FL
Florida House Bill H1545

Florida 2025 Regular Session

Florida House Bill H1545 Compare Versions

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1010 F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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1414 A bill to be entitled 1
1515 An act relating to Parkinson's disease; creating s. 2
1616 1004.4352, F.S.; establishing the Consortium for 3
1717 Parkinson's Disease Research within the University of 4
1818 South Florida; establishing the Parkinson's Disease 5
1919 Research Board; requiring the board to direct the 6
2020 operations of the consortium and to annually adopt a 7
2121 plan for Parkinson's disease research; providing 8
2222 duties of the consortium director; providing research 9
2323 requirements for the plan; requiring the board to 10
2424 issue an annual report to the Governor and Legislature 11
25-by a specified date; providing that specified 12
26-provisions will be implemented subject to available 13
27-funding in the General Appropriations Act; providing 14
28-an effective date. 15
25+by a specified date; providing appropriations; 12
26+providing an effective date. 13
27+ 14
28+Be It Enacted by the Legislature of the State of Florida: 15
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30-Be It Enacted by the Legislature of the State of Florida: 17
31- 18
32- Section 1. Section 1004.4352, Florida Statutes, is created 19
33-to read: 20
34- 1004.4352 Parkinson's disease research. — 21
35- (1) SHORT TITLE.—This section may be cited as the 22
36-"Parkinson's Disease Research Act." 23
37- (2) LEGISLATIVE FINDINGS. —The Legislature finds that: 24
38- (a) Parkinson's disease is a progressive neurological 25
30+ Section 1. Section 1004.4352, Florida Statutes, is created 17
31+to read: 18
32+ 1004.4352 Parkinson's disease research. — 19
33+ (1) SHORT TITLE.—This section may be cited as the 20
34+"Parkinson's Disease Research Act." 21
35+ (2) LEGISLATIVE FINDINGS. —The Legislature finds that: 22
36+ (a) Parkinson's disease is a progressive neurological 23
37+disorder affecting approximately one million Americans, with an 24
38+estimated 90,000 new diagnoses each year. 25
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4747 F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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51-disorder affecting approximately one million Americans, with an 26
52-estimated 90,000 new diagnoses each year. 27
53- (b) Currently, there is no cure for Parkinson's disease 28
54-and innovative research is essential to advance therapies, 29
55-improve patient outcomes, and alleviate the burden of the 30
56-disease. 31
57- (3) DEFINITIONS.—As used in this section, the term: 32
58- (a) "Board" means the Parkin son's Disease Research Board. 33
59- (b) "Consortium" means the Consortium for Parkinson's 34
60-Disease Research. 35
61- (4) CONSORTIUM FOR PARKINSON'S DISEASE RESEARCH. — 36
62- (a) There is established within the University of South 37
63-Florida the Consortium for Parkinson's Dis ease Research which 38
64-shall consist of public and private universities and academic 39
65-medical centers. The purpose of the consortium is to conduct 40
66-rigorous scientific research and disseminate such research. 41
67- (b) The Parkinson's Disease Research Board is estab lished 42
68-to direct the operations of the consortium. The board shall be 43
69-composed of members representing each participating university 44
70-or academic medical center appointed by the president or chief 45
71-executive officer of each participating university or academ ic 46
72-medical center. Board members must have experience in a variety 47
73-of scientific fields, including, but not limited to, neurology, 48
74-psychology, nutrition, and genetics. Members shall be appointed 49
75-to 4-year terms and may be reappointed to serve additional 50
51+ (b) Currently, there is no cure for Parkinson's disease 26
52+and innovative research is essential to advance therapies, 27
53+improve patient outcomes, and alleviate the burden of the 28
54+disease. 29
55+ (3) DEFINITIONS.—As used in this section, the term: 30
56+ (a) "Board" means the Parkinson's Disease Research Board. 31
57+ (b) "Consortium" means the Consortium for Parkinson's 32
58+Disease Research. 33
59+ (4) CONSORTIUM FOR PARKINSON'S DISEASE RESEARCH. — 34
60+ (a) There is established within the University of South 35
61+Florida the Consortium for Parkinson's Disease Research which 36
62+shall consist of public and private universities. The purpose of 37
63+the consortium is to conduct rigorous scientific research and 38
64+disseminate such research. 39
65+ (b) The Parkinson's Disease Research Board is established 40
66+to direct the operations of the consortium. The board shall be 41
67+composed of members representing each participating u niversity 42
68+and appointed by the president of each participating university. 43
69+Board members must have experience in a variety of scientific 44
70+fields, including, but not limited to, neurology, psychology, 45
71+nutrition, and genetics. Members shall be appointed to 4 -year 46
72+terms and may be reappointed to serve additional terms. The 47
73+chair shall be elected by the board from among its members to 48
74+serve a 2-year term. The board shall meet at least semiannually 49
75+at the call of the chair or, in his or her absence or 50
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8484 F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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88-terms. The chair shall be elected by the board from among its 51
89-members to serve a 2 -year term. The board shall meet at least 52
90-semiannually at the call of the chair or, in his or her absence 53
91-or incapacity, the vice chair. Four members constitute a quorum. 54
92-A majority vote of the members present is required for all 55
93-actions of the board. The board may prescribe, amend, and repeal 56
94-a charter governing the manner in which it conducts its 57
95-business. Board members shall serve without compensation, but 58
96-are entitled to receive reimbursement for travel expenses by the 59
97-consortium or the organization he or she represents in 60
98-accordance with s. 112.061. 61
99- (c) The consortium shall be administered by a director, 62
100-who shall be appointed by and serve at the pleasure of the 63
101-board. The director shall, subject to the approval of the board: 64
102- 1. Propose a budget for the consortium. 65
103- 2. Foster the collaboration of scientists, researchers, 66
104-and other appropriate personnel in accordance with the 67
105-consortium's charter. 68
106- 3. Engage individuals in public and private university and 69
107-academic medical center programs relevant to the consortium's 70
108-work to participate in the consortium. 71
109- 4. Identify and prioritize the research to be conducted by 72
110-the consortium. 73
111- 5. Prepare a plan for Parkinson's disea se research for 74
112-submission to the board. 75
88+incapacity, the vice chair. Four members constitute a quorum. A 51
89+majority vote of the members present is required for all actions 52
90+of the board. The board may prescribe, amend, and repeal a 53
91+charter governing the manner in which it conducts its business. 54
92+Board members shall serve without compensation, but are entitled 55
93+to receive reimbursement for travel expenses by the consortium 56
94+or the organization he or she represents in accordance with s. 57
95+112.061. 58
96+ (c) The consortium shall be administered by a director, 59
97+who shall be appointed by and serve at the pleasure of the 60
98+board. The director shall, subject to the approval of the board: 61
99+ 1. Propose a budget for the consortium. 62
100+ 2. Foster the collaboration of scientists, researchers, 63
101+and other appropriate personnel in accordance with the 64
102+consortium's charter. 65
103+ 3. Engage individuals in public and private university 66
104+programs relevant to the consortium's work to participate in the 67
105+consortium. 68
106+ 4. Identify and prioritize the research to be conducted by 69
107+the consortium. 70
108+ 5. Prepare a plan for Parkinson's disease research for 71
109+submission to the board. 72
110+ 6. Apply for grants to obtain funding for research 73
111+conducted by the consortium. 74
112+ 7. Perform other duties as determined by the board. 75
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121121 F L O R I D A H O U S E O F R E P R E S E N T A T I V E S
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125- 6. Apply for grants to obtain funding for research 76
126-conducted by the consortium. 77
127- 7. Perform other duties as determined by the board. 78
128- (d) The board shall annually adopt a plan for Parkinson's 79
129-disease research. The plan must organize a program of research 80
130-that contributes to the body of scientific knowledge on the 81
131-causes, mechanisms, and potential treatments for Parkinson's 82
132-disease and the prevalence of Parkinson's disease in first 83
133-responders. The board must award funds to members of the 84
134-consortium to perform research consistent with the plan. 85
135- (e) By October 15 of each year, the board shall issue a 86
136-report to the Governor, the President of the Senate, and the 87
137-Speaker of the House of Representatives on research pro jects, 88
138-research findings, community outreach initiatives, and future 89
139-plans for the consortium. 90
140- (f) The provisions of this section shall be implemented to 91
141-the extent of available appropriations contained in the annual 92
142-General Appropriations Act for such p urpose. 93
143- Section 2. This act shall take effect July 1, 2025. 94
125+ (d) The board shall annually adopt a plan for Par kinson's 76
126+disease research. The plan must organize a program of research 77
127+that contributes to the body of scientific knowledge on the 78
128+causes, mechanisms, and potential treatments for Parkinson's 79
129+disease and the prevalence of Parkinson's disease in first 80
130+responders. The board must award funds to members of the 81
131+consortium to perform research consistent with the plan. 82
132+ (e) By October 15 of each year, the board shall issue a 83
133+report to the Governor, the President of the Senate, and the 84
134+Speaker of the House of Rep resentatives on research projects, 85
135+research findings, community outreach initiatives, and future 86
136+plans for the consortium. 87
137+ Section 2. (1) For the 2025-2026 fiscal year, the sum of 88
138+$8 million in recurring funds is appropriated from the General 89
139+Revenue Fund to the University of South Florida for Parkinson's 90
140+disease research including, but not limited to, identifying the 91
141+genetic origin of the disease and developing therapeutic 92
142+interventions to slow or stop the progression of the disease. 93
143+ (2) For the 2025-2026 fiscal year, the sum of $4 million 94
144+in recurring funds is appropriated from the General Revenue Fund 95
145+to the University of South Florida for the Consortium for 96
146+Parkinson's Disease Research. 97
147+ Section 3. This act shall take effect July 1, 2025. 98