This docum ent does not reflect the intent or official position of the bill sponsor or House of Representatives. STORAGE NAME: h1275e.HHS DATE: 4/11/2023 HOUSE OF REPRESENTATIVES STAFF ANALYSIS BILL #: CS/HB 1275 Persons with Disabilities Registry SPONSOR(S): Health & Human Services Committee, Plasencia TIED BILLS: HB 1277 IDEN./SIM. BILLS: SB 784 REFERENCE ACTION ANALYST STAFF DIRECTOR or BUDGET/POLICY CHIEF 1) Children, Families & Seniors Subcommittee 15 Y, 2 N Guzzo Brazzell 2) Criminal Justice Subcommittee 17 Y, 0 N Hall Hall 3) Health & Human Services Committee 17 Y, 0 N, As CS Guzzo Calamas SUMMARY ANALYSIS Some behaviors associated with certain developmental, mental, neurological, psychological, emotional, or cognitive impairments can increase a person’s chances of negative interactions with law enforcement. These include the inability to follow instructions, acting out, inappropriate verbal statements, or other actions that may be mistakenly perceived as an indication of hostility, criminal intent, or alcohol or drug intoxication. Some local law enforcement agencies have developed programs to create safer interactions between law enforcement and individuals with certain impairments, illnesses or disabilities. These include registries that allow individuals with certain developmental, mental, neurological, psychological, emotional, or cognitive impairments to voluntarily enroll by submitting identifying information and indicating the condition they have that may be relevant to their interactions with law enforcement officers. CS/HB 1275 creates s. 402.88, F.S., to establish uniform requirements for Persons with Disabilities Registries by law enforcement agencies. The bill requires specified professionals to diagnose and certify a person’s developmental, mental, or neurological condition prior to eligibility for enrollment in a registry. The bill requires law enforcement agencies to ensure that individuals are enrolled in, or disenrolled from, Persons with Disabilities Registries as follows. Adults may enroll and disenroll themselves; Adults with a disability who have been declared incapacitated may be enrolled and disenrolled by their legal guardian—the local law enforcement agency must notify such adults of their enrollment in writing within 5 business days; and Minors may be enrolled and disenrolled by parents or legal guardians—the law enforcement agency must notify such individuals of their enrollment in writing within 5 business days of their 18 th birthday. The bill requires a parent or legal guardian of a child or an incapacitated adult to provide documentation of their legal authority to enroll the child or incapacitated adult in a registry. A local law enforcement agency must remove an individual from a disability registry within 5 business days of an enrollee’s verbal or written request for removal. The bill authorizes a local law enforcement agency to provide access to a registry, and relevant information from the registry, to a law enforcement officer engaged in official duties. The bill is linked to CS/HB 1277, which creates a public record exemption for all records and personal identifying information relating to the enrollment of individuals in a persons with disabilities registry held by a local law enforcement agency. The bill has no fiscal impact on state or local government. The bill provides an effective date of July 1, 2024. STORAGE NAME: h1275e.HHS PAGE: 2 DATE: 4/11/2023 FULL ANALYSIS I. SUBSTANTIVE ANALYSIS A. EFFECT OF PROPOSED CHANGES: Background Disabilities Disabilities can cause a lack of functionality in an individual’s vision, hearing, cognition, and motor performance, and can limit an individual’s ability to care for themselves or live independently. 1 Disabilities can be present at birth or develop over the lifespan. Examples of disabilities include Down Syndrome, autism, Alzheimer’s disease, Parkinson’s disease, and progressive supranuclear palsy. Currently, 12.7 percent of Americans have a disability. 2 Intellectual Disabilities Intellectual disability means significantly subaverage general intellectual functioning existing concurrently with deficits in adaptive behavior. An individual with an intellectual disability has certain limitations in both mental functioning and in adaptive skills such as communicating, self-care, and social skills. These limitations will cause a person to learn and develop more slowly. People with intellectual disabilities may take longer to learn to speak, walk, and take care of their personal needs such as dressing or eating. 3 Down Syndrome Down syndrome is an intellectual disability caused when abnormal cell division results in extra genetic material from chromosome 21. This genetic disorder, also known as trisomy 21, varies in severity, causes lifelong intellectual disability and developmental delays, and, in some people, causes health problems. 4 Neurological Disorders Autism Autism is a pervasive, neurologically-based developmental disability of extended duration that has onset during infancy or childhood, which causes severe learning, communication, and behavioral disorders. 5 Autism spectrum disorder (ASD) includes autism, Asperger’s syndrome, and any other pervasive developmental disorder. 6 The Centers for Disease Control and Prevention (CDC) estimates that approximately one in 44 children has ASD. 7 The CDC also estimates that over 5.4 million adults have ASD. 8 Alzheimer’s Disease 1 Cornell University, Disability Statistics Online Resource for U.S. Disability Statistics, American Community Survey (2019), available at https://www.disabilitystatistics.org/reports/acs.cfm?statistic=1 (last accessed March 19, 2023). 2 Id. 3 Agency for Persons with Disabilities, Long-Range Program Plan Fiscal Years 2023-24-2027-28, available at http://floridafiscalportal.state.fl.us/Document.aspx?ID=24394&DocType=PDF (last accessed March 17, 2023) 4 Id. 5 S. 393.063(5), F.S. 6 S. 627.6686(2)(b), F.S. 7 Centers for Disease Control and Prevention, Data & Statistics on Autism Spectrum Disorder, available at https://www.cdc.gov/ncbddd/autism/data.html (last accessed March 15, 2023). 8 Centers for Disease Control and Prevention, Key Findings: CDC Releases First Estimates of the Number of Adults Living with Autism Spectrum Disorder in the United States, available at https://www.cdc.gov/ncbddd/autism/features/adults-living-with-autism-spectrum- disorder.html (last accessed March 15, 2023). STORAGE NAME: h1275e.HHS PAGE: 3 DATE: 4/11/2023 Alzheimer’s disease is a form of dementia, a general term for memory loss, in which dementia symptoms worsen gradually over time. It is a progressive brain disorder that damages and eventually destroys brain cells, leading to memory loss and changes in the functions of the brain. Alzheimer’s disease accounts for 60 to 80 percent of dementia cases. In the early stages of Alzheimer’s disease, memory loss is mild; in late-stages, individuals lose the ability to carry on a conversation and respond to their environment. Currently, the disease has no cure, but treatment can temporarily slow the worsening of symptoms. 9 Florida has an increasing number of individuals with Alzheimer’s disease. An estimated 580,000 Floridians have Alzheimer’s disease. 10 The projected number of Floridians with Alzheimer’s disease is estimated to increase by 24 percent to 720,000 individuals by 2025. 11 Parkinson’s Disease Parkinson’s disease is a progressive neurological disorder that affects the nervous system and the parts of the body controlled by the nerves. It causes uncontrollable movements, such as shaking, stiffness, and difficulty with balance and coordination. 12 Nearly 90,000 people are diagnosed with Parkinson’s disease in the U.S. each year. 13 Progressive Supranuclear Palsy Progressive supranuclear palsy (PSP) is a rare neurological disorder that affects an individual’s balance and control of walking, speech, swallowing, eye movements and vision, mood and behavior, and thinking. PSP shares many symptoms with, and is often misdiagnosed as Parkinson’s disease. 14 Mental Disorders A mental illness is an impairment of the mental or emotional processes that exercise conscious control of one’s actions or the ability to perceive or understand reality, which interferes with the person’s ability to meet the ordinary demands of living. 15 An estimated 26 percent of American adults suffer from a diagnosable mental disorder in a given year. 16 One in six youth aged 6-17 experience a mental health disorder each year. 17 These range in severity from illnesses that mildly impair functioning to illnesses such as schizophrenia that involve hallucinations and delusions, incoherent speech, and inappropriate behavior. 18 Interactions with Law Enforcement 9 Alzheimer’s Association, 2021 Alzheimer’s Disease Facts and Figures, available at https://www.alz.org/media/documents/alzheimers- facts-and-figures.pdf (last accessed March 15, 2023). 10 Florida Department of Elder Affairs, 2021 Alzheimer’s Disease Advisory Committee Annual Report, available at https://elderaffairs.org/wp-content/uploads/ADAC-Report-2021_FINAL.pdf (last accessed March 15, 2023). 11 Id. 12 National Institute on Aging, Parkinson’s Disease: Causes, Symptoms, and Treatments, available at https://www.nia.nih.gov/health/parkinsons-disease (last accessed March 15, 2023). 13 Willis, A.W., Roberts, E., Beck, J.C. et al., Incidence of Parkinson Disease In North America, NPJ Parkinson’s Disease, Article 170 (2022), https://doi.org/10.1038/s41531-022-00410-y (last accessed March 15, 2023). 14 National Institute of Neurological Disorders and Stroke, Progressive Supranuclear Palsy, available at https://www.ninds.nih.gov/health-information/disorders/progressive-supranuclear-palsy-psp (last accessed March 15, 2023). 15 S. 394.455(29), F.S. 16 Johns Hopkins Medicine, Mental Health Disorder Statistics, available at https://www.hopkinsmedicine.org/health/wellness-and- prevention/mental-health-disorder-statistics (last accessed March 15, 2023). 17 National Alliance on Mental Health, Mental Health by the Numbers, available at https://www.nami.org/mhstats (last accessed March 15, 2023). 18 U.S. Department of Health and Human Services, National Institute of Mental Health, Understanding Psychosis, https://www.nimh.nih.gov/health/publications/understanding-psychosis (last accessed March 17, 2023). STORAGE NAME: h1275e.HHS PAGE: 4 DATE: 4/11/2023 All of the conditions discussed above have attributes that may mislead a law enforcement officer to think that an individual is under the influence of drugs or alcohol—such as speech impairment, vision impairment, uncontrollable body movements, and memory loss. Because of this, such a condition may make interactions with law enforcement more challenging. For example, identifying that a person has ASD can be difficult for a person unfamiliar with the condition, including law enforcement officers. 19 The signs of autism may mislead a law enforcement officer to think the person is being aggressive or disobedient, which might cause the officer to approach the situation in the same manner they would when dealing with a suspected criminal. 20 Common attributes of autism are communication differences and behaviors or thinking that are repetitive or restricted to an area of interest. These traits could be interpreted by law enforcement as not being compliant with questioning or direct instructions. A characteristic of ASD known as escalation poses a particular problem in encounters with law enforcement. 21 Escalation describes the response of a person with ASD under stress or in an unfamiliar situation. Overwhelmed by the barrage of sensory information, a person with ASD may attempt to flee an uncomfortable situation, become combative, or simply shut down. The individual may cover his or her ears and shriek, not knowing how or where to get help. 22 The presence of police lights and sirens, uniforms, loud and unfamiliar voices, or barking dogs often makes a difficult situation worse by contributing to the individual's sensory overload. 23 Registries of Persons with Disabilities Some local law enforcement agencies have developed and implemented programs in an attempt to create safer interactions with individuals with certain impairments. These include registries to allow individuals with certain conditions to voluntarily enroll by submitting certain identifying information and indicating the condition they have that may be relevant to their interactions with law enforcement officers. 24 The information from these registries is then shared with law enforcement when an officer interacts with an individual listed in the registry. For example, a dispatcher can inform an officer of an individual’s condition prior to the officer interacting with that individual or an officer may search the registry prior to interacting with an individual. 19 Bernard J. Farber, Police Interaction With Autistic Persons: The Need For Training, Aele Monthly Law Journal, 101, 102 (2009), available at https://www.aele.org/law/2009all07/2009-07MLJ101.pdf (last accessed Mach 15, 2023). 20 Lambert, Randy (2018) "How Changing the Wes Kleinert Fair Interview Act and Establishing Law Enforcement Academy Training Standards Will Help the Autism Community," Child and Family Law Journal: Vol. 6 : Iss. 1 , Article 3, available at: https://lawpublications.barry.edu/cflj/vol6/iss1/3 (last accessed March 15, 2023). 21 Supra at note 19. 22 Id. 23 Id. 24 See Seminole County Sheriff’s Office-County Autism Response & Enhanced Services Program (CARES), available at https://www.seminolesheriff.org/page.aspx?id=157, City of Jacksonville Emergency Preparedness and Homeland Security-Registry for Endangered, Vulnerable, and Missing Persons (REVAMP), available at https://www.jaxready.com/REVAMP, City of Davie Police Department-Special Needs Registry, available at https://www.davie-fl.gov/1451/Special-Needs-Registry, Hillsborough County Sheriff’s Office-Project Safe Encounter, available at https://teamhcso.com/News/PressRelease/f0f3d53b-cf10-4740-9112-ab88284a1e49/21-023 (last accessed March 15, 2023). See also Town of Jupiter, Pembroke Pines, Miami Shores, Town of Miami Lakes, Palm Beach Gardens, City of Lake Mary, and Polk County. STORAGE NAME: h1275e.HHS PAGE: 5 DATE: 4/11/2023 Effect of the Bill CS/HB 1275 creates s. 402.88, F.S., to create uniform requirements for the operation of Persons with Disabilities Registries by law enforcement agencies. The bill requires a person’s condition to be diagnosed and certified by a specified professional prior to being eligible for enrollment in a registry. Such diagnosis and certification must be provided by a licensed physician, physician assistant, advanced practice registered nurse, psychologist, mental health counselor, or psychiatrist. The bill defines “condition” as a developmental, mental, neurological, psychological, emotional, or cognitive impairment, illness, or disability, including, but not limited to autism spectrum disorder, Alzheimer’s disease or a dementia-related disorder, Parkinson’s disease, progressive supranuclear palsy, epilepsy, bipolar disorder, or Down syndrome. The bill specifies that conditions manifested by substance abuse are not authorized conditions for inclusion in a Persons with Disabilities Registry. The bill requires law enforcement agencies to ensure that individuals are enrolled and disenrolled in Persons with Disabilities Registries as follows: An adult may enroll and disenroll themselves; An incapacitated adult 25 with a disability may be enrolled and disenrolled by their legal guardian—the local law enforcement agency must notify such adults of their enrollment in writing within 5 business days; and A minor may be enrolled and disenrolled by their parent or legal guardian—the local law enforcement agency must notify such individuals of their enrollment in writing within 5 business days of the enrollee’s 18 th birthday. The bill requires a parent or legal guardian of a child or an incapacitated adult to provide documentation of their legal authority to enroll the child or incapacitated adult in a registry. Documentation may be in the form of a birth certificate, power of attorney, 26 court order establishing parental rights or guardianship, or letters of guardianship. 27 A local law enforcement agency must remove an individual from a registry within 5 business days of an enrollee’s verbal or written request for removal. The bill authorizes a registry to include certain information, including, but not limited to: The enrollee’s name, address, contact information, personal identifying information, and condition that may be relevant to interactions with law enforcement officers; The name, address, contact information, and personal identifying information of a parent, legal guardian, or guardian advocate who enrolled an individual; and The certification of the condition. The bill authorizes a local law enforcement agency to provide access to its disability registry, and relevant information from the registry, to a law enforcement officer engaged in the his or her official duties. The bill provides an effective date of January 1, 2024. 25 S. 744.102, F.S., an incapacitated person is an individual who has been judicially determined to lack the capacity to manage at least some of their own property or to meet at least some of the essential requirements for the individual’s health and safety. See also s. 744.3201, F.S., the process to determine an individual’s incapacity and the subsequent appointment of a guardian begins with a verified petition detailing the factual information supporting the reasons the petitioner believes the individual to be incapacitated, including the rights the alleged incapacitated person is incapable of exercising. 26 S. 709.2102(1),(9), F.S., a power of attorney is a writing that grants authority to an attorney or other individual to act in the place of the incapacitated adult. 27 S. 744.345, F.S., letters of guardianship issued to a guardian must specify whether the guardianship pertains to the person, or property, or both of the ward. The letters must state whether the guardianship is plenary or limited, and, if limited, the letters must state the powers and duties of the guardian. The letters are also required to state whether or not and to what extent the guardian is authorized to act on behalf of the ward with regard to any advance directive previously executed by the ward. STORAGE NAME: h1275e.HHS PAGE: 6 DATE: 4/11/2023 B. SECTION DIRECTORY: Section 1: Cites the act as the “Protect Our Loved Ones Act.” Section 2: Creates s. 402.88, F.S., relating to Persons with Disabilities Registry. Section 3: Provides an effective date of January 1, 2024. II. FISCAL ANALYSIS & ECONOMIC IMPACT STATEMENT A. FISCAL IMPACT ON STATE GOVERNMENT: 1. Revenues: None. 2. Expenditures: None. B. FISCAL IMPACT ON LOCAL GOVERNMENTS: 1. Revenues: None. 2. Expenditures: None. C. DIRECT ECONOMIC IMPACT ON PRIVATE SECTOR: None. D. FISCAL COMMENTS: None. III. COMMENTS A. CONSTITUTIONAL ISSUES: 1. Applicability of Municipality/County Mandates Provision: Not applicable. This bill does not appear to require counties or municipalities to spend funds or take action requiring the expenditures of funds; reduce the authority that counties or municipalities have to raise revenues in the aggregate; or reduce the percentage of state tax shared with counties or municipalities. 2. Other: None. B. RULE-MAKING AUTHORITY: Rule-making is not necessary to implement the provisions of the bill. STORAGE NAME: h1275e.HHS PAGE: 7 DATE: 4/11/2023 C. DRAFTING ISSUES OR OTHER COMMENTS: The bill is linked to CS/HB 1277, which creates a public record exemption for all records and personal identifying information relating to the enrollment of individuals in a persons with disabilities registry held by a local law enforcement agency. IV. AMENDMENTS/COMMITTEE SUBSTITUTE CHANGES On April 10, 2023, the Health & Human Services Committee adopted an amendment and reported the bill favorably as a committee substitute. The amendment: Required a parent or legal guardian of a child or an incapacitated adult to provide documentation of their legal authority to enroll the child or incapacitated adult in a registry; and Changed all references of a single registry to registries. This analysis is drafted to the committee substitute as passed by the Health & Human Services Committee.