The resolution does not impose any legal changes or requirements but emphasizes the need for improved awareness and understanding of TSC within the state. The declaration helps call attention to the challenges faced by families dealing with TSC and encourages community support for ongoing research efforts aimed at finding a cure. The recognition of TSC Awareness Day could foster greater collaboration between healthcare providers and advocacy groups, ultimately improving the quality of care and support available to individuals affected by the condition.
Summary
Senate Resolution SR0060 proposes the declaration of May 15, 2023, as Tuberous Sclerosis Complex (TSC) Awareness Day in the State of Illinois. TSC is a genetic disorder that can lead to the formation of tumors in vital organs, affecting a significant number of individuals both severely and mildly. This resolution aims to promote awareness of the disorder, thereby ensuring individuals affected by TSC receive proper diagnosis and treatment. By joining the national movement to increase awareness, Illinois hopes to spotlight a condition that is as common as other well-known diseases like ALS and cystic fibrosis.
Contention
While the resolution is primarily a symbolic gesture, it may also open discussions regarding health policy, support systems, and resources available for people with TSC. Some lawmakers might discuss potential funding or initiatives to enhance research and care related to TSC. However, no notable points of contention have been highlighted in the available discussions surrounding this resolution, suggesting a general consensus on the importance of raising this specific awareness.
HJR____ TO RECOGNIZE MAY 2023 AS TUBEROUS SCLEROSIS COMPLEX AWARENESS MONTH IN ORDER TO RAISE AWARENESS FOR THE NEED FOR RESEARCH, PROPER DIAGNOSIS, AND FAMILY SUPPORT FOR INDIVIDUALS WHO SUFFER FROM TUBEROUS SCLEROSIS COMPLEX.