The Resolution highlights the urgency of the situation faced by ALS patients, noting that someone is diagnosed with the disease every 90 minutes and that the average life expectancy post-diagnosis is only two to five years. The initiative also acknowledges the importance of public awareness in recognizing the challenges associated with ALS and the necessity for access to new therapies and technologies that can improve the quality of life for these individuals.
HR0772 is a House Resolution that aims to declare May 2024 as ALS Awareness Month in the State of Illinois. This initiative is designed to raise public awareness about amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease, which significantly impacts both patients and their families. The Resolution outlines the nature of the disease, which is a progressive and fatal neurodegenerative condition affecting muscle control, ultimately impacting the ability to perform basic functions such as walking and breathing.
Overall, HR0772 serves as a proactive step for the State of Illinois to acknowledge the fight against ALS, to encourage community involvement, and to ensure that the dialogue around ALS leads to increased funding and awareness. By formally recognizing ALS Awareness Month, the state aims to foster a state-wide commitment towards combating the disease and supporting affected individuals and their families.
One significant aspect of HR0772 is its endorsement of continued support for ALS research and advocacy. This is particularly important as the ALS Association has invested substantial resources into advancing research aimed at finding a cure and improving life for those affected. The Resolution states that observing ALS Awareness Month can galvanize public support for further funding, making the case that sustained legislative and communal backing is crucial for progress in ALS research.