Illinois 2023 2023-2024 Regular Session

Illinois Senate Bill SR0820 Introduced / Bill

Filed 03/05/2024

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1  SENATE RESOLUTION
2  WHEREAS, Duchenne muscular dystrophy affects approximately
3  one out of every 5,000 live male births; and
4  WHEREAS, Globally, 20,000 children are diagnosed with
5  Duchenne muscular dystrophy each year; and
6  WHEREAS, There are an estimated 15,000 people in the U.S.
7  living with Duchenne muscular dystrophy; and
8  WHEREAS, With increased funding for research and rapidly
9  improving treatments, people with Duchenne muscular dystrophy
10  have more hope than before; however, there is currently no
11  cure for Duchenne muscular dystrophy; and
12  WHEREAS, Earlier diagnosis of Duchenne muscular dystrophy
13  in children could improve health outcomes for those affected;
14  and
15  WHEREAS, Symptoms of Duchenne muscular dystrophy include
16  progressive loss of strength and function in the hips, thighs,
17  shoulders, pelvis, arms, lower legs, and trunk; later in life,
18  strength in the muscles of the heart and lungs, heart
19  function, and breathing are also affected; and

 

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1  WHEREAS, Newborn screening will improve health outcomes
2  for children with Duchenne muscular dystrophy; therefore, be
3  it
4  RESOLVED, BY THE SENATE OF THE ONE HUNDRED THIRD GENERAL
5  ASSEMBLY OF THE STATE OF ILLINOIS, that we declare September
6  7, 2024 as Duchenne Muscular Dystrophy Awareness Day in the
7  State of Illinois; and be it further

 

 

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