| 1 | 1 | | HR0636LRB103 39786 LAW 70352 r HR0636 LRB103 39786 LAW 70352 r |
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| 2 | 2 | | HR0636 LRB103 39786 LAW 70352 r |
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| 3 | 3 | | 1 HOUSE RESOLUTION |
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| 4 | 4 | | 2 WHEREAS, Duchenne muscular dystrophy affects approximately |
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| 5 | 5 | | 3 one out of every 5,000 live male births; and |
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| 6 | 6 | | 4 WHEREAS, Globally, 20,000 children are diagnosed with |
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| 7 | 7 | | 5 Duchenne muscular dystrophy each year; and |
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| 8 | 8 | | 6 WHEREAS, There are an estimated 15,000 people in the U.S. |
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| 9 | 9 | | 7 living with Duchenne muscular dystrophy; and |
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| 10 | 10 | | 8 WHEREAS, With increased funding for research and rapidly |
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| 11 | 11 | | 9 improving treatments, people with Duchenne muscular dystrophy |
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| 12 | 12 | | 10 have more hope than before; however, there is currently no |
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| 13 | 13 | | 11 cure for Duchenne muscular dystrophy; and |
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| 14 | 14 | | 12 WHEREAS, Earlier diagnosis of Duchenne muscular dystrophy |
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| 15 | 15 | | 13 in children could improve health outcomes for those affected; |
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| 16 | 16 | | 14 and |
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| 17 | 17 | | 15 WHEREAS, Symptoms of Duchenne muscular dystrophy include |
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| 18 | 18 | | 16 progressive loss of strength and function in the hips, thighs, |
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| 19 | 19 | | 17 shoulders, pelvis, arms, lower legs, and trunk; later in life, |
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| 20 | 20 | | 18 strength in the muscles of the heart and lungs, heart |
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| 21 | 21 | | 19 function, and breathing are also affected; and |
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| 25 | 25 | | HR0636 LRB103 39786 LAW 70352 r |
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| 28 | 28 | | HR0636- 2 -LRB103 39786 LAW 70352 r HR0636 - 2 - LRB103 39786 LAW 70352 r |
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| 29 | 29 | | HR0636 - 2 - LRB103 39786 LAW 70352 r |
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| 30 | 30 | | 1 WHEREAS, Newborn screening will improve health outcomes |
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| 31 | 31 | | 2 for children with Duchenne muscular dystrophy; therefore, be |
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| 32 | 32 | | 3 it |
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| 33 | 33 | | 4 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE |
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| 34 | 34 | | 5 HUNDRED THIRD GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that |
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| 35 | 35 | | 6 we declare September 7, 2024 as Duchenne Muscular Dystrophy |
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| 36 | 36 | | 7 Awareness Day in the State of Illinois; and be it further |
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| 42 | 42 | | HR0636 - 2 - LRB103 39786 LAW 70352 r |
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