Florida 2025 Regular Session

Florida House Bill H1347 Latest Draft

Bill / Introduced Version Filed 02/27/2025

                               
 
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A bill to be entitled 1 
An act relating to cancer treatment and research; 2 
amending s. 381.915, F.S.; authorizing the Department 3 
of Health to establish the Florida Cancer Research 4 
Network; revising definitions; making grant funds 5 
available; providing requirements and criteria for 6 
grant fund applicants; providing criteria for awarding 7 
grant funds; providing data reporting requirements for 8 
health care providers; requiring certain data for 9 
collection; providing requirements for the collection 10 
of data; creating an online repository for best 11 
practices on the Florida Cancer Connect website; 12 
authorizing the Cancer Connect Collaborative to 13 
oversee the Florida Cancer Research Network; creatin g 14 
subcommittees; requiring the Cancer Connect 15 
Collaborative to annually submit a specified report to 16 
the Governor and the Legislature; creating the Cancer 17 
Connect Collaborative Incubator; providing an 18 
effective date. 19 
 20 
Be It Enacted by the Legislature o f the State of Florida: 21 
 22 
 Section 1.  Section 381.915, Florida Statutes, is amended 23 
to read: 24 
 381.915  Casey DeSantis Cancer Research Program. — 25     
 
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 (1)  This section may be cited as the "Casey DeSantis 26 
Cancer Research Act." 27 
 (2)  The Casey DeSantis Cancer R esearch Program is 28 
established to enhance the quality and competitiveness of cancer 29 
care in this state, further a statewide biomedical research 30 
strategy directly responsive to the health needs of Florida's 31 
citizens, capitalize on the potential educational opportunities 32 
available to its students, and promote the provision of high -33 
quality, innovative health care for persons undergoing cancer 34 
treatment in this state. The department shall: 35 
 (a)  Make payments to cancer centers recognized by the 36 
National Cancer Institute (NCI) at the National Institutes of 37 
Health as NCI-designated cancer centers or NCI -designated 38 
comprehensive cancer centers, and cancer centers working toward 39 
achieving NCI designation. The department shall distribute funds 40 
to participating cancer centers on a quarterly basis during each 41 
fiscal year for which an appropriation is made. 42 
 (a)(b) Make cancer innovation grant funding available 43 
through the Cancer Innovation Fund under subsection (9) to 44 
health care providers and facilities that demonstra te excellence 45 
in patient-centered cancer treatment or research. 46 
 (b)  Establish the Florida Cancer Research Network within 47 
the department, under the direction of the Cancer Connect 48 
Collaborative, to promote the research and development of 49 
innovative cancer treatments through the expansion of grant 50     
 
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opportunities, enhance patient access to emerging cancer 51 
therapies by extending research programs into rural and 52 
underserved areas, track patient data to evaluate outcomes and 53 
develop novel approaches to cancer ca re by increasing the 54 
metrics collected by the Florida Cancer Data System, and 55 
identify and implement best practices to ensure the delivery of 56 
high-quality, effective cancer treatment. 57 
 (3)  On or before September 15 of each year, the department 58 
shall calculate an allocation fraction to be used for 59 
distributing funds to participating cancer centers. On or before 60 
the final business day of each quarter of the state fiscal year, 61 
the department shall distribute to each participating cancer 62 
center one-fourth of that cancer center's annual allocation 63 
calculated under subsection (6). The allocation fraction for 64 
each participating cancer center is based on the cancer center's 65 
tier-designated weight under subsection (4) multiplied by each 66 
of the following allocation f actors based on activities in this 67 
state: number of reportable cases, peer -review costs, and 68 
biomedical education and training. 69 
 (3) As used in this section, the term: 70 
 (a)  "Biomedical education and training" means instruction 71 
that is offered to a studen t who is enrolled in a biomedical 72 
research program at an affiliated university as a medical 73 
student or a student in a master's or doctoral degree program, 74 
or who is a resident physician trainee or postdoctoral trainee 75     
 
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in such program. An affiliated univers ity biomedical research 76 
program must be accredited or approved by a nationally 77 
recognized agency and offered through an institution accredited 78 
by an accrediting agency or association recognized by the 79 
database created and maintained by the United States De partment 80 
of Education. Full-time equivalency for trainees shall be 81 
prorated for training received in oncologic sciences and 82 
oncologic medicine. 83 
 (b)  "Cancer center" means a comprehensive center with at 84 
least one geographic site in the state, a freestandin g center 85 
located in the state, a center situated within an academic 86 
institution, or a Florida -based formal research -based consortium 87 
under centralized leadership that has achieved NCI designation 88 
or is prepared to achieve NCI designation by June 30, 2025, or 89 
has received a Cancer Center of Excellence Award 2024. 90 
 (c)  "Florida-based" means that a health care provider or 91 
facility that is physically located and provides services in 92 
this state, and the cancer center's actual or sought designated 93 
status is or would be recognized by the NCI as primarily located 94 
in Florida and not in another state. 95 
 (4)  The Florida Cancer Research Network shall make grant 96 
funding available to Florida -based health care providers and 97 
entities that conduct or plan to conduct research and 98 
development of innovative cancer treatments for adult or 99 
pediatric patients or prov ide workforce and post -doctoral 100     
 
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fellowship practitioners in the prevention, screening, 101 
diagnosis, or treatment of cancer. 102 
 (a)  Grant funding available through the Florida Cancer 103 
Research Network consists of funds appropriated by the 104 
Legislature through th e Casey DeSantis Cancer Research Program. 105 
 (b)  A licensed or certified health care provider, 106 
facility, or entity shall meet the following criteria to be 107 
eligible for grant funding through the Florida Cancer Research 108 
Network: 109 
 1.  Operate as a Florida -based cancer center; 110 
 2.  Operate a licensed hospital that has a minimum of 30 111 
percent of current cancer patients that reside in rural or 112 
underserved areas; 113 
 3.  Operate a licensed health care clinic or facility that 114 
employs or contracts with at least one lice nsed physician who 115 
specializes in oncology and delivers chemotherapy treatments for 116 
cancer; 117 
 4.  Operate a licensed facility that employs or contracts 118 
with at least one licensed physician who specializes in oncology 119 
and that delivers radiation therapy trea tments for cancer; 120 
 5.  Operate as a rural hospital as defined in s. 121 
395.602(2); 122 
 6.  Operate as a critical access hospital as defined in s. 123 
408.07;  124     
 
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 7.  Operate as a specialty hospital as defined in s. 125 
395.002(28)(a) that serves patients up to 18 years o f age; 126 
 8.  Engage in biomedical research intended to develop 127 
therapies, medical pharmaceuticals, treatment protocols, or 128 
medical procedures intended to cure cancer or improve a 129 
patient's quality of life; or 130 
 9.  Educate or train students, post -doctoral fellows, or 131 
licensed or certified health care practitioners in the 132 
screening, diagnosis, or treatment of cancer. 133 
 (c)  The department shall oversee the distribution of grant 134 
funds awarded to health care providers and entities through the 135 
Florida Cancer Resea rch Network. The department shall distribute 136 
grant funds on a quarterly basis during each fiscal year for 137 
which an appropriation is made. 138 
 (d)  Eligible health care providers or entities must submit 139 
applications to the department by July 1 of each year to be 140 
considered for Florida Cancer Research Network grant fund 141 
awards. 142 
 (e)  The department shall evaluate applications submitted 143 
by health care providers and entities. The department shall 144 
consider each applicant's ability to: 145 
 1.  Achieve objectives and ou tcomes. 146 
 2.  Identify populations, types of cancer, and short and 147 
long-term goals and outcomes. 148     
 
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 3.  Expand access to cancer screenings, diagnostic 149 
services, or treatment to rural or underserved populations. 150 
 4.  Research or implement innovative cancer tre atments or 151 
screenings or diagnostic services, and 152 
 5.  Research innovative medical pharmaceutical treatments 153 
to cure cancer or improve the quality of life of cancer 154 
patients. 155 
 6.  Collaborate with other health care providers or 156 
entities to deliver cancer s creenings, diagnostic services, or 157 
treatments; participate in phase III clinical trials of 158 
experimental cancer treatments; or conduct biomedical research 159 
intended to cure cancer or improve the quality of life of cancer 160 
patients. 161 
 7.  Educate or train stude nts, post-doctoral fellows, or 162 
licensed or certified health care practitioners in the 163 
screening, diagnosis, or treatment of cancer. 164 
 (f)  The department shall deem an application qualified or 165 
unqualified based on its evaluation. 166 
 (g)1.  On or before Octobe r 1 of each year, the department 167 
shall calculate an allocation of grant funds for health care 168 
providers or entities that submit a qualified application. 169 
 2.  The department shall contract with grant awardees to 170 
conduct research to develop innovative cancer treatments, 171 
procedures, therapeutic services, medical pharmaceuticals, or 172 
provide biomedical education and training in the care and 173     
 
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treatment of cancer. 174 
 (5)(a)  The department shall expand the Florida Cancer Data 175 
System to include data on patient outcome s and quality of care 176 
submitted by licensed health care providers that diagnose, 177 
treat, and screen for cancer. 178 
 (b)  Licensed health care providers that diagnose, treat, 179 
and screen for cancer must report to the Florida Cancer Data 180 
System data that includes all of the following: 181 
 1.  Patient-reported outcome measures that collect patient 182 
reports on symptoms, quality of life, quality of cancer care, 183 
and cancer treatment outcomes. 184 
 2.  Quality of care measures that identify and report all 185 
of the following: 186 
 a. Cancer screening rates. 187 
 b.  Timeliness of diagnosis and treatment. 188 
 c.  Clinical guidelines adherence. 189 
 d.  Survival rates. 190 
 e.  Tumor response rates. 191 
 f.  Progression-free survival rates. 192 
 g.  Disease-free survival rates. 193 
 h.  Treatment complication ra tes. 194 
 i.  Percentage of cancer patients receiving palliative or 195 
hospice care, and coordination of care. 196 
 j.  Provider volume and expertise. 197 
 k.  Adverse event monitoring. 198     
 
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 l.  Treatment compliance and persistence. 199 
 m.  Biomarker response. 200 
 n.  Long-term outcomes and survivorship. 201 
 (6)  The department shall create an online repository on 202 
the Florida Cancer Connect website of best practices for cancer 203 
treatment, screening, diagnosis, prevention, and survivorship. 204 
The repository shall include best practices fo r all of the 205 
following: 206 
 (a)  Screening and risk reduction of cancer. 207 
 (b)  Clinical management of cancer. 208 
 (c)  Phases I-IV clinical trials for cancer treatments. 209 
 (d)  Care plans for patients receiving post -cancer 210 
treatment. 211 
 (d)  "Peer-review costs" means the total annual direct 212 
costs for peer-reviewed cancer-related research projects, 213 
consistent with reporting guidelines provided by the NCI, for 214 
the most recent annual reporting period available. 215 
 (e)  "Reportable cases" means cases of cancer in which a 216 
cancer center is involved in the diagnosis, evaluation of the 217 
diagnosis, evaluation of the extent of cancer spread at the time 218 
of diagnosis, or administration of all or any part of the first 219 
course of therapy for the most recent annual reporting period 220 
available. Cases relating to patients enrolled in institutional 221 
or investigator-initiated interventional clinical trials shall 222 
be weighted at 1.2 relative to other cases weighted at 1.0. 223     
 
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Determination of institutional or investigator -initiated 224 
interventional clinical trials must be consistent with reporting 225 
guidelines provided by the NCI. 226 
 (4)  Tier designations and corresponding weights within the 227 
Casey DeSantis Cancer Research Program are as follows: 228 
 (a)  Tier 1: NCI-designated comprehensive cancer centers, 229 
which shall be weighted at 1.5. 230 
 (b)  Tier 2: NCI-designated cancer centers, which shall be 231 
weighted at 1.25. 232 
 (c)  Tier 3: Cancer centers seeking designation as either a 233 
NCI-designated cancer center or NCI -designated comprehensive 234 
cancer center, which sh all be weighted at 1.0. 235 
 1.  A cancer center shall meet the following minimum 236 
criteria to be considered eligible for Tier 3 designation in any 237 
given fiscal year: 238 
 a.  Conducting cancer -related basic scientific research and 239 
cancer-related population scienti fic research; 240 
 b.  Offering and providing the full range of diagnostic and 241 
treatment services on site, as determined by the Commission on 242 
Cancer of the American College of Surgeons; 243 
 c.  Hosting or conducting cancer -related interventional 244 
clinical trials that are registered with the NCI's Clinical 245 
Trials Reporting Program; 246 
 d.  Offering degree-granting programs or affiliating with 247 
universities through degree -granting programs accredited or 248     
 
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approved by a nationally recognized agency and offered through 249 
the center or through the center in conjunction with another 250 
institution accredited by an accrediting agency or association 251 
recognized by the database created and maintained by the United 252 
States Department of Education; 253 
 e.  Providing training to clinical trai nees, medical 254 
trainees accredited by the Accreditation Council for Graduate 255 
Medical Education or the American Osteopathic Association, and 256 
postdoctoral fellows recently awarded a doctorate degree; and 257 
 f.  Having more than $5 million in annual direct costs 258 
associated with their total NCI peer -reviewed grant funding. 259 
 2.  The General Appropriations Act or accompanying 260 
legislation may limit the number of cancer centers which shall 261 
receive Tier 3 designations or provide additional criteria for 262 
such designation. 263 
 3.  A cancer center's participation in Tier 3 may not 264 
extend beyond June 30, 2024. 265 
 4.  A cancer center that qualifies as a designated Tier 3 266 
center under the criteria provided in subparagraph 1. by July 1, 267 
2014, is authorized to pursue NCI designation as a cancer center 268 
or a comprehensive cancer center until June 30, 2024. 269 
 (5)  The department shall use the following formula to 270 
calculate a participating cancer center's allocation fraction: 271 
CAF = [0.4 x (CRC÷TCRC)]+[0.3 x (CPC÷TCPC)]+[0.3 x (CBE÷TCBE)] 272 
 Where: 273     
 
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 CAF = A cancer center's allocation fraction. 274 
 CRC = A cancer center's tier -weighted reportable cases. 275 
 TCRC = The total tier -weighted reportable cases for all 276 
cancer centers. 277 
 CPC = A cancer center's tier -weighted peer-review costs. 278 
 TCPC = The total tier-weighted peer-review costs for all 279 
cancer centers. 280 
 CBE = A cancer center's tier -weighted biomedical education 281 
and training. 282 
 TCBE = The total tier -weighted biomedical education and 283 
training for all cancer centers. 284 
 (6)  A cancer center's annual allocation shall be 285 
calculated by multiplying the funds appropriated for the Casey 286 
DeSantis Cancer Research Program in the General Appropriations 287 
Act by that cancer center's allocation fraction. If the 288 
calculation results in an annual allocation that is le ss than 289 
$16 million, that cancer center's annual allocation shall be 290 
increased to a sum equaling $16 million, with the additional 291 
funds being provided proportionally from the annual allocations 292 
calculated for the other participating cancer centers. 293 
 (7)  The amount of $37,771,257 from the total funds 294 
appropriated in the General Appropriations Act for the Casey 295 
DeSantis Cancer Research Program shall be excluded from the 296 
annual allocation fraction calculation under subsection (5). The 297 
excluded amount shall be distributed to participating cancer 298     
 
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centers in the same proportion as determined by the allocation 299 
fraction calculation. 300 
 (7)(8) The Cancer Connect Collaborative, a council as 301 
defined in s. 20.03, is created within the department to advise 302 
the department and the Legislature on developing a holistic 303 
approach to the state's efforts to fund cancer research, cancer 304 
facilities, and treatments for cancer patients. The 305 
collaborative may make recommendations on proposed legislation, 306 
proposed rules, best practices , data collection and reporting, 307 
issuance of grant funds, and other proposals for state policy 308 
relating to cancer research or treatment. 309 
 (a)  The Surgeon General shall serve as an ex officio, 310 
nonvoting member and shall serve as the chair. 311 
 (b)  The collaborative shall be composed of the following 312 
voting members, to be appointed by September 1, 2024: 313 
 1.  Two members appointed by the Governor, one member 314 
appointed by the President of the Senate, and one member 315 
appointed by the Speaker of the House of Repres entatives, based 316 
on the criteria of this subparagraph. The appointing officers 317 
shall make their appointments prioritizing members who have the 318 
following experience or expertise: 319 
 a.  The practice of a health care profession specializing 320 
in oncology clinical care or research; 321 
 b.  The development of preventive and therapeutic 322 
treatments to control cancer; 323     
 
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 c.  The development of innovative research into the causes 324 
of cancer, the development of effective treatments for persons 325 
with cancer, or cures for cancer ; or 326 
 d.  Management-level experience with a cancer center 327 
licensed under chapter 395. 328 
 2.  One member who is a resident of this state who can 329 
represent the interests of cancer patients in this state, 330 
appointed by the Governor. 331 
 (c)  The terms of appointees under paragraph (b) shall be 332 
for 2 years unless otherwise specified. However, to achieve 333 
staggered terms, the initial appointees under that paragraph 334 
shall serve 3 years for their first term. These appointees may 335 
be reappointed for no more than four consecutive terms. 336 
 (d)  Any vacancy occurring on the collaborative must be 337 
filled in the same manner as the original appointment. Any 338 
member who is appointed to fill a vacancy occurring because of 339 
death, resignation, or ineligibility for membership s hall serve 340 
only for the unexpired term of the member's predecessor. 341 
 (e)  Members whose terms have expired may continue to serve 342 
until replaced or reappointed, but for no more than 6 months 343 
after the expiration of their terms. 344 
 (f)  Members shall serve wit hout compensation but are 345 
entitled to reimbursement for per diem and travel expenses 346 
pursuant to s. 112.061. 347 
 (g)  The collaborative shall meet as necessary, but at 348     
 
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least quarterly, at the call of the chair. A majority of the 349 
members of the collaborative c onstitutes a quorum, and a meeting 350 
may not be held with less than a quorum present. In order to 351 
establish a quorum, the collaborative may conduct its meetings 352 
through teleconference or other electronic means. The 353 
affirmative vote of a majority of the membe rs of the 354 
collaborative present is necessary for any official action by 355 
the collaborative. 356 
 (h)  The collaborative shall oversee the administration and 357 
functions of the Florida Cancer Research Network. 358 
 (i)1.  The following subcommittees are created to rev iew 359 
and evaluate performance of and to advise and support the 360 
collaborative on the oversight of the Florida Cancer Research 361 
Network. Each subcommittee shall have eight members appointed by 362 
the State Surgeon General and be chaired by a current member of 363 
the collaborative: 364 
 a.  Research Funding Subcommittee. 365 
 b.  Recruitment Funding Subcommittee. 366 
 c.  Infrastructure and Technology Funding Subcommittee. 367 
 d.  Program Development Funding Subcommittee. 368 
 2.  Appointees shall serve for a 2 -year term. However, to 369 
achieve staggered terms, the initial appointees shall serve for 370 
3 years for their first term. Such appointees may be reappointed 371 
for no more than 4 consecutive terms. 372     
 
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 3.  Members shall serve without compensation but are 373 
entitled to reimbursement for per die m and travel expenses 374 
pursuant to s. 112.061. 375 
 (j)  The collaborative shall prepare an annual report due 376 
to the Governor, President of the Senate, and Speaker of the 377 
House of Representatives by December 1, 2025, and each 378 
succeeding year that identifies and evaluates performance and 379 
effect of the Florida Cancer Research Network on cancer 380 
treatment, screening, diagnosis, prevention, practitioner and 381 
workforce education, and survivorship. The report shall include 382 
the following: 383 
 1.  A needs assessment that ana lyzes current practices, 384 
patient outcomes, and gaps in care throughout the state. 385 
 2.  A review of current evidence -based clinical guidelines 386 
released by reputable clinical associations. 387 
 3.  A literature review of cancer treatment studies 388 
published during the previous calendar years. 389 
 4.  An assessment of current and innovative cancer 390 
screening and diagnostic services. 391 
 5.  Amount of grant funds awarded to each awardee. 392 
 6.  Descriptions of each awardee's research or project that 393 
includes the following: 394 
 a.  Goals or projected outcomes 395 
 b.  Population to be served 396 
 c.  Research methods or project implementation plan 397     
 
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 7.  An assessment of awardees of grant funds that evaluates 398 
performance toward achieving objectives specified in their grant 399 
funds applications.  400 
 8.  Case studies of Florida patients who have received 401 
cancer treatment and patients who are receiving post -cancer 402 
treatment.  403 
 9.  Recommendations for best practices to be implemented by 404 
health care providers in Florida that diagnose, treat, and 405 
screen for cancer.  406 
 (k)  The committee shall meet quarterly or at the call of 407 
the chair. A majority of the members of the committee 408 
constitutes a quorum, and a meeting may not be held with less 409 
than a quorum present. In order to establish a quorum, the 410 
committee may conduct its meetings through teleconference or 411 
other electronic means. The affirmative vote of a majority of 412 
the members of the committee present is necessary for any 413 
official action by the committee. 414 
 (h)  The collaborative shall develop a long -range 415 
comprehensive plan for the Casey DeSantis Cancer Research 416 
Program. In the development of the plan, the collaborative must 417 
solicit input from cancer centers, research institutions, 418 
biomedical education institutions, hospitals, and medical 419 
providers. The collaborative shall submit the plan to the 420 
Governor, the President of the Senate, and the Speaker of the 421 
House of Representatives no later than December 1, 2024. The 422     
 
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plan must include, but need not be limited to, all of the 423 
following components: 424 
 1.  Expansion of grant fund opportunities to include a 425 
broader pool of Florida -based cancer centers, research 426 
institutions, biomedical education institutions, hospitals, and 427 
medical providers to receive funding through the Cancer 428 
Innovation Fund. 429 
 2.  An evaluation to determine metrics that focus on 430 
patient outcomes, quality of care, and efficacy of treatment. 431 
 3.  A compilation of best practices relating to cancer 432 
research or treatment. 433 
 (l)(i) The department shall provide reasonable and 434 
necessary support sta ff and materials to assist the 435 
collaborative in the performance of its duties. 436 
 (m)1.(j)1. As used in this paragraph, the term 437 
"proprietary business information" means information that: 438 
 a.  Is owned or controlled by the applicant; 439 
 b.  Is intended to be private and is treated by the 440 
applicant as private; 441 
 c.  Has not been disclosed except as required by law or a 442 
private agreement that provides that the information will not be 443 
released to the public; 444 
 d.  Is not readily available or ascertainable through 445 
proper means from another source in the same configuration as 446 
received by the collaborative; 447     
 
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 e.  Affects competitive interests, and the disclosure of 448 
such information would impair the competitive advantage of the 449 
applicant; and 450 
 f.  Is explicitly identifie d or clearly marked as 451 
proprietary business information. 452 
 2.  Proprietary business information held by the department 453 
or the collaborative is confidential and exempt from s. 454 
119.07(1) and s. 24(a), Art. I of the State Constitution. This 455 
exemption does not apply to information contained in final 456 
recommendations of the collaborative. 457 
 3.  Portions of a meeting of the collaborative during which 458 
confidential and exempt proprietary business information is 459 
discussed are exempt from s. 286.011 and s. 24(b), Art. I of the 460 
State Constitution. The closed portion of a meeting must be 461 
recorded, and the recording must be maintained by the 462 
collaborative. The recording is confidential and exempt from s. 463 
119.07(1) and s. 24(a), Art. I of the State Constitution. 464 
 4.a.  Proprietary business information made confidential 465 
and exempt under subparagraph 2. may be disclosed with the 466 
express written consent of the applicant to whom the information 467 
pertains, or the applicant's legally authorized representative, 468 
or pursuant to a court order upon a showing of good cause. 469 
 b.  Recordings of those portions of exempt meetings which 470 
are made confidential and exempt under subparagraph 3. may be 471 
disclosed to the department or pursuant to a court order upon a 472     
 
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showing of good cause. 473 
 5.  This paragraph is subject to the Open Government Sunset 474 
Review Act in accordance with s. 119.15 and shall stand repealed 475 
on October 2, 2029, unless reviewed and saved from repeal 476 
through reenactment by the Legislature. 477 
 (8)(9) The collaborative shall advise the department on 478 
the awarding of grants issued through the Cancer Innovation 479 
Fund. During any fiscal year for which funds are appropriated to 480 
the fund, the collaborative shall review all submitted grant 481 
applications and make recommendations to the department for 482 
awarding grants to support innovative cancer research and 483 
treatment models, including emerging research and treatment 484 
trends and promising treatments that may serve as catalysts for 485 
further research and treatments. The department shall make the 486 
final grant allocation awards. The collaborative shall give 487 
priority to applications seeking to expand the reach of 488 
innovative cancer treatment models into underserved areas of 489 
this state. 490 
 (9)(10) Beginning July 1, 2025, and each year thereafter, 491 
the department, in conjunction with participating cancer 492 
centers, shall submit a report to the Cancer Control and 493 
Research Advisory Council and the collaborative on specific 494 
metrics relating to cancer mortality and external funding for 495 
cancer-related research in this s tate. If a cancer center does 496 
not endorse this report or produce an equivalent independent 497     
 
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report, the cancer center is ineligible to receive program 498 
funding for 1 year. The department must submit this annual 499 
report, and any equivalent independent reports, to the Governor, 500 
the President of the Senate, and the Speaker of the House of 501 
Representatives no later than September 15 of each year the 502 
report or reports are submitted by the department. The report 503 
must include: 504 
 (a)  An analysis of trending age -adjusted cancer mortality 505 
rates in the state, which must include, at a minimum, overall 506 
age-adjusted mortality rates for cancer statewide and age -507 
adjusted mortality rates by age group, geographic region, and 508 
type of cancer, which must include, at a minimum: 509 
 1.  Lung cancer. 510 
 2.  Pancreatic cancer. 511 
 3.  Sarcoma. 512 
 4.  Melanoma. 513 
 5.  Leukemia and myelodysplastic syndromes. 514 
 6.  Brain cancer. 515 
 7.  Breast cancer. 516 
 (b)  Identification of trends in overall federal funding, 517 
broken down by institutional source, for cancer -related research 518 
in the state. 519 
 (c)  A list and narrative description of interinstitutional 520 
collaboration among participating cancer centers, which may 521 
include grants received by participating cancer centers in 522     
 
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collaboration, a comparison of such grants i n proportion to the 523 
grant totals for each cancer center, a catalog of retreats and 524 
progress seed grants using state funds, and targets for 525 
collaboration in the future and reports on progress regarding 526 
such targets where appropriate. 527 
 (10)(11) Beginning July 1, 2024, each allocation agreement 528 
issued by the department relating to cancer center payments 529 
under subsection (2) must include all of the following: 530 
 (a)  A line-item budget narrative documenting the annual 531 
allocation of funds to a cancer center. 532 
 (b) A cap on the annual award of 15 percent for 533 
administrative expenses. 534 
 (c)  A requirement for the cancer center to submit 535 
quarterly reports of all expenditures made by the cancer center 536 
with funds received through the Casey DeSantis Cancer Research 537 
Program. 538 
 (d)  A provision to allow the department and other state 539 
auditing bodies to audit all financial records, supporting 540 
documents, statistical records, and any other documents 541 
pertinent to the allocation agreement. 542 
 (e)  A provision requiring the annual re porting of outcome 543 
data and protocols used in achieving those outcomes. 544 
 (11)  The Legislature recognizes that nationally, targeted 545 
areas of cancer research require increased resources and that 546 
Florida should become a leader in promoting research 547     
 
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opportunities for these targeted areas. Floridians should not 548 
have to leave the state to receive the most advanced cancer care 549 
and treatment. To meet this need, the Legislature is authorizing 550 
the creation of the Cancer Connect Collaborative Research 551 
Incubator to identify and provide funding for a targeted area of 552 
cancer research for a 5 -year period. 553 
 (12)  The collaborative shall evaluate the present state of 554 
cancer research in Florida and the United States and submit a 555 
report to the Governor, President of the Senat e, and Speaker of 556 
the House of Representatives by October 1, 2025, that recommends 557 
a targeted area of research for 5 years, beginning January 1, 558 
2026, and ending December 31, 2030, for the awarding of funds. 559 
 (13)  The department shall establish criteria a nd allocate 560 
funds beginning January 1, 2026, and each year thereafter until 561 
2030, for conducting research on the targeted area of cancer 562 
recommended by the report as described in (12). 563 
 (14)  The collaborative must only allocate funds for 564 
research in the targeted area of cancer recommended by the 565 
report as described in (12). 566 
 (15)  Beginning July 1, 2026, each allocation agreement 567 
issued by the department relating to the Cancer Connect 568 
Collaborative Research Incubator payments under subsection (11) 569 
must include all of the following: 570 
 (a)  A line-item budget narrative documenting the annual 571 
allocation of funds to a recipient. 572     
 
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 (b)  A cap on the annual award of 15 percent for 573 
administrative expenses. 574 
 (c)  A requirement for the recipient to submit quarterly 575 
reports of all expenditures made by the recipient with funds 576 
received through the Cancer Connect Collaborative Research 577 
Incubator. 578 
 (d)  A provision to allow the department and other state 579 
auditing bodies to audit all financial records, supporting 580 
documents, statistical records, and any other documents 581 
pertinent to the allocation agreement. 582 
 (e)  A provision requiring the annual reporting of outcome 583 
data and protocols used in achieving those outcomes. 584 
 (16)(a)  Beginning July 1, 2027, and each year thereafter 585 
until 2031, the collaborative shall submit a report to the 586 
Governor, President of the Senate, and Speaker of the House of 587 
Representatives that evaluates research conducted through the 588 
Cancer Connect Collaborative Research Incubator and presents 589 
statuses and findings. 590 
 (b)  The final report submitted on July 1, 2031, must 591 
include all of the following: 592 
 1.  A summary of all results from the research completed or 593 
the status of research in progress. 594 
 2.  An evaluation of all research conducted under the 595 
Cancer Connect Collaborative Research Incubator, beginning 596 
January 1, 2026. 597     
 
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 3.  Recommendations for future areas of cancer research. 598 
 (17)(12) This section is subject to annual appropriation 599 
by the Legislature. 600 
 (18)(13) The department may adopt rules to admi nister this 601 
section. 602 
 Section 2. This act shall take effect July 1, 2025. 603