Illinois 2025-2026 Regular Session

Illinois House Bill HB2904 Compare Versions

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11 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB2904 Introduced , by Rep. Dagmara Avelar SYNOPSIS AS INTRODUCED: New Act Creates the Health Care Transparency Act. Provides that the Department of Public Health shall identify reproductive health care services, LGBTQ health care services, and end-of-life health care services that are or may be subject to denial of care for nonmedical reasons in the State and develop a clear and simple disclosure form for the purpose of conveying to patients and to the public which of the identified health care services are and are not generally available, are subject to restriction for nonmedical reasons, and are subject to restrictions on referral by each covered entity. Requires the Department to publish and maintain on its public-facing website a current list of covered entities and provide for public access to the disclosure form submitted by each covered entity; adopt rules implementing the Department's duties; and develop and administer to the public an education and awareness program regarding how denial of care may negatively impact health care access and quality, may be avoided, and affects vulnerable people and communities. Establishes disclosure requirements for covered entities. Effective immediately. LRB104 05596 BAB 15626 b A BILL FOR 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB2904 Introduced , by Rep. Dagmara Avelar SYNOPSIS AS INTRODUCED: New Act New Act Creates the Health Care Transparency Act. Provides that the Department of Public Health shall identify reproductive health care services, LGBTQ health care services, and end-of-life health care services that are or may be subject to denial of care for nonmedical reasons in the State and develop a clear and simple disclosure form for the purpose of conveying to patients and to the public which of the identified health care services are and are not generally available, are subject to restriction for nonmedical reasons, and are subject to restrictions on referral by each covered entity. Requires the Department to publish and maintain on its public-facing website a current list of covered entities and provide for public access to the disclosure form submitted by each covered entity; adopt rules implementing the Department's duties; and develop and administer to the public an education and awareness program regarding how denial of care may negatively impact health care access and quality, may be avoided, and affects vulnerable people and communities. Establishes disclosure requirements for covered entities. Effective immediately. LRB104 05596 BAB 15626 b LRB104 05596 BAB 15626 b A BILL FOR
22 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 HB2904 Introduced , by Rep. Dagmara Avelar SYNOPSIS AS INTRODUCED:
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55 Creates the Health Care Transparency Act. Provides that the Department of Public Health shall identify reproductive health care services, LGBTQ health care services, and end-of-life health care services that are or may be subject to denial of care for nonmedical reasons in the State and develop a clear and simple disclosure form for the purpose of conveying to patients and to the public which of the identified health care services are and are not generally available, are subject to restriction for nonmedical reasons, and are subject to restrictions on referral by each covered entity. Requires the Department to publish and maintain on its public-facing website a current list of covered entities and provide for public access to the disclosure form submitted by each covered entity; adopt rules implementing the Department's duties; and develop and administer to the public an education and awareness program regarding how denial of care may negatively impact health care access and quality, may be avoided, and affects vulnerable people and communities. Establishes disclosure requirements for covered entities. Effective immediately.
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1111 1 AN ACT concerning regulation.
1212 2 Be it enacted by the People of the State of Illinois,
1313 3 represented in the General Assembly:
1414 4 Section 1. Short title. This Act may be cited as the Health
1515 5 Care Transparency Act.
1616 6 Section 5. Findings. The General Assembly finds that:
1717 7 (1) The right of every patient to receive basic
1818 8 information necessary to give full and informed consent is
1919 9 a fundamental tenet of good public health policy and has
2020 10 long been the established law of this State.
2121 11 (2) Every person having ultimate responsibility for
2222 12 decisions respecting their own health care also possesses
2323 13 a concomitant right of access to complete information
2424 14 respecting their condition and care provided.
2525 15 (3) For nonmedical reasons, some health care
2626 16 facilities do not provide a full range of health care
2727 17 services and may prohibit, significantly restrict, or
2828 18 otherwise refuse to provide services such as
2929 19 sterilization, infertility treatments, abortion, or
3030 20 contraceptive services, including emergency
3131 21 contraception.
3232 22 (4) Health care facilities may also deny or
3333 23 selectively restrict care relating to stigmatized
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4040 Creates the Health Care Transparency Act. Provides that the Department of Public Health shall identify reproductive health care services, LGBTQ health care services, and end-of-life health care services that are or may be subject to denial of care for nonmedical reasons in the State and develop a clear and simple disclosure form for the purpose of conveying to patients and to the public which of the identified health care services are and are not generally available, are subject to restriction for nonmedical reasons, and are subject to restrictions on referral by each covered entity. Requires the Department to publish and maintain on its public-facing website a current list of covered entities and provide for public access to the disclosure form submitted by each covered entity; adopt rules implementing the Department's duties; and develop and administer to the public an education and awareness program regarding how denial of care may negatively impact health care access and quality, may be avoided, and affects vulnerable people and communities. Establishes disclosure requirements for covered entities. Effective immediately.
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6868 1 populations, including lesbian, gay, bisexual,
6969 2 transgender, and queer individuals, for nonmedical reasons
7070 3 even if equivalent procedures are provided for other
7171 4 patients.
7272 5 (5) Persons seeking health care frequently lack
7373 6 information about which facilities refuse to provide
7474 7 various health care services for nonmedical reasons and
7575 8 what services they restrict or refuse to provide.
7676 9 (6) Patients are not well-positioned to understand
7777 10 what treatment options are available to them when health
7878 11 facilities do not disclose treatment options that they
7979 12 refuse to provide for nonmedical reasons.
8080 13 (7) Consequently, when health care facilities do not
8181 14 disclose that they restrict or refuse to provide various
8282 15 health care services for nonmedical reasons, they can
8383 16 deprive patients of a knowledgeable choice as to
8484 17 alternative treatments, which is inconsistent with the
8585 18 underlying principle of informed consent.
8686 19 (8) Refusals to provide health care services for
8787 20 nonmedical reasons may:
8888 21 (A) have long-term negative consequences,
8989 22 resulting in injury, disability, and death;
9090 23 (B) cause trauma to patients;
9191 24 (C) impact quality of life;
9292 25 (D) result in greater health care expenses for
9393 26 patient and payers; and
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104104 1 (E) some denials of care violate State and federal
105105 2 law.
106106 3 (9) It is the intent of the General Assembly to ensure
107107 4 that patients are given full information about available
108108 5 health care services frequently subject to denial of care
109109 6 for nonmedical reasons to allow them to make well-informed
110110 7 health care decisions.
111111 8 Section 10. Definitions. As used in this Act:
112112 9 "Covered entity" means any hospital required to be
113113 10 licensed by the Department of Public Health pursuant to the
114114 11 Hospital Licensing Act that provides general medical and
115115 12 surgical hospital services, except long-term acute care
116116 13 hospitals and rehabilitation hospitals; any ambulatory
117117 14 surgical treatment center licensed under the Ambulatory
118118 15 Surgical Treatment Center Act; and any freestanding emergency
119119 16 center licensed under the Emergency Medical Services (EMS)
120120 17 Systems Act. "Covered entity" does not include a health care
121121 18 practitioner.
122122 19 "Department" means the Department of Public Health.
123123 20 "Denial of care" means any refusal by a covered entity to
124124 21 provide a health care service for nonmedical reasons or to
125125 22 provide a referral for a health care service for nonmedical
126126 23 reasons. "Denial of care" includes the following practices,
127127 24 whether based on formal or informal policies or practices,
128128 25 that are not based on generally accepted standards of care:
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139139 1 (1) selective refusal to provide a health care service
140140 2 to some, but not all, patients based on a protected
141141 3 characteristic described in paragraph (A) of Section 1-102
142142 4 of the Illinois Human Rights Act, objections to a health
143143 5 care service, or some other nonmedical reason; or
144144 6 (2) a significant restriction on the availability of
145145 7 specific health care services.
146146 8 "Disclosure form" means the form created by the Department
147147 9 and completed by covered entities pursuant to this Act.
148148 10 "End-of-life health care services" means any medical,
149149 11 surgical, preventive, counseling, or referral services
150150 12 provided to an individual who is near the end of life or who
151151 13 has a terminal illness. "End-of-life health care services"
152152 14 includes any services relating to palliative care, advanced
153153 15 directives, withdrawal of nutrition services, and hospice
154154 16 care.
155155 17 "Health care practitioner" means any health care
156156 18 professional licensed to provide health care services.
157157 19 "Health care service" means the provision of treatment,
158158 20 care, advice or guidance, or services or supplies, including;
159159 21 (1) preventive, diagnostic, therapeutic,
160160 22 rehabilitative, maintenance, or palliative care;
161161 23 (2) counseling, assessment, procedures, or other
162162 24 services; or
163163 25 (3) selling, dispensing, or administering a
164164 26 prescription or nonprescription drug, device, or
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175175 1 equipment.
176176 2 "LGBTQ health care services" means any medical, surgical,
177177 3 preventive, counseling, or referral services that are
178178 4 specifically targeted to or that disproportionately affect
179179 5 lesbian, gay, bisexual, transgender, or queer individuals,
180180 6 including gender-affirming care, HIV-related care, and
181181 7 family-building services.
182182 8 "Nonmedical reasons" means nonclinical criteria, rules, or
183183 9 policies, whether written or unwritten, that restrict health
184184 10 care practitioners at a covered entity from providing a health
185185 11 care service that a health care practitioner is authorized
186186 12 under law to provide and that the covered entity is licensed to
187187 13 provide.
188188 14 "Reproductive health care services" means any medical,
189189 15 surgical, preventive, counseling, or referral services
190190 16 relating to the human reproductive system, including services
191191 17 relating to contraception, sterilization, assisted
192192 18 reproduction, maternity care, pregnancy, and the termination
193193 19 of a pregnancy.
194194 20 Section 15. Departmental duties.
195195 21 (a) Not later than January 1, 2026, the Department shall,
196196 22 in consultation with stakeholders, including a hospital
197197 23 association, patient advocacy groups, and groups representing
198198 24 populations that are disproportionately impacted by denial of
199199 25 care:
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210210 1 (1) identify reproductive health care services, LGBTQ
211211 2 health care services, and end-of-life health care services
212212 3 that are or may be subject to denial of care in the State;
213213 4 and
214214 5 (2) develop a clear and simple disclosure form for the
215215 6 purpose of conveying to patients and to the public which
216216 7 of the identified health care services are and are not
217217 8 generally available, are subject to restriction for
218218 9 nonmedical reasons, and are subject to restrictions on
219219 10 referral at each covered entity.
220220 11 (A) This disclosure form must include contact
221221 12 information for the covered entity completing the form
222222 13 in case patients have specific questions about
223223 14 services available at the covered entity.
224224 15 (B) The Department shall review and, if
225225 16 appropriate, update this form at least biennially in
226226 17 consultation with stakeholders. The Department may
227227 18 develop versions of the disclosure form appropriate
228228 19 for different categories of covered entities.
229229 20 (b) Beginning on or before March 1, 2026, the Department
230230 21 shall publish and maintain on its public-facing website a
231231 22 current list of covered entities and shall provide for public
232232 23 access the disclosure form submitted by each covered entity.
233233 24 The Department may use various methods of displaying the
234234 25 information to enable patients to compare services by covered
235235 26 entities.
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246246 1 (c) The Department shall adopt rules to implement this
247247 2 Section. The Department's rules must include a process for
248248 3 receiving and investigating complaints regarding covered
249249 4 entities that fail to comply with this Section and for
250250 5 assessing fines against covered entities.
251251 6 (d) The Department shall develop and administer to the
252252 7 public an education and awareness program regarding how denial
253253 8 of care:
254254 9 (1) may negatively impact health care access and
255255 10 quality;
256256 11 (2) may be avoided; and
257257 12 (3) affects vulnerable people and communities.
258258 13 Section 20. Covered entity duties.
259259 14 (a) Not later than 60 days after the Department issues or
260260 15 updates the disclosure form, each covered entity shall submit
261261 16 a completed disclosure form to the Department. A covered
262262 17 entity shall also submit an updated disclosure form within 30
263263 18 days after making a change to the availability of a health care
264264 19 service identified on the disclosure form.
265265 20 (b) Not later than March 1, 2026, each covered entity
266266 21 shall adopt a policy for providing patients with its completed
267267 22 disclosure form as part of the informed consent process prior
268268 23 to the initiation of health care services and for recording
269269 24 the patient's receipt of the form. The covered entity's policy
270270 25 must also require health care practitioners who maintain
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281281 1 admitting privileges at a covered entity and refer or schedule
282282 2 their patients to receive health care services at the covered
283283 3 entity to provide the covered entity's disclosure form to the
284284 4 patient or the patient's representative prior to referring or
285285 5 scheduling their patients to receive health care services at
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287287 7 (c) On and after March 1, 2026, each covered entity shall:
288288 8 (1) provide the current disclosure form to the patient
289289 9 or the patient's representative as part of the informed
290290 10 consent process before any health care service is
291291 11 initiated. If informed consent is impracticable because of
292292 12 an emergency or other circumstance, the covered entity may
293293 13 delay the provision of the disclosure form, as
294294 14 appropriate, until the informed consent process is
295295 15 conducted;
296296 16 (2) maintain a record of a patient's or the patient's
297297 17 representative's receipt of the disclosure form as part of
298298 18 the informed consent process; and
299299 19 (3) provide its completed disclosure form to any
300300 20 person upon request.
301301 21 Section 25. Construction.
302302 22 (a) This Act does not:
303303 23 (1) permit or authorize restrictions on health care
304304 24 services for nonmedical reasons or discrimination in the
305305 25 provision of health care services; or
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316316 1 (2) limit any cause of action under State or federal
317317 2 law, nor limit any remedy in law or equity, against a
318318 3 covered entity, health care practitioner, or provider of a
319319 4 health benefit plan.
320320 5 (b) Compliance with this Act does not reduce or limit any
321321 6 potential liability for a covered entity, health care
322322 7 practitioner, or provider of a health benefit plan associated
323323 8 with restrictions on health care services for nonmedical
324324 9 reasons or any violations of State or federal law.
325325 10 (c) Neither the Health Care Right of Conscience Act nor
326326 11 the Religious Freedom Restoration Act shall provide a claim
327327 12 concerning or a defense to a claim under this Act nor shall
328328 13 those Acts provide a basis for challenging the application or
329329 14 enforcement of this Act or funds appropriated or expended in
330330 15 operation of this Act.
331331 16 Section 97. Severability. The provisions of this Act are
332332 17 severable under Section 1.31 of the Statute on Statutes.
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