Illinois 2025-2026 Regular Session

Illinois Senate Bill SB1579 Compare Versions

Only one version of the bill is available at this time.

Old	New	Differences
1	1	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1579 Introduced 2/4/2025, by Sen. Karina Villa SYNOPSIS AS INTRODUCED: 410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01410 ILCS 50/3 from Ch. 111 1/2, par. 5403410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1 Amends the Medical Patient Rights Act. Changes the definition of "patient". Specifies that each patient has the right to be informed of additional information. Adds a right of each patient to be treated with courtesy and respect, to have the patient's human and civil rights maintained, and to have the patient's basic human needs accommodated in a timely manner. Adds a right of each patient to have the patient's medical directives reviewed with the health care provider before any procedures are scheduled or decisions are made. Adds a right of each patient to continuity and coordination of care among and between all disciplines serving the patient's needs. Adds a right of each patient who receives services from an outside provider to be told the identity of the provider. Updates the right of each patient to privacy and confidentiality, adding that (1) the patient shall be given current information in writing concerning certain aspects of the patient's care, (2) the patient may opt out, either digitally or in writing, from certain sharing of health information, and (3) the patient shall not be denied access to care if opting out. Makes changes to provisions regarding experimental procedures. Effective immediately. LRB104 07665 BDA 17709 b A BILL FOR 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1579 Introduced 2/4/2025, by Sen. Karina Villa SYNOPSIS AS INTRODUCED: 410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01410 ILCS 50/3 from Ch. 111 1/2, par. 5403410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1 410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1 Amends the Medical Patient Rights Act. Changes the definition of "patient". Specifies that each patient has the right to be informed of additional information. Adds a right of each patient to be treated with courtesy and respect, to have the patient's human and civil rights maintained, and to have the patient's basic human needs accommodated in a timely manner. Adds a right of each patient to have the patient's medical directives reviewed with the health care provider before any procedures are scheduled or decisions are made. Adds a right of each patient to continuity and coordination of care among and between all disciplines serving the patient's needs. Adds a right of each patient who receives services from an outside provider to be told the identity of the provider. Updates the right of each patient to privacy and confidentiality, adding that (1) the patient shall be given current information in writing concerning certain aspects of the patient's care, (2) the patient may opt out, either digitally or in writing, from certain sharing of health information, and (3) the patient shall not be denied access to care if opting out. Makes changes to provisions regarding experimental procedures. Effective immediately. LRB104 07665 BDA 17709 b LRB104 07665 BDA 17709 b A BILL FOR
2	2	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1579 Introduced 2/4/2025, by Sen. Karina Villa SYNOPSIS AS INTRODUCED:
3	3	410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01410 ILCS 50/3 from Ch. 111 1/2, par. 5403410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1 410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1
4	4	410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01
5	5	410 ILCS 50/3 from Ch. 111 1/2, par. 5403
6	6	410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1
7	7	Amends the Medical Patient Rights Act. Changes the definition of "patient". Specifies that each patient has the right to be informed of additional information. Adds a right of each patient to be treated with courtesy and respect, to have the patient's human and civil rights maintained, and to have the patient's basic human needs accommodated in a timely manner. Adds a right of each patient to have the patient's medical directives reviewed with the health care provider before any procedures are scheduled or decisions are made. Adds a right of each patient to continuity and coordination of care among and between all disciplines serving the patient's needs. Adds a right of each patient who receives services from an outside provider to be told the identity of the provider. Updates the right of each patient to privacy and confidentiality, adding that (1) the patient shall be given current information in writing concerning certain aspects of the patient's care, (2) the patient may opt out, either digitally or in writing, from certain sharing of health information, and (3) the patient shall not be denied access to care if opting out. Makes changes to provisions regarding experimental procedures. Effective immediately.
8	8	LRB104 07665 BDA 17709 b LRB104 07665 BDA 17709 b
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10	10	A BILL FOR
11	11	SB1579LRB104 07665 BDA 17709 b SB1579 LRB104 07665 BDA 17709 b
12	12	SB1579 LRB104 07665 BDA 17709 b
13	13	1 AN ACT concerning health.
14	14	2 Be it enacted by the People of the State of Illinois,
15	15	3 represented in the General Assembly:
16	16	4 Section 5. The Medical Patient Rights Act is amended by
17	17	5 changing Sections 2.01, 3 and 3.1 as follows:
18	18	6 (410 ILCS 50/2.01) (from Ch. 111 1/2, par. 5402.01)
19	19	7 Sec. 2.01. "Patient" means any person who has received or
20	20	8 is receiving medical care, treatment or services from an
21	21	9 individual or institution licensed to provide medical care or
22	22	10 treatment in this State. "Patient" includes any person whose
23	23	11 medical care, treatment, or services received include, but are
24	24	12 not limited to, medical care, treatment, or services for the
25	25	13 purpose of diagnosis or treatment bearing on the physical or
26	26	14 mental health of the person, whether as an inpatient or an
27	27	15 outpatient. "Patient" includes any person receiving medical
28	28	16 and related services provided in the person's residence to
29	29	17 support the person's health and well-being.
30	30	18 (Source: P.A. 81-1167.)
31	31	19 (410 ILCS 50/3) (from Ch. 111 1/2, par. 5403)
32	32	20 Sec. 3. The following rights are hereby established:
33	33	21 (a) The right of each patient to care consistent with
34	34	22 sound nursing and medical practices, to be informed of the
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38	38	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1579 Introduced 2/4/2025, by Sen. Karina Villa SYNOPSIS AS INTRODUCED:
39	39	410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01410 ILCS 50/3 from Ch. 111 1/2, par. 5403410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1 410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01 410 ILCS 50/3 from Ch. 111 1/2, par. 5403 410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1
40	40	410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01
41	41	410 ILCS 50/3 from Ch. 111 1/2, par. 5403
42	42	410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1
43	43	Amends the Medical Patient Rights Act. Changes the definition of "patient". Specifies that each patient has the right to be informed of additional information. Adds a right of each patient to be treated with courtesy and respect, to have the patient's human and civil rights maintained, and to have the patient's basic human needs accommodated in a timely manner. Adds a right of each patient to have the patient's medical directives reviewed with the health care provider before any procedures are scheduled or decisions are made. Adds a right of each patient to continuity and coordination of care among and between all disciplines serving the patient's needs. Adds a right of each patient who receives services from an outside provider to be told the identity of the provider. Updates the right of each patient to privacy and confidentiality, adding that (1) the patient shall be given current information in writing concerning certain aspects of the patient's care, (2) the patient may opt out, either digitally or in writing, from certain sharing of health information, and (3) the patient shall not be denied access to care if opting out. Makes changes to provisions regarding experimental procedures. Effective immediately.
44	44	LRB104 07665 BDA 17709 b LRB104 07665 BDA 17709 b
45	45	LRB104 07665 BDA 17709 b
46	46	A BILL FOR
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52	52	410 ILCS 50/2.01 from Ch. 111 1/2, par. 5402.01
53	53	410 ILCS 50/3 from Ch. 111 1/2, par. 5403
54	54	410 ILCS 50/3.1 from Ch. 111 1/2, par. 5403.1
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73	73	1 name, specialty, and contact information of the physician
74	74	2 responsible for coordinating his or her care, to be
75	75	3 informed of how to reach the facility administrator,
76	76	4 outside advocate, interpreter, and legal services, to
77	77	5 receive information concerning his or her condition and
78	78	6 proposed treatment, to refuse any treatment to the extent
79	79	7 permitted by law, and to privacy and confidentiality of
80	80	8 records except as otherwise provided by law. Current
81	81	9 facilities policies, inspection findings of State and
82	82	10 local health authorities, and further explanation of the
83	83	11 written statement of rights shall be available to
84	84	12 patients, their guardians, or their chosen representatives
85	85	13 in their preferred language upon reasonable request to the
86	86	14 administrator or other designated staff person consistent
87	87	15 with Illinois law.
88	88	16 (a-5) The right of each patient to be treated with
89	89	17 courtesy and respect for the patient's individuality by
90	90	18 employees or persons providing medical services or care
91	91	19 and to have the patient's human and civil rights
92	92	20 maintained in all aspects of medical care. Such employees
93	93	21 and persons shall have up-to-date certification,
94	94	22 licensure, and training under Illinois law. In accordance
95	95	23 with 42 CFR 483.10, patients shall have their basic human
96	96	24 needs, including, but not limited to, water, food,
97	97	25 medication, toileting, and personal hygiene, accommodated
98	98	26 in a timely manner.
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109	109	1 (a-10) The right of each patient to have the patient's
110	110	2 medical directives reviewed with the health care provider
111	111	3 before any procedures are scheduled or decisions are made.
112	112	4 (a-15) The right of each patient to continuity and
113	113	5 coordination of care among and between all disciplines
114	114	6 serving the patient's medical diagnoses and needs.
115	115	7 (a-20) The right of each patient who receives services
116	116	8 from an outside provider to, upon request, be told the
117	117	9 identity of the provider. Disclosed information shall
118	118	10 include the name of the outside provider, the address, and
119	119	11 a description of the service which may be rendered. In
120	120	12 cases where it is medically advisable, as documented by
121	121	13 the attending physician in a patient's care record, the
122	122	14 information shall be given to the patient's guardian or
123	123	15 other person designated by the patient as the patient's
124	124	16 representative.
125	125	17 (b) The right of each patient, regardless of source of
126	126	18 payment, to examine and receive a reasonable explanation
127	127	19 of his total bill for services rendered by his physician
128	128	20 or health care provider, including the itemized charges
129	129	21 for specific services received. Each physician or health
130	130	22 care provider shall be responsible only for a reasonable
131	131	23 explanation of those specific services provided by such
132	132	24 physician or health care provider.
133	133	25 (c) In the event an insurance company or health
134	134	26 services corporation cancels or refuses to renew an
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145	145	1 individual policy or plan, the insured patient shall be
146	146	2 entitled to timely, prior notice of the termination of
147	147	3 such policy or plan.
148	148	4 An insurance company or health services corporation
149	149	5 that requires any insured patient or applicant for new or
150	150	6 continued insurance or coverage to be tested for infection
151	151	7 with human immunodeficiency virus (HIV) or any other
152	152	8 identified causative agent of acquired immunodeficiency
153	153	9 syndrome (AIDS) shall (1) give the patient or applicant
154	154	10 prior written notice of such requirement, (2) proceed with
155	155	11 such testing only upon the written authorization of the
156	156	12 applicant or patient, and (3) keep the results of such
157	157	13 testing confidential. Notice of an adverse underwriting or
158	158	14 coverage decision may be given to any appropriately
159	159	15 interested party, but the insurer may only disclose the
160	160	16 test result itself to a physician designated by the
161	161	17 applicant or patient, and any such disclosure shall be in
162	162	18 a manner that assures confidentiality.
163	163	19 The Department of Insurance shall enforce the
164	164	20 provisions of this subsection.
165	165	21 (d) The right of each patient to privacy and
166	166	22 confidentiality in health care. Each physician, health
167	167	23 care provider, health services corporation and insurance
168	168	24 company shall provide current information concerning the
169	169	25 patient's diagnosis, treatment, alternatives, risks, and
170	170	26 prognosis in writing to the patient or the patient's legal
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181	181	1 designee upon request and shall refrain from disclosing
182	182	2 the nature or details of services provided to patients,
183	183	3 except that such information may be disclosed: (1) to the
184	184	4 patient, (2) to the party making treatment decisions if
185	185	5 the patient is incapable of making decisions regarding the
186	186	6 health services provided, (3) for treatment in accordance
187	187	7 with 45 CFR 164.501 and 164.506, (4) for payment in
188	188	8 accordance with 45 CFR 164.501 and 164.506, (5) to those
189	189	9 parties responsible for peer review, utilization review,
190	190	10 and quality assurance, (6) for health care operations in
191	191	11 accordance with 45 CFR 164.501 and 164.506, (7) to those
192	192	12 parties required to be notified under the Abused and
193	193	13 Neglected Child Reporting Act or the Illinois Sexually
194	194	14 Transmitted Infection Control Act, or (8) as otherwise
195	195	15 permitted, authorized, or required by State or federal
196	196	16 law. This right may be waived in writing by the patient or
197	197	17 the patient's guardian or legal representative, but a
198	198	18 physician or other health care provider may not condition
199	199	19 the provision of services on the patient's, guardian's, or
200	200	20 legal representative's agreement to sign such a waiver. In
201	201	21 the interest of public health, safety, and welfare,
202	202	22 patient information, including, but not limited to, health
203	203	23 information, demographic information, and information
204	204	24 about the services provided to patients, may be
205	205	25 transmitted to or through a health information exchange,
206	206	26 as that term is defined in Section 2 of the Mental Health
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217	217	1 and Developmental Disabilities Confidentiality Act, in
218	218	2 accordance with the disclosures permitted pursuant to this
219	219	3 Section. Patients shall be provided the opportunity to opt
220	220	4 out, either digitally or in writing, of their health
221	221	5 information being transmitted to or through a health
222	222	6 information exchange in accordance with Section 9.6 of the
223	223	7 Mental Health and Developmental Disabilities
224	224	8 Confidentiality Act, Section 9.6 of the AIDS
225	225	9 Confidentiality Act, or Section 31.8 of the Genetic
226	226	10 Information Privacy Act, as applicable. Patients shall not
227	227	11 be denied access to care if they choose to opt out of the
228	228	12 sharing of such information. In the case of a patient
229	229	13 choosing to opt out of having his or her information
230	230	14 available on an HIE, nothing in this Act shall cause the
231	231	15 physician or health care provider to be liable for the
232	232	16 release of a patient's health information by other
233	233	17 entities that may possess such information, including, but
234	234	18 not limited to, other health professionals, providers,
235	235	19 laboratories, pharmacies, hospitals, ambulatory surgical
236	236	20 centers, and nursing homes.
237	237	21 (Source: P.A. 103-508, eff. 8-4-23; 103-1049, eff. 8-9-24.)
238	238	22 (410 ILCS 50/3.1) (from Ch. 111 1/2, par. 5403.1)
239	239	23 Sec. 3.1. (a) Any patient who is the subject of a research
240	240	24 program or an experimental procedure, as defined under the
241	241	25 rules and regulations of the Hospital Licensing Act, shall
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252	252	1 have, at a minimum, the right to receive an explanation both in
253	253	2 spoken and written words of the nature and possible
254	254	3 consequences of such research or experiment before the
255	255	4 research or experiment is scheduled or conducted, and to
256	256	5 consent to or reject it.
257	257	6 (b) No physician or other provider may conduct any
258	258	7 research program or experimental procedure on a patient
259	259	8 without the prior informed consent of the patient in writing
260	260	9 or, if the patient is unable to consent, the patient's
261	261	10 guardian, spouse, parent, or authorized agent. Both the
262	262	11 consent and the refusal shall be documented in the
263	263	12 individual's care record.
264	264	13 (c) This Section shall not apply to any research program
265	265	14 or medical experimental procedure for patients subject to a
266	266	15 life-threatening emergency that is conducted in accordance
267	267	16 with Part 50 of Title 21 of, and Part 46 of Title 45 of, the
268	268	17 Code of Federal Regulations.
269	269	18 (Source: P.A. 90-36, eff. 6-27-97.)
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