SPONSOR: Sen. Hocker & Rep. Dorsey Walker & Rep. Jones Giltner Sens. Hansen, Hoffner, Huxtable, Lockman, Mantzavinos, Pettyjohn, Pinkney, Sokola, Wilson; Reps. Dukes, Hilovsky, K. Johnson, Matthews, Morrison, Parker Selby, Romer, Yearick DELAWARE STATE SENATE 152nd GENERAL ASSEMBLY SENATE CONCURRENT RESOLUTION NO. 159 PROCLAIMING THE MONTH OF MAY 2024 "CYSTIC FIBROSIS AWARENESS MONTH" IN THE STATE OF DELAWARE.
SPONSOR: Sen. Hocker & Rep. Dorsey Walker & Rep. Jones Giltner Sens. Hansen, Hoffner, Huxtable, Lockman, Mantzavinos, Pettyjohn, Pinkney, Sokola, Wilson; Reps. Dukes, Hilovsky, K. Johnson, Matthews, Morrison, Parker Selby, Romer, Yearick
SPONSOR: Sen. Hocker & Rep. Dorsey Walker & Rep. Jones Giltner
Sens. Hansen, Hoffner, Huxtable, Lockman, Mantzavinos, Pettyjohn, Pinkney, Sokola, Wilson; Reps. Dukes, Hilovsky, K. Johnson, Matthews, Morrison, Parker Selby, Romer, Yearick
SPONSOR:
Sen. Hocker & Rep. Dorsey Walker & Rep. Jones Giltner
Sens. Hansen, Hoffner, Huxtable, Lockman, Mantzavinos, Pettyjohn, Pinkney, Sokola, Wilson; Reps. Dukes, Hilovsky, K. Johnson, Matthews, Morrison, Parker Selby, Romer, Yearick
DELAWARE STATE SENATE
152nd GENERAL ASSEMBLY
SENATE CONCURRENT RESOLUTION NO. 159
PROCLAIMING THE MONTH OF MAY 2024 "CYSTIC FIBROSIS AWARENESS MONTH" IN THE STATE OF DELAWARE.
WHEREAS, cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 40,000 children and adults in the United States and over 70,000 worldwide; and WHEREAS, an estimated 105,000 people are diagnosed with cystic fibrosis across 94 countries; and WHEREAS, more than 75% of patients are diagnosed by age two; and WHEREAS, in the 1950s, few children with cystic fibrosis lived to attend elementary school; and WHEREAS, today, because of improved medical treatments and care, more than half of people with cystic fibrosis are 18 years and older, and many people can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond; and WHEREAS, based on the 2022 CF Foundation Patient Registry data, the life expectancy of people with CF who are born between 2018 and 2022 is predicted to be 56 years; and WHEREAS, advancements in research and medical treatments have further enhanced and extended the lives of children and adults with cystic fibrosis; and WHEREAS, through the drug development pipeline of the Cystic Fibrosis Foundation, significant progress has been achieved in the search for new treatments and a cure for this disease is being developed; and WHEREAS, in 2018, the FDA approved the use of lumacaftor/ivacaftor for children with cystic fibrosis ages 12 to 24 months, which allowed about 1,300 additional children in the U.S. to be eligible to receive the drug, bringing the total number of those in the U.S. who could benefit from the treatment to approximately 12,300; and WHEREAS, the FDA approved Trikafta, the first triple combination therapy available to treat patients with the 19 most common cystic fibrosis mutation in 2019; and WHEREAS, the theme of this years cystic fibrosis awareness is Unity in the Community to promote public awareness and understanding of cystic fibrosis and to bring more support for critical research to achieve the goals of enhancing research programs and finding a cure. NOW, THEREFORE: BE IT RESOLVED by the Senate of the 152nd General Assembly of the State of Delaware, the House of Representatives concurring therein, that May 2024 is proclaimed Cystic Fibrosis Awareness Month in the State of Delaware. BE IT FURTHER RESOLVED that a suitably prepared copy of this resolution be presented to the Cystic Fibrosis Foundation.
WHEREAS, cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 40,000 children and adults in the United States and over 70,000 worldwide; and
WHEREAS, an estimated 105,000 people are diagnosed with cystic fibrosis across 94 countries; and
WHEREAS, more than 75% of patients are diagnosed by age two; and
WHEREAS, in the 1950s, few children with cystic fibrosis lived to attend elementary school; and
WHEREAS, today, because of improved medical treatments and care, more than half of people with cystic fibrosis are 18 years and older, and many people can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond; and
WHEREAS, based on the 2022 CF Foundation Patient Registry data, the life expectancy of people with CF who are born between 2018 and 2022 is predicted to be 56 years; and
WHEREAS, advancements in research and medical treatments have further enhanced and extended the lives of children and adults with cystic fibrosis; and
WHEREAS, through the drug development pipeline of the Cystic Fibrosis Foundation, significant progress has been achieved in the search for new treatments and a cure for this disease is being developed; and
WHEREAS, in 2018, the FDA approved the use of lumacaftor/ivacaftor for children with cystic fibrosis ages 12 to 24 months, which allowed about 1,300 additional children in the U.S. to be eligible to receive the drug, bringing the total number of those in the U.S. who could benefit from the treatment to approximately 12,300; and
WHEREAS, the FDA approved Trikafta, the first triple combination therapy available to treat patients with the 19 most common cystic fibrosis mutation in 2019; and
WHEREAS, the theme of this years cystic fibrosis awareness is Unity in the Community to promote public awareness and understanding of cystic fibrosis and to bring more support for critical research to achieve the goals of enhancing research programs and finding a cure.
NOW, THEREFORE:
BE IT RESOLVED by the Senate of the 152nd General Assembly of the State of Delaware, the House of Representatives concurring therein, that May 2024 is proclaimed Cystic Fibrosis Awareness Month in the State of Delaware.
BE IT FURTHER RESOLVED that a suitably prepared copy of this resolution be presented to the Cystic Fibrosis Foundation.
SYNOPSIS This Senate Concurrent Resolution proclaims the month of May 2024 "Cystic Fibrosis Awareness Month" in the State of Delaware. Author: Senator Hocker
SYNOPSIS
This Senate Concurrent Resolution proclaims the month of May 2024 "Cystic Fibrosis Awareness Month" in the State of Delaware.
Author: Senator Hocker