Illinois 2023-2024 Regular Session

Illinois House Bill HR0329 Compare Versions

Only one version of the bill is available at this time.

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3	3	1 HOUSE RESOLUTION
4	4	2 WHEREAS, The month of September each year is recognized as
5	5	3 National Scarring Alopecia Awareness Month to increase
6	6	4 knowledge and awareness of scarring alopecia; and
7	7	5 WHEREAS, Scarring (cicatricial) alopecia (hair loss) is
8	8	6 still not well-known among patients and the public; many
9	9	7 patients and the public do not know the difference between
10	10	8 non-scarring alopecia and scarring alopecia; scarring alopecia
11	11	9 encompasses a group of hair loss disorders that causes
12	12	10 inflammation, and the hair follicles are irreversibly
13	13	11 destroyed (permanently damaged) and replaced by fibrous
14	14	12 tissue; there is no way to regrow the hair that is already lost
15	15	13 and permanently damaged; and
16	16	14 WHEREAS, Within the alopecia population, the prevalence of
17	17	15 scarring alopecia is believed to be approximately 7%, but not
18	18	16 enough epidemiological studies have been performed to
19	19	17 determine the incidence of scarring (cicatricial) alopecias;
20	20	18 clinically, it is defined as one or more patches of permanent
21	21	19 alopecia on the scalp; these may remain discrete or coalesce
22	22	20 to produce a near total alopecia; within the patches, the skin
23	23	21 is bald, smooth, and shiny, and pores are absent because of a
24	24	22 complete loss of follicular openings; and
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33	33	1 WHEREAS, Scarring hair loss is a traumatizing experience
34	34	2 and may negatively impact a hair loss patient's quality of
35	35	3 life (QOL); permanent hair loss can be disfiguring and damage
36	36	4 an affected individual's self-esteem; currently, there are not
37	37	5 any approved Federal Drug Administration (FDA) drugs for
38	38	6 scarring (cicatricial) alopecia patients, which often leaves
39	39	7 patients feeling defeated and hopeless; and
40	40	8 WHEREAS, Bringing awareness to this disease can help those
41	41	9 experiencing scarring hair loss remain confident and positive,
42	42	10 despite their condition; hair loss often carries a stigma that
43	43	11 can only be dispelled with education and knowledge, and for
44	44	12 many with this disease, the emotional aspect of living with
45	45	13 hair loss can be the greatest challenge; and
46	46	14 WHEREAS, National Scarring Alopecia Awareness Month serves
47	47	15 as a time to focus on educating hair stylists, medical
48	48	16 professionals, undiagnosed patients, and the general
49	49	17 population about this traumatic, scarring, and often painful
50	50	18 disease; and
51	51	19 WHEREAS, National Scarring Alopecia Awareness Month serves
52	52	20 as a spark to increase advocacy efforts for scarring alopecia
53	53	21 patients and to underscore the importance of understanding
54	54	22 this rare disease; therefore, be it
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65	65	1 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
66	66	2 HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
67	67	3 we recognize the month of September 2023 as being National
68	68	4 Scarring Alopecia Awareness Month; and be it further
69	69	5 RESOLVED, That a suitable copy of this resolution be
70	70	6 presented to the Scarring Alopecia Foundation as a symbol of
71	71	7 our respect and esteem.
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