| 18 | | - | and treatment of sickle cell disease and sickle cell 5 |
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| 19 | | - | trait or sickle cell trait carriers and for 6 |
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| 20 | | - | educational programs and develop application criteria 7 |
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| 21 | | - | and standards of eligibility for such program; 8 |
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| 22 | | - | providing applicability; requiring the department to 9 |
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| 23 | | - | develop and maintain a voluntary registry and to 10 |
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| 24 | | - | conduct a specified study; requiring the department to 11 |
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| 25 | | - | adopt rules; providing an effective date. 12 |
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| 26 | | - | 13 |
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| 27 | | - | Be It Enacted by the Legislature of the State of Florida: 14 |
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| 28 | | - | 15 |
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| 29 | | - | Section 1. This act may be known as the "Sickle Cell 16 |
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| 30 | | - | Disease and Sickle Cell Trait Prevention, Care, and Treatment 17 |
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| 31 | | - | Act." 18 |
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| 32 | | - | Section 2. Subsection (3) of section 381.815, Florida 19 |
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| 33 | | - | Statutes, is amended, to read: 20 |
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| 34 | | - | 381.815 Sickle cell Sickle-cell program; voluntary 21 |
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| 35 | | - | registry.—The Department of Health shall , to the extent that 22 |
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| 36 | | - | resources are available: 23 |
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| 37 | | - | (3)(a)1. Establish a grant program for the prevention, 24 |
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| 38 | | - | care, and treatment of sickle cell disease and sickle cell trait 25 |
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| 18 | + | and treatment of sickle cell disease and for 5 |
|---|
| 19 | + | educational programs and develop application criteria 6 |
|---|
| 20 | + | and standards of eligibility for such program; 7 |
|---|
| 21 | + | providing applicability; requiring the department to 8 |
|---|
| 22 | + | develop and maintain a voluntary registry and to 9 |
|---|
| 23 | + | conduct a specified study; requiring the department to 10 |
|---|
| 24 | + | adopt rules; providing an effective date. 11 |
|---|
| 25 | + | 12 |
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| 26 | + | Be It Enacted by the Legislature of the State of Florida: 13 |
|---|
| 27 | + | 14 |
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| 28 | + | Section 1. This act may be known as the "Sickle Cell 15 |
|---|
| 29 | + | Prevention, Care, and Treatment Act." 16 |
|---|
| 30 | + | Section 2. Subsection (3) of section 381.815, Florida 17 |
|---|
| 31 | + | Statutes, is amended, to read: 18 |
|---|
| 32 | + | 381.815 Sickle cell Sickle-cell program; voluntary 19 |
|---|
| 33 | + | registry.—The Department of Health shall, to the extent that 20 |
|---|
| 34 | + | resources are available: 21 |
|---|
| 35 | + | (3)(a)1. Establish a grant program for the prevention, 22 |
|---|
| 36 | + | care, and treatment of sickle cell disease and for community -23 |
|---|
| 37 | + | based educational programs concerning the disease. 24 |
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| 38 | + | 2. The community-based educational programs shall include 25 |
|---|
| 51 | | - | or sickle cell trait carriers and for community -based 26 |
|---|
| 52 | | - | educational programs concerning th e disease. 27 |
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| 53 | | - | 2. The community-based educational programs shall include 28 |
|---|
| 54 | | - | an outreach program that provides for the dissemination of 29 |
|---|
| 55 | | - | information relating to the prevention, care, and treatment of 30 |
|---|
| 56 | | - | sickle cell disease and sickle cell trait or sickle cell trait 31 |
|---|
| 57 | | - | carriers. 32 |
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| 58 | | - | (b) Develop application criteria and standards of 33 |
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| 59 | | - | eligibility for applicants for funds under the grant program. 34 |
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| 60 | | - | 1. Groups or organizations that meet the eligibility 35 |
|---|
| 61 | | - | standards developed by the department may apply for funds under 36 |
|---|
| 62 | | - | the program. 37 |
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| 63 | | - | 2.a. Priority for grants shall be given to established 38 |
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| 64 | | - | sickle cell disease and sickle cell trait or sickle cell trait 39 |
|---|
| 65 | | - | carrier community-based applicants throughout the state. 40 |
|---|
| 66 | | - | b. Further priority shall be given to ensuring the 41 |
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| 67 | | - | establishment of sickle ce ll disease and sickle cell trait or 42 |
|---|
| 68 | | - | sickle cell trait carrier centers in underserved areas with a 43 |
|---|
| 69 | | - | higher population of sickle cell disease and sickle cell trait 44 |
|---|
| 70 | | - | or sickle cell trait carrier patients. 45 |
|---|
| 71 | | - | (c) Require that all program grant funds must be used for 46 |
|---|
| 72 | | - | the purpose of prevention, care, and treatment of sickle cell 47 |
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| 73 | | - | disease or sickle cell trait or sickle cell trait carriers or 48 |
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| 74 | | - | for educational programs concerning the disease. 49 |
|---|
| 75 | | - | (d) Conduct a study to determine the prevalence, impact, 50 |
|---|
| 76 | | - | |
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| 77 | | - | CS/HB 247 2023 |
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| 78 | | - | |
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| 79 | | - | |
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| 80 | | - | |
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| 81 | | - | CODING: Words stricken are deletions; words underlined are additions. |
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| 82 | | - | hb0247-01-c1 |
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| 83 | | - | Page 3 of 3 |
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| 84 | | - | F L O R I D A H O U S E O F R E P R E S E N T A T I V E S |
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| 85 | | - | |
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| 86 | | - | |
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| 87 | | - | |
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| 88 | | - | and needs of patients diagnosed with sickle cell disease or 51 |
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| 89 | | - | sickle cell trait or sickle cell trait carriers in the state. 52 |
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| 90 | | - | (e) Adopt rules necessary to implement this subsection. 53 |
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| 91 | | - | (3) Make grants or enter into contracts with not -for-profit 54 |
|---|
| 92 | | - | centers. 55 |
|---|
| 93 | | - | Section 3. This act shall take effect July 1, 2023. 56 |
|---|
| 51 | + | an outreach program that provides for the dissemination of 26 |
|---|
| 52 | + | information relating to the prevention, care, and treatment of 27 |
|---|
| 53 | + | sickle cell disease. 28 |
|---|
| 54 | + | (b) Develop application criteria and standards of 29 |
|---|
| 55 | + | eligibility for applicants for funds under the grant program. 30 |
|---|
| 56 | + | 1. Groups or organizations that meet the eligibility 31 |
|---|
| 57 | + | standards developed by the department may apply for funds under 32 |
|---|
| 58 | + | the program. 33 |
|---|
| 59 | + | 2.a. Priority for grants shall be given to established 34 |
|---|
| 60 | + | sickle cell disease community -based applicants throughout the 35 |
|---|
| 61 | + | state. 36 |
|---|
| 62 | + | b. Further priority shall be given to ensuring the 37 |
|---|
| 63 | + | establishment of sickle cell disease centers in underserved 38 |
|---|
| 64 | + | areas with a higher population of sickle cell disease patients. 39 |
|---|
| 65 | + | (c) Require that all program grant funds must be used for 40 |
|---|
| 66 | + | the purpose of prevention, care, and treatment of sickle cell 41 |
|---|
| 67 | + | disease or for educational programs concerning the disease. 42 |
|---|
| 68 | + | (d) Develop and maintain a voluntary sickle cell disease 43 |
|---|
| 69 | + | registry for patients diagnosed with sickle cell disease. 44 |
|---|
| 70 | + | (e) Conduct a study to determine the prevalence, impact, 45 |
|---|
| 71 | + | and needs of patients diagnosed with sickle cell disease and the 46 |
|---|
| 72 | + | sickle cell trait in the state. 47 |
|---|
| 73 | + | (f) Adopt rules necessary to implement this subsection. 48 |
|---|
| 74 | + | Make grants or enter into contracts with not -for-profit centers. 49 |
|---|
| 75 | + | Section 3. This act shall take effect July 1, 2023. 50 |
|---|