General Assembly Proposed Bill No. 6296
January Session, 2015 LCO No. 2300
*02300*
Referred to Committee on PUBLIC HEALTH
Introduced by:
REP. RYAN, 139th Dist.
General Assembly
Proposed Bill No. 6296
January Session, 2015
LCO No. 2300
*02300*
Referred to Committee on PUBLIC HEALTH
Introduced by:
REP. RYAN, 139th Dist.
AN ACT REQUIRING A NEWBORN SCREENING TEST AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR KRABBE DISEASE.
Be it enacted by the Senate and House of Representatives in General Assembly convened:
That title 19a of the general statutes be amended to require (1) a screening test for globoid cell leukodystrophy to be administered to newborn infants on and after January 1, 2016, (2) the Department of Public Health to provide information to parents of such newborn infants concerning the birth defects associated with globoid cell leukodystrophy and treatment options for such disease, and (3) the Commissioner of Public Health to establish a public education program concerning globoid cell leukodystrophy.
Statement of Purpose:
To require a newborn screening test and establish a public education program for globoid cell leukodystrophy, which is also known as "Krabbe disease".