104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB1100 Introduced , by Rep. Jed Davis SYNOPSIS AS INTRODUCED: 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 Amends the Medical Patient Rights Act. Creates the right of each patient to request access to and be provided with an electronic record of the patient's health information free of charge. Provides that, if a request pursuant to this right is made by a patient or the patient's representative and the records are readily producible in an electronic format, the health care provider shall provide the patient or the patient's representative with access to the requested records in an electronic format. LRB104 04618 AAS 14645 b A BILL FOR 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB1100 Introduced , by Rep. Jed Davis SYNOPSIS AS INTRODUCED: 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 Amends the Medical Patient Rights Act. Creates the right of each patient to request access to and be provided with an electronic record of the patient's health information free of charge. Provides that, if a request pursuant to this right is made by a patient or the patient's representative and the records are readily producible in an electronic format, the health care provider shall provide the patient or the patient's representative with access to the requested records in an electronic format. LRB104 04618 AAS 14645 b LRB104 04618 AAS 14645 b A BILL FOR 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB1100 Introduced , by Rep. Jed Davis SYNOPSIS AS INTRODUCED: 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 Amends the Medical Patient Rights Act. Creates the right of each patient to request access to and be provided with an electronic record of the patient's health information free of charge. Provides that, if a request pursuant to this right is made by a patient or the patient's representative and the records are readily producible in an electronic format, the health care provider shall provide the patient or the patient's representative with access to the requested records in an electronic format. LRB104 04618 AAS 14645 b LRB104 04618 AAS 14645 b LRB104 04618 AAS 14645 b A BILL FOR HB1100LRB104 04618 AAS 14645 b HB1100 LRB104 04618 AAS 14645 b HB1100 LRB104 04618 AAS 14645 b 1 AN ACT concerning health. 2 Be it enacted by the People of the State of Illinois, 3 represented in the General Assembly: 4 Section 5. The Medical Patient Rights Act is amended by 5 changing Section 3 as follows: 6 (410 ILCS 50/3) (from Ch. 111 1/2, par. 5403) 7 Sec. 3. The following rights are hereby established: 8 (a) The right of each patient to care consistent with 9 sound nursing and medical practices, to be informed of the 10 name of the physician responsible for coordinating his or 11 her care, to receive information concerning his or her 12 condition and proposed treatment, to refuse any treatment 13 to the extent permitted by law, and to privacy and 14 confidentiality of records except as otherwise provided by 15 law. 16 (b) The right of each patient, regardless of source of 17 payment, to examine and receive a reasonable explanation 18 of his total bill for services rendered by his physician 19 or health care provider, including the itemized charges 20 for specific services received. Each physician or health 21 care provider shall be responsible only for a reasonable 22 explanation of those specific services provided by such 23 physician or health care provider. 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB1100 Introduced , by Rep. Jed Davis SYNOPSIS AS INTRODUCED: 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 Amends the Medical Patient Rights Act. Creates the right of each patient to request access to and be provided with an electronic record of the patient's health information free of charge. Provides that, if a request pursuant to this right is made by a patient or the patient's representative and the records are readily producible in an electronic format, the health care provider shall provide the patient or the patient's representative with access to the requested records in an electronic format. LRB104 04618 AAS 14645 b LRB104 04618 AAS 14645 b LRB104 04618 AAS 14645 b A BILL FOR 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 LRB104 04618 AAS 14645 b HB1100 LRB104 04618 AAS 14645 b HB1100- 2 -LRB104 04618 AAS 14645 b HB1100 - 2 - LRB104 04618 AAS 14645 b HB1100 - 2 - LRB104 04618 AAS 14645 b 1 (c) In the event an insurance company or health 2 services corporation cancels or refuses to renew an 3 individual policy or plan, the insured patient shall be 4 entitled to timely, prior notice of the termination of 5 such policy or plan. 6 An insurance company or health services corporation 7 that requires any insured patient or applicant for new or 8 continued insurance or coverage to be tested for infection 9 with human immunodeficiency virus (HIV) or any other 10 identified causative agent of acquired immunodeficiency 11 syndrome (AIDS) shall (1) give the patient or applicant 12 prior written notice of such requirement, (2) proceed with 13 such testing only upon the written authorization of the 14 applicant or patient, and (3) keep the results of such 15 testing confidential. Notice of an adverse underwriting or 16 coverage decision may be given to any appropriately 17 interested party, but the insurer may only disclose the 18 test result itself to a physician designated by the 19 applicant or patient, and any such disclosure shall be in 20 a manner that assures confidentiality. 21 The Department of Insurance shall enforce the 22 provisions of this subsection. 23 (d) The right of each patient to privacy and 24 confidentiality in health care. Each physician, health 25 care provider, health services corporation and insurance 26 company shall refrain from disclosing the nature or HB1100 - 2 - LRB104 04618 AAS 14645 b HB1100- 3 -LRB104 04618 AAS 14645 b HB1100 - 3 - LRB104 04618 AAS 14645 b HB1100 - 3 - LRB104 04618 AAS 14645 b 1 details of services provided to patients, except that such 2 information may be disclosed: (1) to the patient, (2) to 3 the party making treatment decisions if the patient is 4 incapable of making decisions regarding the health 5 services provided, (3) for treatment in accordance with 45 6 CFR 164.501 and 164.506, (4) for payment in accordance 7 with 45 CFR 164.501 and 164.506, (5) to those parties 8 responsible for peer review, utilization review, and 9 quality assurance, (6) for health care operations in 10 accordance with 45 CFR 164.501 and 164.506, (7) to those 11 parties required to be notified under the Abused and 12 Neglected Child Reporting Act or the Illinois Sexually 13 Transmitted Infection Control Act, or (8) as otherwise 14 permitted, authorized, or required by State or federal 15 law. This right may be waived in writing by the patient or 16 the patient's guardian or legal representative, but a 17 physician or other health care provider may not condition 18 the provision of services on the patient's, guardian's, or 19 legal representative's agreement to sign such a waiver. In 20 the interest of public health, safety, and welfare, 21 patient information, including, but not limited to, health 22 information, demographic information, and information 23 about the services provided to patients, may be 24 transmitted to or through a health information exchange, 25 as that term is defined in Section 2 of the Mental Health 26 and Developmental Disabilities Confidentiality Act, in HB1100 - 3 - LRB104 04618 AAS 14645 b HB1100- 4 -LRB104 04618 AAS 14645 b HB1100 - 4 - LRB104 04618 AAS 14645 b HB1100 - 4 - LRB104 04618 AAS 14645 b HB1100 - 4 - LRB104 04618 AAS 14645 b