Illinois 2023-2024 Regular Session

Illinois Senate Bill SR1274 Compare Versions

Only one version of the bill is available at this time.

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3	3	1 SENATE RESOLUTION
4	4	2 WHEREAS, Epilepsy Awareness Month is a nationwide effort
5	5	3 to raise awareness about epilepsies, seizures, and side
6	6	4 effects and to improve the lives of people affected by
7	7	5 epilepsy through education, advocacy, research, and
8	8	6 connection; and
9	9	7 WHEREAS, Epilepsy is a brain disorder characterized by
10	10	8 recurrent and unprovoked seizures that can affect anyone, at
11	11	9 any age, at any time; and
12	12	10 WHEREAS, Epilepsy is a spectrum disease comprised of many
13	13	11 diagnoses and experiences and includes a wide range of seizure
14	14	12 types, comorbidities, control, severity, and outcomes varying
15	15	13 from person to person; and
16	16	14 WHEREAS, Epilepsy is the fourth most common neurological
17	17	15 disorder; nearly 3.4 million people in the U.S., including
18	18	16 136,600 in Illinois, live with active epilepsy; and
19	19	17 WHEREAS, Approximately half of adults with active epilepsy
20	20	18 have annual family incomes of less than $25,000, and adults
21	21	19 with epilepsy are more likely to report being unable to afford
22	22	20 needed prescription medications; children and adolescents with
23	23	21 seizures are more likely to live in poverty and have food
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32	32	1 insecurity; racial and ethnic minorities represent more than
33	33	2 40% of people living with epilepsy and face various
34	34	3 disparities in obtaining appropriate diagnosis, care, and
35	35	4 epilepsy mortality; and
36	36	5 WHEREAS, An increasing number of people are diagnosed with
37	37	6 rare epilepsies, which are largely complex, severe, chronic,
38	38	7 and even life-threatening, and collectively rare epilepsies
39	39	8 account for a growing percentage of the epilepsy population;
40	40	9 and
41	41	10 WHEREAS, People with epilepsy need access to affordable,
42	42	11 comprehensive, physician-directed, person-centered health
43	43	12 care, and delays in accessing effective treatments increase
44	44	13 the likelihood of breakthrough seizures and related
45	45	14 complications, including injury, disability, or even Sudden
46	46	15 Unexpected Death in Epilepsy (SUDEP); each year, it is
47	47	16 estimated that 1 in 1,000 people with epilepsy die from SUDEP,
48	48	17 and this number increases drastically to 1 out of 150 for
49	49	18 people whose epilepsy is not controlled by treatment; and
50	50	19 WHEREAS, Many treatments are approved to treat seizures;
51	51	20 yet, 30 - 40% of people with epilepsy still live with
52	52	21 uncontrolled seizures, and the epilepsy-related medical costs
53	53	22 associated with uncontrolled epilepsy are two to ten times
54	54	23 higher than those of controlled epilepsy; and
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65	65	1 WHEREAS, Twenty-one percent of people with epilepsy have
66	66	2 reported not being able to afford their prescription
67	67	3 medication(s) in the last year; and
68	68	4 WHEREAS, Non-medical drivers of health, such as social,
69	69	5 economic, and environmental conditions including housing,
70	70	6 employment, food security, transportation, and education,
71	71	7 account for 80-90% of a person's health outcomes; and
72	72	8 WHEREAS, Epilepsy and/or seizures impose an annual
73	73	9 economic healthcare burden of $54 billion; and
74	74	10 WHEREAS, In the U.S., 456,000 children live with epilepsy;
75	75	11 students with epilepsy aged 6 - 17 years old have missed 11 or
76	76	12 more days of school the past year on average, and 336,000
77	77	13 children have at least one seizure annually; and
78	78	14 WHEREAS, Protections exist in the Americans with
79	79	15 Disabilities Act and related civil rights laws, but people
80	80	16 with epilepsy still encounter discrimination in many areas,
81	81	17 including employment, education, and housing; and
82	82	18 WHEREAS, Twenty-five percent of the general public say
83	83	19 they would be nervous around a person with epilepsy;
84	84	20 increasing public knowledge about epilepsies and seizure first
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95	95	1 aid can change the way people think about epilepsies and
96	96	2 seizures, decrease stigma, and improve outcomes; therefore, be
97	97	3 it
98	98	4 RESOLVED, BY THE SENATE OF THE ONE HUNDRED THIRD GENERAL
99	99	5 ASSEMBLY OF THE STATE OF ILLINOIS, that we declare November
100	100	6 2024 as Epilepsy Awareness Month in the State of Illinois to
101	101	7 encourage Illinois residents to take action together so no one
102	102	8 faces epilepsy alone; and be it further
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