Florida 2022 Regular Session

Florida House Bill H1067 Compare Versions

Only one version of the bill is available at this time.

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10	10	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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14	14	A bill to be entitled 1
15	15	An act relating to the treatment and care of adult 2
16	16	patients with sickle cell disease; creating s. 3
17	17	381.817, F.S.; providing definitions; creating the 4
18	18	Sickle Cell Disease Task Force adjunct to the 5
19	19	Department of Health; providing a purpose; providing 6
20	20	for membership, meetings, and duties of the task 7
21	21	force; requiring the task force to submit a report to 8
22	22	the Governor and Legislature by a specified date; 9
23	23	providing for future expiration; creating s. 381.819, 10
24	24	F.S.; requiring the department, in consultation with 11
25	25	the task force, to develop and implement comprehensive 12
26	26	training and continuing education requirements for 13
27	27	certain health care providers; authorizing the 14
28	28	department to adopt rules; amending s. 381.981, F.S.; 15
29	29	requiring the Florida Public Health Institute, Inc., 16
30	30	in consultation with the department, to include sickle 17
31	31	cell disease as part of its health awareness 18
32	32	campaigns; providing an effective date. 19
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34	34	Be It Enacted by the Legislature of the State of Florida: 21
35	35	22
36	36	Section 1. Section 381.817, Florida Statutes, is created 23
37	37	to read: 24
38	38	381.817 Sickle Cell Disease Task Force. — 25
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47	47	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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51	51	(1) DEFINITIONS.—As used in this section, the term: 26
52	52	(a) "Department" means the Department of Hea lth. 27
53	53	(b) "Task force" means the Sickle Cell Disease Task Force 28
54	54	created under this section. 29
55	55	(2) CREATION AND PURPOSE. —The Sickle Cell Disease Task 30
56	56	Force, a task force as defined in s. 20.03(8), is created 31
57	57	adjunct to the department for the purpose of pro viding 32
58	58	recommendations for improving the quality of treatment and care 33
59	59	provided to adult patients diagnosed with sickle cell disease 34
60	60	and for educating and training health care providers who treat, 35
61	61	or participate in the treatment of, such patients regarding the 36
62	62	best practices and guidelines for such treatment. The department 37
63	63	shall provide staff and administrative support for the task 38
64	64	force. 39
65	65	(3)(a) MEMBERSHIP.—The task force shall consist of 18 40
66	66	members, as follows: 41
67	67	1. The State Surgeon General or his or h er designee. 42
68	68	2. The Secretary of Health Care Administration or his or 43
69	69	her designee. 44
70	70	3. Three county health department directors, one of whom 45
71	71	represents a county with a large minority population, one of 46
72	72	whom represents a rural county, and one of whom re presents a 47
73	73	large county, appointed by the State Surgeon General. 48
74	74	4. One emergency room physician, one primary care 49
75	75	physician, one hematologist, one registered nurse or advanced 50
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84	84	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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88	88	practice registered nurse, one physician assistant, and one 51
89	89	pharmacist who treats, or participates in the treatment of, 52
90	90	adult patients with sickle cell disease, appointed by the State 53
91	91	Surgeon General. 54
92	92	5. One representative from each of the following 55
93	93	organizations, appointed by the Governor: 56
94	94	a. Florida Medical Association. 57
95	95	b. Sickle Cell Disease Association of Florida, Inc. 58
96	96	c. Florida Association of County Health Officers, Inc. 59
97	97	d. University of South Florida College of Public Health. 60
98	98	e. Florida Agricultural and Mechanical University 61
99	99	Institute of Public Health. 62
100	100	6. Two adult patients who have been diagnosed with sickle 63
101	101	cell disease, one appointed by the President of the Senate and 64
102	102	one appointed by the Speaker of the House of Representatives. 65
103	103	(b) The members of the task force must be appointed by 66
104	104	September 1, 2022. A vacancy on the task force shall be filled 67
105	105	in the same manner as the original appointment. The task force 68
106	106	shall elect a chair from among its members. 69
107	107	(c) Members of the task force shall serve without 70
108	108	compensation but are entitled to reimbursement for per diem and 71
109	109	travel expenses pursuant to s. 112.061. 72
110	110	(4) MEETINGS.— 73
111	111	(a) The task force shall convene its first meeting by 74
112	112	October 1, 2022. Thereafter, the task force shall meet as often 75
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121	121	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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125	125	as necessary to perform its duties at the call of the chair. 76
126	126	(b) Meetings may be conducted in person or by 77
127	127	teleconference or other electronic means. 78
128	128	(5) DUTIES.—The task force shall: 79
129	129	(a) Develop recommendations and identify strategies for 80
130	130	improving the continuum of care for adult patients with sickle 81
131	131	cell disease and promo ting the coordination among health care 82
132	132	providers, including, but not limited to, delineating the 83
133	133	elements of a comprehensive system of care and standardizing 84
134	134	protocols for the treatment of such patients. 85
135	135	(b) Identify the barriers to adult patients with sickle 86
136	136	cell disease in receiving adequate treatment and care, 87
137	137	including, but not limited to, inconsistent and inadequate 88
138	138	health insurance coverage, systemic racism, and a lack of 89
139	139	coordination among health care providers within the continuum of 90
140	140	care for such patients. 91
141	141	(c) Develop recommendations and identify strategies for 92
142	142	eliminating the barriers identified under paragraph (b). 93
143	143	(d) Develop recommendations for and identify the services 94
144	144	that are not covered by health insurance, but should be, for 95
145	145	adult patients with sickle cell disease, including, but not 96
146	146	limited to, urine screening for albuminuria, annual or biannual 97
147	147	dilated ophthalmological examination for sickle cell 98
148	148	retinopathy, pain specialist consultation and services, 99
149	149	evaluation and treatment for me ntal illness, and disease -100
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158	158	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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162	162	modifying therapies. 101
163	163	(e) Develop recommendations for improving the treatment 102
164	164	and care of adult patients with sickle cell disease for 103
165	165	prolonged acute pain, especially in hospital emergency 104
166	166	departments, including, but not limited to, managing pain for 105
167	167	such patients in accordance with the National Heart, Lung, and 106
168	168	Blood Institute's guidelines in the Evidence -Based Management of 107
169	169	Sickle Cell Disease: Expert Panel Report, 2014. 108
170	170	(f) Develop recommendations for standardizing the use of 109
171	171	individualized care plans by health care providers for each 110
172	172	adult patient with sickle cell disease, which would be included 111
173	173	in his or her medical records. 112
174	174	(g) Develop recommendations for training and educating 113
175	175	health care providers who care for and trea t, or participate in 114
176	176	the treatment and care of, adult patients with sickle cell 115
177	177	disease, including, but not limited to, comprehensive courses 116
178	178	covering systemic racism and its negative impact on the 117
179	179	accessibility of care, the management of pain in such pati ents, 118
180	180	and other diseases that disproportionately affect the minority 119
181	181	community. 120
182	182	(h) Develop recommendations and identify strategies for 121
183	183	providing support to adult patients with sickle cell disease 122
184	184	through the use of community -based organizations and case 123
185	185	managers in health care facilities. 124
186	186	(6) REPORT.—By October 1, 2023, the task force shall 125
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195	195	F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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199	199	submit a report that includes its findings and recommendations 126
200	200	to the Governor, the President of the Senate, and the Speaker of 127
201	201	the House of Representatives. 128
202	202	(7) EXPIRATION.—This section expires October 1, 2024. 129
203	203	Section 2. Section 381.819, Florida Statutes, is created 130
204	204	to read: 131
205	205	381.819 Training and continuing education relating to 132
206	206	treatment and care of adults with sickle cell disease. —By 133
207	207	September 1, 2024, the Department of Health, in consultation 134
208	208	with the Sickle Cell Disease Task Force created under s. 135
209	209	381.817, shall develop and implement comprehensive training and 136
210	210	continuing education requirements for health care providers 137
211	211	relating to the treatment and care o f adults with sickle cell 138
212	212	disease. The department may adopt rules to implement this 139
213	213	section. 140
214	214	Section 3. Paragraph (v) is added to subsection (2) of 141
215	215	section 381.981, Florida Statutes, to read: 142
216	216	381.981 Health awareness campaigns. — 143
217	217	(2) The awareness c ampaigns shall include the provision of 144
218	218	educational information about preventing, detecting, treating, 145
219	219	and curing the following diseases or conditions. Additional 146
220	220	diseases and conditions that impact the public health may be 147
221	221	added by the board of directors of the Florida Public Health 148
222	222	Institute, Inc.; however, each of the following diseases or 149
223	223	conditions must be included in an awareness campaign during at 150
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236	236	least 1 month in any 24 -month period: 151
237	237	(v) Sickle cell disease. 152
238	238	Section 4. This act shall take effect July 1, 2022. 153