Connecticut 2025 Regular Session

Connecticut Senate Bill SB01473 Compare Versions

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3-LCO 5674 1 of 2
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55 General Assembly Raised Bill No. 1473
66 January Session, 2025
77 LCO No. 5674
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1010 Referred to Committee on HUMAN SERVICES
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1313 Introduced by:
1414 (HS)
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1819 AN ACT REQUIRING MEDICAID COVERAGE FOR FDA -APPROVED
1920 GENE THERAPIES TO TREAT SICKLE CELL DISEASE.
2021 Be it enacted by the Senate and House of Representatives in General
2122 Assembly convened:
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2324 Section 1. (NEW) (Effective from passage) (a) The Commissioner of 1
2425 Social Services shall provide Medicaid coverage for gene therapies 2
2526 approved by the federal Food and Drug Administration to treat sickle 3
2627 cell disease. 4
2728 (b) The commissioner shall apply for any federal initiative to increase 5
2829 cost-effective access to the therapies, including, but not limited to, the 6
2930 Cell and Gene Therapy Access Model administered by the Centers for 7
3031 Medicare and Medicaid Services. 8
3132 (c) Not later than January 1, 2026, the commissioner shall file a report, 9
3233 in accordance with the provisions of section 11-4a of the general statutes, 10
3334 with the joint standing committee of the General Assembly having 11
3435 cognizance of matters relating to human services on the (1) efforts to 12
3536 increase cost-effective access to the therapies, (2) number of Medicaid 13
3637 recipients who have received Medicaid coverage for the therapies, (3) 14
37-cost to the state to provide such therapies, and (4) estimated state 15 Raised Bill No. 1473
38+cost to the state to provide such therapies, and (4) estimated state 15
39+Raised Bill No. 1473
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40-LCO 5674 2 of 2
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4245 appropriations needed to provide such coverage. 16
4346 This act shall take effect as follows and shall amend the following
4447 sections:
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4649 Section 1 from passage New section
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48-HS Joint Favorable
51+Statement of Purpose:
52+To require Medicaid coverage for gene therapies approved by the
53+federal Food and Drug Administration to treat sickle cell disease.
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55+[Proposed deletions are enclosed in brackets. Proposed additions are indicated by underline, except
56+that when the entire text of a bill or resolution or a section of a bill or resolution is new, it is not
57+underlined.]
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