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A RESOLUTION recognizing May 16, 2024, as Tarlov Cyst Disease Day. 1
WHEREAS, Tarlov cyst disease is classified as a rare disease where cerebrospinal 2
fluid-filled sacs form in the nerve roots near the base of the spine, however these cysts 3
can be present along any part of the spine; and 4
WHEREAS, Tarlov cysts may be known to be asymptomatic, but due to nerve 5
compression and inflation, many cysts may cause bone erosion, radicular pain, weakness, 6
and neurologic dysfunction including bowel or bladder changes. When symptomatic, 7
Tarlov cysts can be progressive, extremely painful, and debilitating, and can often limit 8
the patient’s ability to walk, sit, or stand; and 9
WHEREAS, more women are diagnosed with Tarlov Cyst Disease than men; and 10
WHEREAS, Tarlov Cyst Disease symptoms include but are not limited to, varying 11
levels of intractable pain that are usually defined by cyst location and associated nerve 12
distribution. Progressive nerve compression can lead to neurological damage. Pain often 13
mimics other conditions therefore making this rare disease difficult to diagnose; and 14
WHEREAS, treatment for Tarlov Cyst Disease generally focuses on controlling 15
symptoms, with some patients finding long-term relief through surgical intervention; and 16
WHEREAS, some patients with Tarlov Cyst Disease may also present with 17
additional comorbid conditions such as connective tissue disorders. Patients often remain 18
at an increased risk of developing other conditions and diseases due to the limited 19
invasive medical treatments to provide relief of pain and symptoms. This disease and its 20
symptoms vary widely depending on the severity of each case; and 21
WHEREAS, the need for research on the origins of the disease, noninvasive 22
treatments, and the continued support of neurosurgical procedures is imperative; and 23
WHEREAS, insurance companies often deny patients necessary treatments and 24
surgery under misinformed pretenses that they are experimental, unnecessary, or 25
ineffective; 26
NOW, THEREFORE, 27 UNOFFICIAL COPY 24 RS BR 2478
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Be it resolved by the House of Representatives of the General Assembly of the 1
Commonwealth of Kentucky: 2
Section 1. The House of Representatives hereby recognizes May 16, 2024, as 3
Tarlov Cyst Disease Day to create greater awareness and educate citizens about this 4
disease. 5
Section 2. The Clerk of the House of Representatives is directed to transmit a 6
copy of this Resolution to Representative Kim King. 7