| 1 | | - | Enrolled May 31, 2024 Passed IN Senate May 30, 2024 CALIFORNIA LEGISLATURE 20232024 REGULAR SESSION Senate Resolution No. 92Introduced by Senator Rubio(Coauthors: Senators Allen, Atkins, Blakespear, Caballero, Cortese, Dahle, Dodd, Durazo, Hurtado, Jones, Limn, Nguyen, Niello, Ochoa Bogh, Portantino, Roth, Seyarto, Smallwood-Cuevas, Stern, Umberg, Wahab, and Wilk)May 02, 2024 Relative to Lupus and Fibromyalgia Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSR 92, Rubio. Digest KeyBill TextWHEREAS, Fibromyalgia is a chronic, long-lasting disorder that causes pain and tenderness throughout the body, as well as fatigue and trouble sleeping. Scientists do not fully understand what causes it, but people with the disorder have a heightened sensitivity to pain; andWHEREAS, Fibromyalgia may have a genetic component, as studies show it tends to run in families and researchers have found genes related to the pain response that may play a role in a persons risk for developing the disorder; andWHEREAS, The disorder is six times more common in women than in men, though this female predominance seems to be much lower when newer diagnostic criteria are used; andWHEREAS, While there have been few studies assessing the relationship between women who have been abused and the likelihood of them developing long-term illnesses such as fibromyalgia, research shows that women who have experienced sexual assault or domestic abuse are almost twice as likely to develop fibromyalgia and chronic fatigue syndrome (CFS) than those who have not; andWHEREAS, Fibromyalgia is difficult to diagnose, as there are no specific laboratory or imaging tests for the disorder. The main symptoms, including pain and fatigue, are shared with many other conditions, so doctors typically try to rule out other causes. It is a diagnosis of exclusion, and doctors typically will perform a physical exam and examine joints to see if the individual has another condition, or order laboratory or imaging tests to help rule out other diseases and conditions; andWHEREAS, There is no cure for fibromyalgia, so treatment focuses on relieving the symptoms and can include psychological and behavioral therapy, medications, and self-management approaches, such as physical exercise; and WHEREAS, Other conditions commonly present in patients with fibromyalgia are irritable bowel syndrome (IBS) and rheumatologic conditions such as rheumatoid arthritis and lupus; andWHEREAS, Lupus is an acute, chronic, complex, and often life-threatening autoimmune disease that can cause inflammation and pain in any part of the body; and WHEREAS, There are four types of lupus: systemic lupus, cutaneous lupus, drug-induced lupus, and neonatal lupus; andWHEREAS, Systemic lupus is the more common type of lupus, accounting for approximately 70 percent of the cases, and affects the heart, lungs, kidney, or brain; andWHEREAS, Cutaneous lupus only affects the skin and accounts for 10 percent of cases; andWHEREAS, Drug-induced lupus, accounting for 10 percent of cases, is caused by high doses of certain medication; and WHEREAS, The most rare form is neonatal lupus, in which the mothers antibodies affect the fetus. At birth, the baby may have a skin rash, liver problems, or low blood cell counts, but these symptoms typically disappear completely after six months with no lasting effects; and WHEREAS, Anyone can develop lupus, although some have a higher risk of developing it. Nine out of 10 people with lupus are women, and women between 15 to 44 years of age have a higher chance of developing lupus; and WHEREAS, Racial groups such as African Americans, Asian Americans, Hispanics or Latinos, and Native Americans have a higher chance of having lupus, with women of color being four times more likely to develop lupus than Caucasians; and WHEREAS, A study reported that African American lupus patients are more likely to have organ system involvement, a more active disease, and lower levels of social support compared with White lupus patients; and WHEREAS, Lupus mostly strikes women of childbearing age, affecting all aspects of their lives. However, men, children, and teenagers can develop lupus too; andWHEREAS, It is estimated that 1,500,000 Americans, and at least 5,000,000 people worldwide, have a form of lupus; andWHEREAS, It is believed that between 10 to 15 percent of people with lupus will die prematurely due to complications of lupus; andWHEREAS, A study showed that lupus was among the top 20 leading causes of death in women between 5 and 64 years of age. Lupus was ranked fifth in the leading causes of death for African American and Hispanic women between 15 and 24 years of age; and WHEREAS, Lupus can be particularly difficult to diagnose because its symptoms are similar to symptoms of other illnesses and, on average, it takes nearly six years for people with lupus to be diagnosed from the time they first notice their lupus symptoms. Approximately 63 percent of people with lupus report being incorrectly diagnosed when surveyed; andWHEREAS, Early diagnosis and proper treatments are critical to the improvement of the quality of life and survival rate of people with lupus; andWHEREAS, There is no known cause of, or cure for, lupus; and WHEREAS, There have only been two drugs approved specifically for lupus by the United States Food and Drug Administration in more than 60 years, with over a decade between approvals. The current treatments for the disease can have damaging effects, and it is important to increase awareness in the State of California of the debilitating impact of lupus; andWHEREAS, Sixty-three percent of Americans surveyed have never heard of lupus or know little or nothing about this disease and its symptoms beyond the name, indicating there is significant opportunity and need for continued public education; andWHEREAS, Increased public awareness, education, and research are key to winning the battle against lupus and fibromyalgia; now, therefore, be itResolved by the Senate of the State of California, That May 2024 is hereby recognized as Lupus and Fibromyalgia Awareness Month; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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| 1 | + | CALIFORNIA LEGISLATURE 20232024 REGULAR SESSION Senate Resolution No. 92Introduced by Senator Rubio(Coauthors: Senators Allen, Atkins, Blakespear, Caballero, Cortese, Dahle, Dodd, Durazo, Hurtado, Jones, Limn, Nguyen, Niello, Ochoa Bogh, Portantino, Roth, Seyarto, Smallwood-Cuevas, Stern, Umberg, Wahab, and Wilk)May 02, 2024 Relative to Lupus and Fibromyalgia Awareness Month. LEGISLATIVE COUNSEL'S DIGESTSR 92, as introduced, Rubio. Digest KeyBill TextWHEREAS, Fibromyalgia is a chronic, long-lasting disorder that causes pain and tenderness throughout the body, as well as fatigue and trouble sleeping. Scientists do not fully understand what causes it, but people with the disorder have a heightened sensitivity to pain; andWHEREAS, Fibromyalgia may have a genetic component, as studies show it tends to run in families and researchers have found genes related to the pain response that may play a role in a persons risk for developing the disorder; andWHEREAS, The disorder is six times more common in women than in men, though this female predominance seems to be much lower when newer diagnostic criteria are used; andWHEREAS, While there have been few studies assessing the relationship between women who have been abused and the likelihood of them developing long-term illnesses such as fibromyalgia, research shows that women who have experienced sexual assault or domestic abuse are almost twice as likely to develop fibromyalgia and chronic fatigue syndrome (CFS) than those who have not; andWHEREAS, Fibromyalgia is difficult to diagnose, as there are no specific laboratory or imaging tests for the disorder. The main symptoms, including pain and fatigue, are shared with many other conditions, so doctors typically try to rule out other causes. It is a diagnosis of exclusion, and doctors typically will perform a physical exam and examine joints to see if the individual has another condition, or order laboratory or imaging tests to help rule out other diseases and conditions; andWHEREAS, There is no cure for fibromyalgia, so treatment focuses on relieving the symptoms and can include psychological and behavioral therapy, medications, and self-management approaches, such as physical exercise; and WHEREAS, Other conditions commonly present in patients with fibromyalgia are irritable bowel syndrome (IBS) and rheumatologic conditions such as rheumatoid arthritis and lupus; andWHEREAS, Lupus is an acute, chronic, complex, and often life-threatening autoimmune disease that can cause inflammation and pain in any part of the body; and WHEREAS, There are four types of lupus: systemic lupus, cutaneous lupus, drug-induced lupus, and neonatal lupus; andWHEREAS, Systemic lupus is the more common type of lupus, accounting for approximately 70 percent of the cases, and affects the heart, lungs, kidney, or brain; andWHEREAS, Cutaneous lupus only affects the skin and accounts for 10 percent of cases; andWHEREAS, Drug-induced lupus, accounting for 10 percent of cases, is caused by high doses of certain medication; and WHEREAS, The most rare form is neonatal lupus, in which the mothers antibodies affect the fetus. At birth, the baby may have a skin rash, liver problems, or low blood cell counts, but these symptoms typically disappear completely after six months with no lasting effects; and WHEREAS, Anyone can develop lupus, although some have a higher risk of developing it. Nine out of 10 people with lupus are women, and women between 15 to 44 years of age have a higher chance of developing lupus; and WHEREAS, Racial groups such as African Americans, Asian Americans, Hispanics or Latinos, and Native Americans have a higher chance of having lupus, with women of color being four times more likely to develop lupus than Caucasians; and WHEREAS, A study reported that African American lupus patients are more likely to have organ system involvement, a more active disease, and lower levels of social support compared with White lupus patients; and WHEREAS, Lupus mostly strikes women of childbearing age, affecting all aspects of their lives. However, men, children, and teenagers can develop lupus too; andWHEREAS, It is estimated that 1,500,000 Americans, and at least 5,000,000 people worldwide, have a form of lupus; andWHEREAS, It is believed that between 10 to 15 percent of people with lupus will die prematurely due to complications of lupus; andWHEREAS, A study showed that lupus was among the top 20 leading causes of death in women between 5 and 64 years of age. Lupus was ranked fifth in the leading causes of death for African American and Hispanic women between 15 and 24 years of age; and WHEREAS, Lupus can be particularly difficult to diagnose because its symptoms are similar to symptoms of other illnesses and, on average, it takes nearly six years for people with lupus to be diagnosed from the time they first notice their lupus symptoms. Approximately 63 percent of people with lupus report being incorrectly diagnosed when surveyed; andWHEREAS, Early diagnosis and proper treatments are critical to the improvement of the quality of life and survival rate of people with lupus; andWHEREAS, There is no known cause of, or cure for, lupus; and WHEREAS, There have only been two drugs approved specifically for lupus by the United States Food and Drug Administration in more than 60 years, with over a decade between approvals. The current treatments for the disease can have damaging effects, and it is important to increase awareness in the State of California of the debilitating impact of lupus; andWHEREAS, Sixty-three percent of Americans surveyed have never heard of lupus or know little or nothing about this disease and its symptoms beyond the name, indicating there is significant opportunity and need for continued public education; andWHEREAS, Increased public awareness, education, and research are key to winning the battle against lupus and fibromyalgia; now, therefore, be itResolved by the Senate of the State of California, That May 2024 is hereby recognized as Lupus and Fibromyalgia Awareness Month; and be it furtherResolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution. |
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