Illinois 2025-2026 Regular Session

Illinois Senate Bill SB1651 Compare Versions

Only one version of the bill is available at this time.

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1	1	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1651 Introduced 2/5/2025, by Sen. Julie A. Morrison SYNOPSIS AS INTRODUCED: 5 ILCS 70/1.42405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3 Amends the Mental Health and Developmental Disabilities Code. Expands the definition of "developmental disability" to include a disability attributable to Prader-Willi syndrome. Amends the Developmental Disability and Mental Disability Services Act. Expands the definition of "severe and multiple impairments" to include a substantial disability attributable to Prader-Willi syndrome. Exempts persons diagnosed with Prader-Willi syndrome from any assessment or evaluation to measure cognitive functioning or IQ for purposes of making determinations on whether such persons have severe and multiple impairments eligible for home and community-based services for persons with developmental disabilities. Amends the Statute on Statutes. Provides that, except where the context indicates otherwise: (i) in any rule, contract, or other document the term "developmental disability" shall include a disability attributable to Prader-Willi syndrome; and (ii) whenever there is a reference in any Act to "development disability" the term shall be construed to include a disability attributable to Prader-Willi syndrome. LRB104 08924 KTG 18979 b A BILL FOR 104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1651 Introduced 2/5/2025, by Sen. Julie A. Morrison SYNOPSIS AS INTRODUCED: 5 ILCS 70/1.42405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3 5 ILCS 70/1.42 405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106 405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3 Amends the Mental Health and Developmental Disabilities Code. Expands the definition of "developmental disability" to include a disability attributable to Prader-Willi syndrome. Amends the Developmental Disability and Mental Disability Services Act. Expands the definition of "severe and multiple impairments" to include a substantial disability attributable to Prader-Willi syndrome. Exempts persons diagnosed with Prader-Willi syndrome from any assessment or evaluation to measure cognitive functioning or IQ for purposes of making determinations on whether such persons have severe and multiple impairments eligible for home and community-based services for persons with developmental disabilities. Amends the Statute on Statutes. Provides that, except where the context indicates otherwise: (i) in any rule, contract, or other document the term "developmental disability" shall include a disability attributable to Prader-Willi syndrome; and (ii) whenever there is a reference in any Act to "development disability" the term shall be construed to include a disability attributable to Prader-Willi syndrome. LRB104 08924 KTG 18979 b LRB104 08924 KTG 18979 b A BILL FOR
2	2	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1651 Introduced 2/5/2025, by Sen. Julie A. Morrison SYNOPSIS AS INTRODUCED:
3	3	5 ILCS 70/1.42405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3 5 ILCS 70/1.42 405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106 405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3
4	4	5 ILCS 70/1.42
5	5	405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106
6	6	405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3
7	7	Amends the Mental Health and Developmental Disabilities Code. Expands the definition of "developmental disability" to include a disability attributable to Prader-Willi syndrome. Amends the Developmental Disability and Mental Disability Services Act. Expands the definition of "severe and multiple impairments" to include a substantial disability attributable to Prader-Willi syndrome. Exempts persons diagnosed with Prader-Willi syndrome from any assessment or evaluation to measure cognitive functioning or IQ for purposes of making determinations on whether such persons have severe and multiple impairments eligible for home and community-based services for persons with developmental disabilities. Amends the Statute on Statutes. Provides that, except where the context indicates otherwise: (i) in any rule, contract, or other document the term "developmental disability" shall include a disability attributable to Prader-Willi syndrome; and (ii) whenever there is a reference in any Act to "development disability" the term shall be construed to include a disability attributable to Prader-Willi syndrome.
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13	13	1 AN ACT concerning mental health.
14	14	2 Be it enacted by the People of the State of Illinois,
15	15	3 represented in the General Assembly:
16	16	4 Section 5. The Statute on Statutes is amended by changing
17	17	5 Section 1.42 as follows:
18	18	6 (5 ILCS 70/1.42)
19	19	7 Sec. 1.42. Developmental disability.
20	20	8 (a) Except where the context indicates otherwise, in any
21	21	9 rule, contract, or other document a reference to a
22	22	10 developmentally disabled person or a similar reference shall
23	23	11 be considered a reference to a person with a developmental
24	24	12 disability and a reference to the developmentally disabled or
25	25	13 a similar reference shall be considered a reference to persons
26	26	14 with developmental disabilities.
27	27	15 (b) Except where the context indicates otherwise, in any
28	28	16 rule, contract, or other document the term "developmental
29	29	17 disability" shall include a disability attributable to
30	30	18 Prader-Willi syndrome.
31	31	19 (c) Except where the context indicates otherwise, whenever
32	32	20 there is a reference in any Act to "development disability"
33	33	21 this term shall be construed to include a disability
34	34	22 attributable to Prader-Willi syndrome.
35	35	23 (d) The use of either "developmentally disabled" or
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39	39	104TH GENERAL ASSEMBLY State of Illinois 2025 and 2026 SB1651 Introduced 2/5/2025, by Sen. Julie A. Morrison SYNOPSIS AS INTRODUCED:
40	40	5 ILCS 70/1.42405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3 5 ILCS 70/1.42 405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106 405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3
41	41	5 ILCS 70/1.42
42	42	405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106
43	43	405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3
44	44	Amends the Mental Health and Developmental Disabilities Code. Expands the definition of "developmental disability" to include a disability attributable to Prader-Willi syndrome. Amends the Developmental Disability and Mental Disability Services Act. Expands the definition of "severe and multiple impairments" to include a substantial disability attributable to Prader-Willi syndrome. Exempts persons diagnosed with Prader-Willi syndrome from any assessment or evaluation to measure cognitive functioning or IQ for purposes of making determinations on whether such persons have severe and multiple impairments eligible for home and community-based services for persons with developmental disabilities. Amends the Statute on Statutes. Provides that, except where the context indicates otherwise: (i) in any rule, contract, or other document the term "developmental disability" shall include a disability attributable to Prader-Willi syndrome; and (ii) whenever there is a reference in any Act to "development disability" the term shall be construed to include a disability attributable to Prader-Willi syndrome.
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53	53	5 ILCS 70/1.42
54	54	405 ILCS 5/1-106 from Ch. 91 1/2, par. 1-106
55	55	405 ILCS 80/2-3 from Ch. 91 1/2, par. 1802-3
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74	74	1 "developmental disability" or "the developmentally disabled"
75	75	2 or "persons with developmental disabilities" shall not
76	76	3 invalidate any rule, contract, or other document.
77	77	4 (Source: P.A. 99-143, eff. 7-27-15.)
78	78	5 Section 10. The Mental Health and Developmental
79	79	6 Disabilities Code is amended by changing Section 1-106 as
80	80	7 follows:
81	81	8 (405 ILCS 5/1-106) (from Ch. 91 1/2, par. 1-106)
82	82	9 Sec. 1-106. "Developmental disability" means a severe,
83	83	10 chronic disability, other than mental illness, found to be
84	84	11 closely related to an intellectual disability because this
85	85	12 condition results in impairment of general intellectual
86	86	13 functioning or adaptive behavior similar to that of persons
87	87	14 with ID, and requires services similar to those required for a
88	88	15 person with an intellectual disability. In addition, a
89	89	16 developmental disability: (1) is manifested before the
90	90	17 individual reaches 22 years of age; (2) is likely to continue
91	91	18 indefinitely; (3) results in substantial functional
92	92	19 limitations in three or more of the following areas of major
93	93	20 life activity: self-care, receptive and expressive language,
94	94	21 learning, mobility, self-direction, capacity for independent
95	95	22 living, or economic self-sufficiency; and (4) reflects the
96	96	23 individual's need for a combination and sequence of special
97	97	24 interdisciplinary or generic services, individualized
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108	108	1 supports, or other forms of assistance that are of lifelong or
109	109	2 extended duration and are individually planned and
110	110	3 coordinated. "Developmental disability" includes a disability
111	111	4 attributable to Prader-Willi syndrome. This definition does
112	112	5 not supersede the "developmental disability" definition in
113	113	6 Section 1.1 of the Firearm Owners Identification Card Act
114	114	7 which is required to be applied under that Act for the purpose
115	115	8 of mandatory reporting.
116	116	9 (Source: P.A. 102-972, eff. 1-1-23.)
117	117	10 Section 15. The Developmental Disability and Mental
118	118	11 Disability Services Act is amended by changing Section 2-3 as
119	119	12 follows:
120	120	13 (405 ILCS 80/2-3) (from Ch. 91 1/2, par. 1802-3)
121	121	14 Sec. 2-3. As used in this Article, unless the context
122	122	15 requires otherwise:
123	123	16 (a) "Agency" means an agency or entity licensed by the
124	124	17 Department pursuant to this Article or pursuant to the
125	125	18 Community Residential Alternatives Licensing Act.
126	126	19 (b) "Department" means the Department of Human Services,
127	127	20 as successor to the Department of Mental Health and
128	128	21 Developmental Disabilities.
129	129	22 (c) "Home-based services" means services provided to an
130	130	23 adult with a mental disability who lives in his or her own
131	131	24 home. These services include but are not limited to:
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142	142	1 (1) home health services;
143	143	2 (2) case management;
144	144	3 (3) crisis management;
145	145	4 (4) training and assistance in self-care;
146	146	5 (5) personal care services;
147	147	6 (6) habilitation and rehabilitation services;
148	148	7 (7) employment-related services;
149	149	8 (8) respite care; and
150	150	9 (9) other skill training that enables a person to
151	151	10 become self-supporting.
152	152	11 (d) "Legal guardian" means a person appointed by a court
153	153	12 of competent jurisdiction to exercise certain powers on behalf
154	154	13 of an adult with a mental disability.
155	155	14 (e) "Adult with a mental disability" means a person over
156	156	15 the age of 18 years who lives in his or her own home; who needs
157	157	16 home-based services, but does not require 24-hour-a-day
158	158	17 supervision; and who has one of the following conditions:
159	159	18 severe autism, severe mental illness, a severe or profound
160	160	19 intellectual disability, or severe and multiple impairments.
161	161	20 (f) In one's "own home" means that an adult with a mental
162	162	21 disability lives alone; or that an adult with a mental
163	163	22 disability is in full-time residence with his or her parents,
164	164	23 legal guardian, or other relatives; or that an adult with a
165	165	24 mental disability is in full-time residence in a setting not
166	166	25 subject to licensure under the Nursing Home Care Act, the
167	167	26 Specialized Mental Health Rehabilitation Act of 2013, the
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178	178	1 ID/DD Community Care Act, the MC/DD Act, or the Child Care Act
179	179	2 of 1969, as now or hereafter amended, with 3 or fewer other
180	180	3 adults unrelated to the adult with a mental disability who do
181	181	4 not provide home-based services to the adult with a mental
182	182	5 disability.
183	183	6 (g) "Parent" means the biological or adoptive parent of an
184	184	7 adult with a mental disability, or a person licensed as a
185	185	8 foster parent under the laws of this State who acts as a foster
186	186	9 parent to an adult with a mental disability.
187	187	10 (h) "Relative" means any of the following relationships by
188	188	11 blood, marriage or adoption: parent, son, daughter, brother,
189	189	12 sister, grandparent, uncle, aunt, nephew, niece, great
190	190	13 grandparent, great uncle, great aunt, stepbrother, stepsister,
191	191	14 stepson, stepdaughter, stepparent or first cousin.
192	192	15 (i) "Severe autism" means a lifelong developmental
193	193	16 disability which is typically manifested before 30 months of
194	194	17 age and is characterized by severe disturbances in reciprocal
195	195	18 social interactions; verbal and nonverbal communication and
196	196	19 imaginative activity; and repertoire of activities and
197	197	20 interests. A person shall be determined severely autistic, for
198	198	21 purposes of this Article, if both of the following are
199	199	22 present:
200	200	23 (1) Diagnosis consistent with the criteria for
201	201	24 autistic disorder in the current edition of the Diagnostic
202	202	25 and Statistical Manual of Mental Disorders.
203	203	26 (2) Severe disturbances in reciprocal social
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214	214	1 interactions; verbal and nonverbal communication and
215	215	2 imaginative activity; repertoire of activities and
216	216	3 interests. A determination of severe autism shall be based
217	217	4 upon a comprehensive, documented assessment with an
218	218	5 evaluation by a licensed clinical psychologist or
219	219	6 psychiatrist. A determination of severe autism shall not
220	220	7 be based solely on behaviors relating to environmental,
221	221	8 cultural or economic differences.
222	222	9 (j) "Severe mental illness" means the manifestation of all
223	223	10 of the following characteristics:
224	224	11 (1) A primary diagnosis of one of the major mental
225	225	12 disorders in the current edition of the Diagnostic and
226	226	13 Statistical Manual of Mental Disorders listed below:
227	227	14 (A) Schizophrenia disorder.
228	228	15 (B) Delusional disorder.
229	229	16 (C) Schizo-affective disorder.
230	230	17 (D) Bipolar affective disorder.
231	231	18 (E) Atypical psychosis.
232	232	19 (F) Major depression, recurrent.
233	233	20 (2) The individual's mental illness must substantially
234	234	21 impair his or her functioning in at least 2 of the
235	235	22 following areas:
236	236	23 (A) Self-maintenance.
237	237	24 (B) Social functioning.
238	238	25 (C) Activities of community living.
239	239	26 (D) Work skills.
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250	250	1 (3) Disability must be present or expected to be
251	251	2 present for at least one year.
252	252	3 A determination of severe mental illness shall be based
253	253	4 upon a comprehensive, documented assessment with an evaluation
254	254	5 by a licensed clinical psychologist or psychiatrist, and shall
255	255	6 not be based solely on behaviors relating to environmental,
256	256	7 cultural or economic differences.
257	257	8 (k) "Severe or profound intellectual disability" means a
258	258	9 manifestation of all of the following characteristics:
259	259	10 (1) A diagnosis which meets Classification in Mental
260	260	11 Retardation or criteria in the current edition of the
261	261	12 Diagnostic and Statistical Manual of Mental Disorders for
262	262	13 severe or profound mental retardation (an IQ of 40 or
263	263	14 below). This must be measured by a standardized instrument
264	264	15 for general intellectual functioning.
265	265	16 (2) A severe or profound level of disturbed adaptive
266	266	17 behavior. This must be measured by a standardized adaptive
267	267	18 behavior scale or informal appraisal by the professional
268	268	19 in keeping with illustrations in Classification in Mental
269	269	20 Retardation, 1983.
270	270	21 (3) Disability diagnosed before age of 18.
271	271	22 A determination of a severe or profound intellectual
272	272	23 disability shall be based upon a comprehensive, documented
273	273	24 assessment with an evaluation by a licensed clinical
274	274	25 psychologist or certified school psychologist or a
275	275	26 psychiatrist, and shall not be based solely on behaviors
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286	286	1 relating to environmental, cultural or economic differences.
287	287	2 (l) "Severe and multiple impairments" means the
288	288	3 manifestation of all of the following characteristics:
289	289	4 (1) The evaluation determines the presence of a
290	290	5 developmental disability which is expected to continue
291	291	6 indefinitely, constitutes a substantial disability and is
292	292	7 attributable to any of the following:
293	293	8 (A) Intellectual disability as defined in Section
294	294	9 1-116 of the Mental Health and Developmental
295	295	10 Disabilities Code.
296	296	11 (B) Cerebral palsy.
297	297	12 (C) Epilepsy.
298	298	13 (D) Autism.
299	299	14 (E) Prader-Willi syndrome.
300	300	15 (F) (E) Any other condition which results in
301	301	16 impairment similar to that caused by an intellectual
302	302	17 disability and which requires services similar to
303	303	18 those required by persons with intellectual
304	304	19 disabilities.
305	305	20 (2) Except as otherwise provided for persons diagnosed
306	306	21 with Prader-Willi syndrome, the The evaluation determines
307	307	22 multiple disabilities in physical, sensory, behavioral or
308	308	23 cognitive functioning which constitute a severe or
309	309	24 profound impairment attributable to one or more of the
310	310	25 following:
311	311	26 (A) Physical functioning, which severely impairs
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322	322	1 the individual's motor performance that may be due to:
323	323	2 (i) Neurological, psychological or physical
324	324	3 involvement resulting in a variety of disabling
325	325	4 conditions such as hemiplegia, quadriplegia or
326	326	5 ataxia,
327	327	6 (ii) Severe organ systems involvement such as
328	328	7 congenital heart defect,
329	329	8 (iii) Physical abnormalities resulting in the
330	330	9 individual being non-mobile and non-ambulatory or
331	331	10 confined to bed and receiving assistance in
332	332	11 transferring, or
333	333	12 (iv) The need for regular medical or nursing
334	334	13 supervision such as gastrostomy care and feeding.
335	335	14 Assessment of physical functioning must be based
336	336	15 on clinical medical assessment by a physician licensed
337	337	16 to practice medicine in all its branches, using the
338	338	17 appropriate instruments, techniques and standards of
339	339	18 measurement required by the professional.
340	340	19 (B) Sensory, which involves severe restriction due
341	341	20 to hearing or visual impairment limiting the
342	342	21 individual's movement and creating dependence in
343	343	22 completing most daily activities. Hearing impairment
344	344	23 is defined as a loss of 70 decibels aided or speech
345	345	24 discrimination of less than 50% aided. Visual
346	346	25 impairment is defined as 20/200 corrected in the
347	347	26 better eye or a visual field of 20 degrees or less.
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358	358	1 Sensory functioning must be based on clinical medical
359	359	2 assessment by a physician licensed to practice
360	360	3 medicine in all its branches using the appropriate
361	361	4 instruments, techniques and standards of measurement
362	362	5 required by the professional.
363	363	6 (C) Behavioral, which involves behavior that is
364	364	7 maladaptive and presents a danger to self or others,
365	365	8 is destructive to property by deliberately breaking,
366	366	9 destroying or defacing objects, is disruptive by
367	367	10 fighting, or has other socially offensive behaviors in
368	368	11 sufficient frequency or severity to seriously limit
369	369	12 social integration. Assessment of behavioral
370	370	13 functioning may be measured by a standardized scale or
371	371	14 informal appraisal by a clinical psychologist or
372	372	15 psychiatrist.
373	373	16 (D) Cognitive, which involves intellectual
374	374	17 functioning at a measured IQ of 70 or below.
375	375	18 Assessment of cognitive functioning must be measured
376	376	19 by a standardized instrument for general intelligence.
377	377	20 Persons diagnosed with Prader-Willi syndrome are
378	378	21 exempt from any assessment or evaluation to measure
379	379	22 cognitive functioning or IQ for purposes of making a
380	380	23 determination of severe and multiple impairments.
381	381	24 (3) Except as otherwise provided for persons diagnosed
382	382	25 with Prader-Willi syndrome, the The evaluation determines
383	383	26 that development is substantially less than expected for
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394	394	1 the age in cognitive, affective or psychomotor behavior as
395	395	2 follows:
396	396	3 (A) Cognitive, which involves intellectual
397	397	4 functioning at a measured IQ of 70 or below.
398	398	5 Assessment of cognitive functioning must be measured
399	399	6 by a standardized instrument for general intelligence.
400	400	7 Persons diagnosed with Prader-Willi syndrome are
401	401	8 exempt from any assessment or evaluation to measure
402	402	9 cognitive functioning or IQ for purposes of making a
403	403	10 determination on whether such persons have severe and
404	404	11 multiple impairments.
405	405	12 (B) Affective behavior, which involves over and
406	406	13 under responding to stimuli in the environment and may
407	407	14 be observed in mood, attention to awareness, or in
408	408	15 behaviors such as euphoria, anger or sadness that
409	409	16 seriously limit integration into society. Affective
410	410	17 behavior must be based on clinical assessment using
411	411	18 the appropriate instruments, techniques and standards
412	412	19 of measurement required by the professional.
413	413	20 (C) Psychomotor, which includes a severe
414	414	21 developmental delay in fine or gross motor skills so
415	415	22 that development in self-care, social interaction,
416	416	23 communication or physical activity will be greatly
417	417	24 delayed or restricted.
418	418	25 (4) A determination that the disability originated
419	419	26 before the age of 18 years.
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430	430	1 A determination of severe and multiple impairments shall
431	431	2 be based upon a comprehensive, documented assessment with an
432	432	3 evaluation by a licensed clinical psychologist or
433	433	4 psychiatrist. Persons diagnosed with Prader-Willi syndrome are
434	434	5 exempt from any assessment or evaluation to measure cognitive
435	435	6 functioning or IQ for purposes of making determinations on
436	436	7 whether such persons have severe and multiple impairments
437	437	8 eligible for home and community-based services.
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439	439	10 If the examiner is a licensed clinical psychologist,
440	440	11 ancillary evaluation of physical impairment, cerebral palsy or
441	441	12 epilepsy must be made by a physician licensed to practice
442	442	13 medicine in all its branches.
443	443	14 Regardless of the discipline of the examiner, ancillary
444	444	15 evaluation of visual impairment must be made by an
445	445	16 ophthalmologist or a licensed optometrist.
446	446	17 Regardless of the discipline of the examiner, ancillary
447	447	18 evaluation of hearing impairment must be made by an
448	448	19 otolaryngologist or an audiologist with a certificate of
449	449	20 clinical competency.
450	450	21 The only exception to the above is in the case of a person
451	451	22 with cerebral palsy or epilepsy who, according to the
452	452	23 eligibility criteria listed below, has multiple impairments
453	453	24 which are only physical and sensory. In such a case, a
454	454	25 physician licensed to practice medicine in all its branches
455	455	26 may serve as the examiner.
456	456
457	457
458	458
459	459
460	460
461	461	SB1651 - 12 - LRB104 08924 KTG 18979 b
462	462
463	463
464	464	SB1651- 13 -LRB104 08924 KTG 18979 b SB1651 - 13 - LRB104 08924 KTG 18979 b
465	465	SB1651 - 13 - LRB104 08924 KTG 18979 b
466	466
467	467
468	468
469	469
470	470
471	471	SB1651 - 13 - LRB104 08924 KTG 18979 b