta. Digest KeyBill TextWHEREAS, Stiff Person Syndrome (SPS) is a rare neurological autoimmune disorder that affects one in a million people; andWHEREAS, SPS is a terminal condition and there is no known cure; andWHEREAS, SPS affects all ages and all racial and ethnic groups; andWHEREAS, SPS predominantly affects more females than males; andWHEREAS, SPS affects a persons central nervous system and motor skills; andWHEREAS, SPS causes heightened sensitivity to stimuli, muscle stiffening and spasms, diminished posture, and impaired mobility; and WHEREAS, Many people with SPS either never receive a proper diagnosis or remain undiagnosed; andWHEREAS, Early diagnosis of SPS allows patients to access treatment and support from health professionals; andWHEREAS, Increased research into SPS may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome; andWHEREAS, Recently discovered treatments, including the use of autologous stem cell transplant, are improving the quality of life for individuals with SPS, but many symptoms associated with the syndrome remain untreated; andWHEREAS, Patients suffering from SPS often suffer embarrassment due to abnormal and involuntary movements, which leads them to withdraw from society and increasingly isolate themselves as the disease progresses; andWHEREAS, The Senate can raise awareness of SPS in the public and the medical community; now, therefore, be itResolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about SPS and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by SPS; and be it further Resolved, That the Senate recognizes the commitment of researchers, health professionals, and others dedicated to finding an effective treatment and cure for SPS; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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| 1 | + | CALIFORNIA LEGISLATURE 20232024 REGULAR SESSION Senate Resolution No. 17Introduced by Senator ArchuletaFebruary 15, 2023 Relative to Stiff Person Syndrome Awareness. LEGISLATIVE COUNSEL'S DIGESTSR 17, as introduced, Archuleta. Digest KeyBill TextWHEREAS, Stiff Person Syndrome (SPS) is a rare neurological autoimmune disorder that affects one in a million people; andWHEREAS, SPS is a terminal condition and there is no known cure; andWHEREAS, SPS affects all ages and all racial and ethnic groups; andWHEREAS, SPS predominantly affects more females than males; andWHEREAS, SPS affects a persons central nervous system and motor skills; andWHEREAS, SPS causes heightened sensitivity to stimuli, muscle stiffening and spasms, diminished posture, and impaired mobility; and WHEREAS, Many people with SPS either never receive a proper diagnosis or remain undiagnosed; andWHEREAS, Early diagnosis of SPS allows patients to access treatment and support from health professionals; andWHEREAS, Increased research into SPS may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome; andWHEREAS, Recently discovered treatments, including the use of autologous stem cell transplant, are improving the quality of life for individuals with SPS, but many symptoms associated with the syndrome remain untreated; andWHEREAS, Patients suffering from SPS often suffer embarrassment due to abnormal and involuntary movements, which leads them to withdraw from society and increasingly isolate themselves as the disease progresses; andWHEREAS, The Senate can raise awareness of SPS in the public and the medical community; now, therefore, be itResolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about SPS and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by SPS; and be it further Resolved, That the Senate recognizes the commitment of researchers, health professionals, and others dedicated to finding an effective treatment and cure for SPS; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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| 28 | 27 | | |
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| 29 | 28 | | |
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| 30 | 29 | | |
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| 31 | 30 | | ## Digest Key |
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| 32 | 31 | | |
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| 33 | 32 | | ## Bill Text |
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| 34 | 33 | | |
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| 35 | 34 | | WHEREAS, Stiff Person Syndrome (SPS) is a rare neurological autoimmune disorder that affects one in a million people; and |
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| 36 | 35 | | |
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| 37 | 36 | | WHEREAS, SPS is a terminal condition and there is no known cure; and |
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| 38 | 37 | | |
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| 39 | 38 | | WHEREAS, SPS affects all ages and all racial and ethnic groups; and |
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| 40 | 39 | | |
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| 41 | 40 | | WHEREAS, SPS predominantly affects more females than males; and |
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| 42 | 41 | | |
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| 43 | 42 | | WHEREAS, SPS affects a persons central nervous system and motor skills; and |
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| 44 | 43 | | |
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| 45 | 44 | | WHEREAS, SPS causes heightened sensitivity to stimuli, muscle stiffening and spasms, diminished posture, and impaired mobility; and |
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| 46 | 45 | | |
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| 47 | 46 | | WHEREAS, Many people with SPS either never receive a proper diagnosis or remain undiagnosed; and |
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| 48 | 47 | | |
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| 49 | 48 | | WHEREAS, Early diagnosis of SPS allows patients to access treatment and support from health professionals; and |
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| 50 | 49 | | |
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| 51 | 50 | | WHEREAS, Increased research into SPS may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome; and |
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| 52 | 51 | | |
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| 53 | 52 | | WHEREAS, Recently discovered treatments, including the use of autologous stem cell transplant, are improving the quality of life for individuals with SPS, but many symptoms associated with the syndrome remain untreated; and |
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| 54 | 53 | | |
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| 55 | 54 | | WHEREAS, Patients suffering from SPS often suffer embarrassment due to abnormal and involuntary movements, which leads them to withdraw from society and increasingly isolate themselves as the disease progresses; and |
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| 56 | 55 | | |
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| 57 | 56 | | WHEREAS, The Senate can raise awareness of SPS in the public and the medical community; now, therefore, be it |
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| 58 | 57 | | |
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| 59 | 58 | | Resolved by the Senate of the State of California, That the Senate supports raising awareness and educating the public about SPS and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by SPS; and be it further |
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| 60 | 59 | | |
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| 61 | 60 | | Resolved, That the Senate recognizes the commitment of researchers, health professionals, and others dedicated to finding an effective treatment and cure for SPS; and be it further |
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| 62 | 61 | | |
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| 63 | 62 | | Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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