<tr><td class="xsl" colspan="3"><p> </p> </td></tr></td></tr><tr><td class="xsl" colspan="3"><table class="xsl" width="100%"><colgroup width="5%"></colgroup><colgroup width="5%"></colgroup><colgroup width="30%"></colgroup><colgroup width="20%"></colgroup><colgroup width="40%"></colgroup><tr><td class="number"></td><td class="junk"></td><td class="xsl" align="left">HR0344</td><td class="xsl" align="center"></td><td class="xsl" align="right">LRB104 13625 LAW 26254 r</td></tr></table></td></tr><tr><td class="xsl"> </td></tr><tr><td class="number">1</td><td class="junk"></td><td class="xsl" ><center><code>HOUSE RESOLUTION</code></center> </td></tr><tr><td class="number">2</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, Giant Axonal Neuropathy (GAN) is a rare, </code></td></tr><tr><td class="number">3</td><td class="junk"></td><td class="xsl" ><code>terminal, inherited neurodegenerative disorder that affects </code></td></tr><tr><td class="number">4</td><td class="junk"></td><td class="xsl" ><code>both the central and peripheral nervous systems, leading to </code></td></tr><tr><td class="number">5</td><td class="junk"></td><td class="xsl" ><code>progressive muscle weakness, impaired coordination, and other </code></td></tr><tr><td class="number">6</td><td class="junk"></td><td class="xsl" ><code>severe symptoms; and</code> </td></tr><tr><td class="number">7</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, GAN primarily manifests in early childhood and </code></td></tr><tr><td class="number">8</td><td class="junk"></td><td class="xsl" ><code>progressively worsens over time, significantly impacting </code></td></tr><tr><td class="number">9</td><td class="junk"></td><td class="xsl" ><code>mobility, motor function, and overall quality of life; and</code> </td></tr><tr><td class="number">10</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, GAN is caused by mutations in the GAN gene, which </code></td></tr><tr><td class="number">11</td><td class="junk"></td><td class="xsl" ><code>disrupts the proper function of nerve cells, ultimately </code></td></tr><tr><td class="number">12</td><td class="junk"></td><td class="xsl" ><code>leading to the deterioration of the nervous system; and</code> </td></tr><tr><td class="number">13</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, GAN currently has no cure, and treatment options </code></td></tr><tr><td class="number">14</td><td class="junk"></td><td class="xsl" ><code>remain limited to symptom management and supportive care; and</code> </td></tr><tr><td class="number">15</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, Approximately 75 known people have been diagnosed </code></td></tr><tr><td class="number">16</td><td class="junk"></td><td class="xsl" ><code>with GAN worldwide, including Ethan Tkalec of Riverside; and</code> </td></tr><tr><td class="number">17</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, Increased awareness, research funding, and early </code></td></tr><tr><td class="number">18</td><td class="junk"></td><td class="xsl" ><code>diagnosis are critical to improving outcomes for individuals </code></td></tr><tr><td class="number">19</td><td class="junk"></td><td class="xsl" ><code>affected by GAN and their families; and</code> </td></tr></table><table class="xsl" width="650"><tr><td class="lineNum" colspan="3"><p> </p><p> </p></td></tr><tr><td class="xsl" colspan="3"><table class="xsl" width="100%"><colgroup width="5%"></colgroup><colgroup width="5%"></colgroup><colgroup width="30%"></colgroup><colgroup width="20%"></colgroup><colgroup width="40%"></colgroup><tr><td class="number"></td><td class="junk"></td><td class="xsl" align="left">HR0344</td><td class="xsl" align="center">- 2 -</td><td class="xsl" align="right">LRB104 13625 LAW 26254 r</td></tr></table></td></tr><tr><td class="xsl"> </td></tr><tr><td class="number">1</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, Advocacy organizations, medical researchers, and </code></td></tr><tr><td class="number">2</td><td class="junk"></td><td class="xsl" ><code>healthcare providers are working diligently to advance </code></td></tr><tr><td class="number">3</td><td class="junk"></td><td class="xsl" ><code>scientific understanding and explore potential therapies for </code></td></tr><tr><td class="number">4</td><td class="junk"></td><td class="xsl" ><code>GAN; and</code> </td></tr><tr><td class="number">5</td><td class="junk"></td><td class="xsl" ><code> </code><code>WHEREAS, It is imperative that the State of Illinois </code></td></tr><tr><td class="number">6</td><td class="junk"></td><td class="xsl" ><code>recognizes the challenges faced by individuals living with GAN </code></td></tr><tr><td class="number">7</td><td class="junk"></td><td class="xsl" ><code>and their caregivers and supports initiatives to enhance </code></td></tr><tr><td class="number">8</td><td class="junk"></td><td class="xsl" ><code>research, education, and awareness of this rare disease; </code></td></tr><tr><td class="number">9</td><td class="junk"></td><td class="xsl" ><code>therefore, be it</code> </td></tr><tr><td class="number">10</td><td class="junk"></td><td class="xsl" ><code> </code><code>RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE </code></td></tr><tr><td class="number">11</td><td class="junk"></td><td class="xsl" ><code>HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that </code></td></tr><tr><td class="number">12</td><td class="junk"></td><td class="xsl" ><code>we declare May 28, 2025 as Giant Axonal Neuropathy Awareness </code></td></tr><tr><td class="number">13</td><td class="junk"></td><td class="xsl" ><code>Day in the State of Illinois to raise public awareness of Giant </code></td></tr><tr><td class="number">14</td><td class="junk"></td><td class="xsl" ><code>Axonal Neuropathy (GAN), encourage research efforts, and </code></td></tr><tr><td class="number">15</td><td class="junk"></td><td class="xsl" ><code>support affected individuals and their families; and be it </code></td></tr><tr><td class="number">16</td><td class="junk"></td><td class="xsl" ><code>further</code> </td></tr><tr><td class="number">17</td><td class="junk"></td><td class="xsl" ><code> </code><code>RESOLVED, That we encourage the collaboration of public </code></td></tr><tr><td class="number">18</td><td class="junk"></td><td class="xsl" ><code>and private entities, healthcare professionals, and research </code></td></tr><tr><td class="number">19</td><td class="junk"></td><td class="xsl" ><code>institutions to advance medical research and treatment options </code></td></tr><tr><td class="number">20</td><td class="junk"></td><td class="xsl" ><code>for GAN; and be it further</code> </td></tr><tr><td class="number">21</td><td class="junk"></td><td class="xsl" ><code> </code><code>RESOLVED, That a suitable copy of this resolution be </code></td></tr><tr><td class="number">22</td><td class="junk"></td><td class="xsl" ><code>presented to organizations dedicated to GAN awareness and </code></td></tr></table><table class="xsl" width="650"><tr><td class="lineNum" colspan="3"><p> </p><p> </p></td></tr><tr><td class="xsl" colspan="3"><table class="xsl" width="100%"><colgroup width="5%"></colgroup><colgroup width="5%"></colgroup><colgroup width="30%"></colgroup><colgroup width="20%"></colgroup><colgroup width="40%"></colgroup><tr><td class="number"></td><td class="junk"></td><td class="xsl" align="left">HR0344</td><td class="xsl" align="center">- 3 -</td><td class="xsl" align="right">LRB104 13625 LAW 26254 r</td></tr></table></td></tr><tr><td class="xsl"> </td></tr><tr><td class="number">1</td><td class="junk"></td><td class="xsl" ><code>advocacy as an expression of the State of Illinois' commitment </code></td></tr><tr><td class="number">2</td><td class="junk"></td><td class="xsl" ><code>to improving the lives of those affected by this condition.</code>