Delaware 2025-2026 Regular Session

Delaware Senate Bill SCR52 Latest Draft

Bill / Draft Version

                            SPONSOR:      Sen. Paradee & Rep. Lynn       Sens. Sokola, Wilson; Reps. Hilovsky, K. Johnson, Ross Levin           DELAWARE STATE SENATE   153rd GENERAL ASSEMBLY       SENATE CONCURRENT RESOLUTION NO. 52       RECOGNIZING FEBRUARY 15, 2025, AS ANGELMAN SYNDROME AWARENESS DAY IN THE STATE OF DELAWARE.

SPONSOR:      Sen. Paradee & Rep. Lynn       Sens. Sokola, Wilson; Reps. Hilovsky, K. Johnson, Ross Levin

SPONSOR: Sen. Paradee & Rep. Lynn
Sens. Sokola, Wilson; Reps. Hilovsky, K. Johnson, Ross Levin



SPONSOR:

Sen. Paradee & Rep. Lynn

Sens. Sokola, Wilson; Reps. Hilovsky, K. Johnson, Ross Levin

DELAWARE STATE SENATE

153rd GENERAL ASSEMBLY

SENATE CONCURRENT RESOLUTION NO. 52

RECOGNIZING FEBRUARY 15, 2025, AS ANGELMAN SYNDROME AWARENESS DAY IN THE STATE OF DELAWARE.

WHEREAS, Angelman syndrome is a rare neuro-genetic disorder that occurs in one in 15,000 live births and affects approximately 500,000 individuals worldwide; and    WHEREAS, Angelman syndrome is caused by a loss of function of the UBE3A gene in the 15  th   chromosome derived from the mother, and which is needed to develop and control speech and movement; and    WHEREAS, individuals with Angelman syndrome begin experiencing developmental delays starting between 6 and 12 months, and these developmental delays are often the first signs of Angelman syndrome; and    WHEREAS, in addition to delayed development, Angelman syndrome causes problems with speech and balance, mental disability, and, sometimes, seizures; and    WHEREAS, Angelman syndrome shares symptoms and characteristics with other disorders, including autism, cerebral palsy, and Prader-Willi syndrome, and     WHEREAS, individuals with Angelman syndrome have an overall happy and excitable demeanor, and they smile and laugh often; and    WHEREAS, Angelman syndrome is rare; most individuals with Angelman syndrome do not have a family history of the syndrome, and researchers often do not know what causes the genetic changes that result in the disease; and    WHEREAS, Angelman syndrome can lead to several complications, including trouble feeding, hyperactivity, sleep troubles, scoliosis, and obesity; and    WHEREAS, the treatment of Angelman syndrome focuses on managing medical, sleep, and developmental issues; and    WHEREAS, there is currently no cure for Angelman syndrome, but organizations, such as the Angelman Syndrome Foundation, note that, with further research, there may be a cure in the future; and    WHEREAS, organizations worldwide recognize February 15  th   as International Angelman Day to raise awareness about Angelman syndrome.    NOW, THEREFORE:    BE IT RESOLVED by the Senate of 153  rd   General Assembly of the State of Delaware, the House of Representatives concurring therein, that February 15, 2025, is recognized as Angelman Syndrome Awareness Day.    BE IT FURTHER RESOLVED that the General Assembly affirms the importance of raising awareness of Angelman syndrome to ensure effective screening, diagnosis, and treatment of the disease.

WHEREAS, Angelman syndrome is a rare neuro-genetic disorder that occurs in one in 15,000 live births and affects approximately 500,000 individuals worldwide; and

WHEREAS, Angelman syndrome is caused by a loss of function of the UBE3A gene in the 15  th   chromosome derived from the mother, and which is needed to develop and control speech and movement; and

WHEREAS, individuals with Angelman syndrome begin experiencing developmental delays starting between 6 and 12 months, and these developmental delays are often the first signs of Angelman syndrome; and

WHEREAS, in addition to delayed development, Angelman syndrome causes problems with speech and balance, mental disability, and, sometimes, seizures; and

WHEREAS, Angelman syndrome shares symptoms and characteristics with other disorders, including autism, cerebral palsy, and Prader-Willi syndrome, and

WHEREAS, individuals with Angelman syndrome have an overall happy and excitable demeanor, and they smile and laugh often; and

WHEREAS, Angelman syndrome is rare; most individuals with Angelman syndrome do not have a family history of the syndrome, and researchers often do not know what causes the genetic changes that result in the disease; and

WHEREAS, Angelman syndrome can lead to several complications, including trouble feeding, hyperactivity, sleep troubles, scoliosis, and obesity; and

WHEREAS, the treatment of Angelman syndrome focuses on managing medical, sleep, and developmental issues; and

WHEREAS, there is currently no cure for Angelman syndrome, but organizations, such as the Angelman Syndrome Foundation, note that, with further research, there may be a cure in the future; and

WHEREAS, organizations worldwide recognize February 15  th   as International Angelman Day to raise awareness about Angelman syndrome.

NOW, THEREFORE:

BE IT RESOLVED by the Senate of 153  rd   General Assembly of the State of Delaware, the House of Representatives concurring therein, that February 15, 2025, is recognized as Angelman Syndrome Awareness Day.

BE IT FURTHER RESOLVED that the General Assembly affirms the importance of raising awareness of Angelman syndrome to ensure effective screening, diagnosis, and treatment of the disease.

SYNOPSIS   This concurrent resolution recognizes February 15, 2025, as Angelman Syndrome Awareness Day in the State of Delaware.   Author: Senator Paradee

SYNOPSIS

This concurrent resolution recognizes February 15, 2025, as Angelman Syndrome Awareness Day in the State of Delaware.

Author: Senator Paradee