ENROLLED Page 1 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. ACT No. 417 Regular Session, 2013 HOUSE BILL NO. 375 BY REPRESENTATIVE HOFFMANN Prefiled pursuant to Article III, Section 2(A)(4)(b)(i) of the Constitution of Louisiana. AN ACT1 To amend and reenact R.S. 36:4(R), to enact Chapter 4-B of Title 28 of the Louisiana2 Revised Statutes of 1950, to be comprised of R.S. 28:461 through 470, and to repeal3 Part III of Chapter 8 of Title 17 of the Louisiana Revised Statutes of 1950, comprised4 of R.S. 17:1971 through 1979, relative to the early intervention program of this state5 for infants and toddlers with disabilities and their families; to establish the official6 name of such program; to provide for definitions; to provide for duties of the7 Department of Health and Hospitals relative to program administration; to provide8 requirements for a statewide system of services; to provide relative to payment for9 services; to allow for uses of funds for provision of certain services to eligible10 persons; to provide for authority to establish a statewide system of payments; to11 provide for authority to establish a schedule of fees for services provided to certain12 recipients; to create and provide for duties of the Louisiana State Interagency13 Coordinating Council for EarlySteps: Louisiana's Early Intervention Program for14 Infants and Toddlers with Disabilities and their Families; to authorize promulgation15 of rules by the Department of Health and Hospitals; to provide for continuation of16 effectiveness of certain administrative rules; and to provide for related matters.17 Be it enacted by the Legislature of Louisiana:18 Section 1. Chapter 4-B of Title 28 of the Louisiana Revised Statutes of 1950,19 comprised of R.S. 28:461 through 470, is hereby enacted to read as follows:20 ENROLLEDHB NO. 375 Page 2 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. CHAPTER 4-B. EARLYSTEPS: LOUISIANA'S EARLY INTERVENTION1 PROGRAM FOR INFANTS AND TODDLERS WITH DISABILITIES2 AND THEIR FAMILIES3 §461. Findings; policy4 A. The Louisiana Legislature hereby finds that there is an urgent and5 substantial need in this state for all of the following:6 (1) Enhancements in the development of infants and toddlers with7 disabilities in order to minimize their potential for developmental delay.8 (2) Greater recognition of the significant brain development that occurs9 during a child's first three years of life.10 (3) A reduction to the educational costs to our society, including costs borne11 by Louisiana's schools, through minimizing the need for special education and12 related services after infants and toddlers with disabilities reach school age.13 (4) Maximization of the potential for individuals with disabilities to live14 independently in the community.15 (5) Enhancement of families' capacity to meet the special needs of their16 infants and toddlers with disabilities.17 (6) Enhancement of the capacity of state and local agencies and service18 providers to identify, evaluate, and meet the needs of all children; particularly19 minority, low-income, inner-city, and rural children, and infants and toddlers in20 foster care.21 B. In consideration of the needs described in this Section, it is therefore the22 policy of Louisiana:23 (1) To develop and implement a statewide, comprehensive, coordinated,24 multidisciplinary interagency system that provides early intervention services for25 infants and toddlers with disabilities and their families.26 (2) To establish a state system of payments that provides for the collection,27 facilitation, and coordination of payment for early intervention services from federal,28 state, local, and private sources, including public and private insurance coverage and29 cost sharing with those families who qualify.30 ENROLLEDHB NO. 375 Page 3 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (3) To enhance Louisiana's capacity to provide quality early intervention1 services and to expand and improve existing early intervention services currently2 being provided to infants and toddlers with disabilities and their families.3 (4) To encourage Louisiana to expand opportunities for children under three4 years of age who would be at risk of having substantial developmental delay if they5 did not receive early intervention services.6 §462. Definitions7 As used in this Chapter, the following terms shall have the meaning ascribed8 to them in this Section, unless the context clearly indicates otherwise:9 (1) "Cost participation" means fees or other charges through which families10 share in the cost for early intervention services provided pursuant to the provisions11 of this Chapter.12 (2) "Council" means the Louisiana State Interagency Coordinating Council13 for EarlySteps established pursuant to R.S. 28:470.14 (3) "Department" means the Department of Health and Hospitals.15 (4) "Early intervention services" means developmental services that:16 (a) Are provided under public supervision.17 (b) Are provided at no cost except where federal or state law provides for a18 system of payments by families, including but not limited to a schedule providing19 a sliding scale of fees as provided in R.S. 28:469.20 (c) Are designed to meet developmental needs of an infant or toddler with21 a disability, as identified by the individualized family service plan team, in any one22 or more of the following areas:23 (i) Physical development.24 (ii) Cognitive development.25 (iii) Communication development.26 (iv) Social or emotional development.27 (v) Adaptive development.28 (d) Meet the standards of the state of Louisiana.29 (e) Include but are not limited to:30 ENROLLEDHB NO. 375 Page 4 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (i) Family training, counseling, and home visits.1 (ii) Special instruction.2 (iii) Speech-language pathology and audiology services and sign language3 and cued language services.4 (iv) Occupational therapy.5 (v) Physical therapy.6 (vi) Psychological services.7 (vii) Family service coordination services.8 (viii) Medical services only for diagnostic or evaluation purposes.9 (ix) Early identification, screening, and assessment services.10 (x) Health services necessary to enable the infant or toddler to benefit from11 other early intervention services.12 (xi) Social work services.13 (xii) Vision services.14 (xiii) Assistive technology devices and assistive technology services.15 (xiv) Costs associated with transportation that are necessary to enable an16 infant or toddler and the infant's or toddler's family to receive early intervention17 services.18 (f) Are provided by qualified personnel, including:19 (i) Special educators.20 (ii) Speech-language pathologists and audiologists.21 (iii) Occupational therapists.22 (iv) Physical therapists.23 (v) Psychologists.24 (vi) Social workers.25 (vii) Nurses.26 (viii) Registered dieticians.27 (ix) Family therapists.28 (x) Vision specialists, including ophthalmologists and optometrists.29 (xi) Orientation and mobility specialists.30 ENROLLEDHB NO. 375 Page 5 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (xii) Pediatricians and other physicians.1 (g) To the maximum extent appropriate, are provided in natural2 environments, including the home and community settings in which children without3 disabilities participate.4 (h) Are provided in conformity with an individualized family service plan5 adopted in accordance with the provisions of this Chapter.6 (5) "IDEA" means the federal Individuals with Disabilities Education Act.7 (6)(a) "Infant or toddler with a disability " means an individual under three8 years of age who needs early intervention services because of either of the following:9 (i) The individual is experiencing developmental delays, as measured by10 appropriate diagnostic instruments and procedures in the areas of cognitive11 development, physical development, communication development, social or12 emotional development, or adaptive development.13 (ii) The individual has a diagnosed physical or mental condition which has14 a high probability of resulting in developmental delay.15 (b) This definition may also include, at the department's discretion, at-risk16 infants and toddlers as defined in Subparagraph (c) of this Paragraph.17 (c) "At-risk infant or toddler" means an individual under three years of age18 who would be at risk of experiencing a substantial developmental delay if early19 intervention services were not provided to the individual.20 (7) "Parent" means a person who meets the definition of such term in federal21 regulations relative to early intervention programs for infants and toddlers with22 disabilities and their families (34 CFR 303.27).23 §463. Goals24 A. Louisiana shall adopt a policy which incorporates all of the components25 of a statewide system as provided in this Chapter.26 B. The department shall include in its annual application for federal funds27 assurances that the statewide system provided for in this Chapter meets federal28 requirements for such a system and a description of services to be provided in29 accordance with the provisions of this Chapter.30 ENROLLEDHB NO. 375 Page 6 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. §464. Requirements for statewide system1 A statewide comprehensive, coordinated, multidisciplinary, interagency2 system to provide early intervention services for infants and toddlers with disabilities3 and their families shall include, at a minimum, the following components:4 (1) A definition of the term "developmental delay" that will be used by the5 department in carrying out the provisions of this Chapter in order to appropriately6 identify infants and toddlers with disabilities who are in need of services provided7 for in this Chapter.8 (2) A state policy that is in effect and which ensures that appropriate early9 intervention services based on scientific research, to the extent practicable, are10 available to all infants and toddlers with disabilities and their families, including11 Indian infants and toddlers with disabilities and their families residing on a12 reservation geographically located in Louisiana, infants and toddlers with disabilities13 who are homeless and their families, and infants and toddlers with disabilities who14 are wards of the state.15 (3) A timely, comprehensive, multidisciplinary evaluation of the functioning16 of each infant and toddler with a disability in Louisiana and a family-directed17 identification of the needs of each family of such an infant or toddler to assist18 appropriately in the development of the infant or toddler.19 (4) For each infant and toddler with a disability in Louisiana, an20 individualized family service plan developed in accordance with applicable federal21 regulations, including family service coordination in accordance with such service22 plan.23 (5) A comprehensive child-find system, consistent with the federal24 requirements of IDEA-Part B, including a system for making referrals to service25 providers that includes timelines and provides for participation by primary referral26 sources and that ensures rigorous standards for appropriately identifying infants and27 toddlers with disabilities for services pursuant to this Chapter that will reduce the28 need for future services.29 ENROLLEDHB NO. 375 Page 7 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (6) A public awareness program focusing on early identification of infants1 and toddlers with disabilities, including the preparation and dissemination by the2 department to all primary referral sources, especially hospitals and physicians, of3 information for parents, especially for parents with premature infants, or infants with4 other physical risk factors associated with learning or developmental complications,5 on the availability of early intervention services, and procedures for assisting such6 sources in disseminating such information to parents of infants and toddlers with7 disabilities.8 (7) A central directory that includes information on early intervention9 services, resources, and experts available in Louisiana and research and10 demonstration projects being conducted in Louisiana.11 (8)(a) A comprehensive system of personnel development, including the12 training of paraprofessionals and the training of primary referral sources with respect13 to the basic components of early intervention services available in Louisiana, that14 shall include:15 (i) Implementing innovative strategies and activities for the recruitment and16 retention of early education service providers.17 (ii) Promoting the preparation of early intervention providers who are fully18 and appropriately qualified to provide early intervention services.19 (iii) Training personnel to coordinate transition services for infants and20 toddlers with disabilities from an early intervention program provided for in this21 Chapter to preschool or other appropriate services.22 (b) The comprehensive system of personnel development may include:23 (i) Training personnel to work in rural and inner-city areas.24 (ii) Training personnel in the emotional and social development of young25 children.26 (9) Policies and procedures relating to the establishment and maintenance27 of qualifications to ensure that personnel necessary to carry out the provisions of this28 Chapter are appropriately and adequately prepared and trained, including the29 establishment and maintenance of qualifications that are consistent with any30 ENROLLEDHB NO. 375 Page 8 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. state-approved or recognized certification, licensing, registration, or other1 comparable requirements that apply to the area in which such personnel are2 providing early intervention services. Nothing in this Chapter shall be construed to3 prohibit the use of paraprofessionals and assistants who are appropriately trained and4 supervised in accordance with Louisiana law, regulations, or written policy to assist5 in the provision of early intervention services to infants and toddlers with disabilities6 pursuant to the provisions of this Chapter.7 (10) A single line of responsibility in the department for carrying out the8 following functions:9 (a) General administration and supervision of programs and activities10 receiving assistance pursuant to this Chapter, and the monitoring of programs and11 activities used by Louisiana to carry out the provisions of this Chapter, whether or12 not such programs or activities are receiving assistance made available by this13 Chapter, to ensure compliance with this Chapter.14 (b) Identification, coordination, and collection of all available resources15 within Louisiana from federal, state, local, and private sources, including those of16 the system of payments established pursuant to the provisions of R.S. 28:469.17 (c) Assignment of financial responsibility to the appropriate agencies.18 (d) Development of procedures to ensure that services are provided to infants19 and toddlers with disabilities and their families in a timely manner pending the20 resolution of any disputes among public agencies or service providers.21 (e) Resolution of intra-agency and interagency disputes.22 (f) Entry into formal interagency agreements which conform with all23 applicable provisions of Louisiana law that provide the following:24 (i) Definitions of the financial responsibility of each agency for paying for25 early intervention services.26 (ii) Procedures for resolving disputes.27 (iii) Any additional component necessary to ensure meaningful cooperation28 and coordination.29 ENROLLEDHB NO. 375 Page 9 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (11) A policy pertaining to the contracting or making of other arrangements1 with service providers to provide early intervention services in Louisiana, consistent2 with the provisions of this Chapter, including the contents of the application used and3 the conditions of the contract or other arrangements.4 (12) A procedure for securing timely reimbursement of funds.5 (13) Procedural safeguards with respect to programs.6 (14) A system for compiling data in accordance with information and7 reporting requirements of the United States Secretary of Education.8 (15) A state interagency coordinating council that meets the requirements of9 R.S. 28:470.10 (16) Policies and procedures to ensure all of the following:11 (a) To the maximum extent appropriate, early intervention services are12 provided in natural environments.13 (b) The provision of early intervention services for any infant or toddler with14 a disability occurs in a setting other than a natural environment that is most15 appropriate, as determined by the parent and the individualized family service plan16 team, only when early intervention cannot be achieved satisfactorily for the infant17 or toddler in a natural environment.18 §465. Individualized family service plan19 A. Assessment and program development shall provide, at a minimum, for20 each infant and toddler with disabilities and the infant's or toddler's family to receive:21 (1) A multidisciplinary assessment of the unique strengths and needs of the22 infant or toddler and the identification of services appropriate to meet such needs.23 (2) A family-directed assessment of the resources, priorities, and concerns24 of the family and the identification of the supports and services necessary to enhance25 the family's capacity to meet the developmental needs of the infant or toddler.26 (3) A written individualized family service plan developed by a27 multidisciplinary team, including the parents, as required by Subsection D of this28 Section, including a description of the appropriate transition services for the infant29 or toddler.30 ENROLLEDHB NO. 375 Page 10 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. B. The individualized family service plan shall be evaluated annually, and1 the family shall be provided a review of the plan at six-month intervals or more often2 as appropriate based on the infant or toddler and family needs.3 C. The individualized family service plan shall be developed within a4 reasonable time after the assessment required by Paragraph (A)(1) of this Section is5 completed. With the parent's consent, early intervention services may commence6 prior to the completion of the assessment.7 D. The individualized family service plan shall be in writing and contain all8 of the following:9 (1) A statement of the infant's or toddler's present level of physical10 development, cognitive development, communication development, social or11 emotional development, and adaptive development, based on objective criteria.12 (2) A statement of the family's resources, priorities, and concerns relating to13 enhancing the development of the family's infant or toddler with a disability.14 (3) A statement of the measurable results or outcomes expected to be15 achieved for the infant and toddler and the family, including preliteracy and language16 skills, as developmentally appropriate for the child, and the criteria, procedures, and17 timelines used to determine the degree to which progress toward achieving the18 results or outcomes is being made and whether modifications or revisions of the19 results or outcomes or services are necessary.20 (4) A statement of specific early intervention services based on21 peer-reviewed research, to the extent practicable, necessary to meet the unique needs22 of the infant or toddler and the family, including the frequency, intensity, and the23 method of delivering services.24 (5) A statement of the natural environments in which early intervention25 services shall appropriately be provided, including a justification of the extent, if26 any, to which the services will not be provided in a natural environment.27 (6) The projected dates for initiation of services and the anticipated length,28 duration, and frequency of the services.29 ENROLLEDHB NO. 375 Page 11 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (7) The identification of the family service coordinator from the profession1 most immediately relevant to the infant's or toddler's or family's needs or who is2 otherwise qualified to carry out all applicable responsibilities pursuant to the3 provisions of this Chapter who will be responsible for the implementation of the plan4 and coordination with other agencies and persons, including transition services.5 (8) The steps to be taken to support the transition of the toddler with a6 disability to preschool or other appropriate services, including the following steps:7 (a) Notify the local educational agency for the area in which such a child8 resides that the child will shortly reach the age of eligibility for preschool services9 pursuant to IDEA-Part B federal regulations as determined in accordance with10 Louisiana law.11 (b) In the case of a child who may be eligible for such preschool services,12 with the approval of the family of the child, convene a conference among the family13 service coordinator, the family, and the local educational agency at least ninety days14 but no more than six months before the child is eligible for the preschool services,15 to discuss any such services that the child may receive.16 (c) In the case of a child who may not be eligible for such preschool services,17 with the approval of the family, make reasonable efforts to convene a conference18 among the family service coordinator, the family, and providers of other appropriate19 services for children who are not eligible for preschool service pursuant to20 IDEA-Part B federal regulations to discuss the appropriate services that the child21 may receive.22 E. The contents of the individualized family service plan shall be fully23 explained to the parents and informed written consent from the parents shall be24 obtained prior to the provision of early intervention services described in such plan.25 If the parents do not provide consent with respect to a particular early intervention26 service, then only the early intervention services to which consent is obtained shall27 be provided.28 ENROLLEDHB NO. 375 Page 12 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. §466. Uses of funds1 In addition to utilizing funds provided pursuant to the provisions of this2 Chapter to implement and maintain the statewide system, the department shall use3 such funds for the following purposes:4 (1) For direct early intervention services for infants and toddlers with5 disabilities and their families as provided in this Chapter that are not otherwise6 funded through public or private sources.7 (2) To expand and improve upon services for infants and toddlers and their8 families as provided in this Chapter that are otherwise available.9 (3) To strengthen the statewide system by initiating, expanding, or10 improving collaborative efforts related to at-risk infants and toddlers, including11 establishing linkages with appropriate public or private community-based12 organizations, services, and personnel for the purposes of:13 (a) Identifying and evaluating at-risk infants and toddlers.14 (b) Making referrals of the infants and toddlers identified and evaluated15 pursuant to the provisions of Subparagraph (a) of this Paragraph.16 (c) Conducting periodic follow-up on each such referral to determine if the17 status of the infant or toddler involved has changed with respect to the eligibility of18 the infant or toddler for services pursuant to this Chapter.19 §467. Procedural safeguards20 The procedural safeguards which shall be included in a statewide system21 shall provide, at a minimum, the following:22 (1) The timely administrative resolution of complaints by parents. Any party23 aggrieved by the findings and decision regarding an administrative complaint shall24 have the right to bring a civil action with respect to the complaint in any state court25 of competent jurisdiction or in a district court of the United States without regard to26 the amount in controversy. In any action brought pursuant to the provisions of this27 Paragraph, the court shall receive the records of the administrative proceedings, shall28 hear additional evidence at the request of a party, and, basing its decision on the29 ENROLLEDHB NO. 375 Page 13 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. preponderance of the evidence, shall grant such relief as the court determines is1 appropriate.2 (2) The right to confidentiality of personally identifiable information,3 including the right of parents to written notice of and written consent to the exchange4 of such information among agencies consistent with applicable provisions of federal5 and state law.6 (3) The right of the parents to determine whether they, their infant or toddler,7 or other family members will accept or decline any early intervention service8 provided for in this Chapter in accordance with state law without jeopardizing other9 early intervention services provided for in this Chapter.10 (4) The opportunity for parents to examine records relating to assessment,11 screening, eligibility determinations, and the development and implementation of the12 individualized family service plan.13 (5) Procedures to protect the rights of the infant or toddler whenever the14 parents of the infant or toddler are not known or cannot be found or the infant or15 toddler is a ward of the state, including the assignment of an individual, who shall16 not be an employee of the department or any other state agency; and who shall not17 be any person, or any employee of a person, providing early intervention services to18 the infant or toddler or any family member of the infant or toddler to act as a19 surrogate for the parents.20 (6) Written prior notice to the parents of the infant or toddler with a21 disability whenever the state agency or service provider proposes to initiate or22 change or refuses to initiate or change the identification, evaluation, or placement of23 the infant or toddler with a disability, or the provision of appropriate early24 intervention services to the infant or toddler.25 (7) Procedures designed to ensure that the notice required by Paragraph (6)26 of this Section fully informs the parents, in the parents' native language, unless it is27 not feasible to do so, of all procedures available pursuant to this Section.28 (8) The right of parents to use mediation in accordance with Section 615 of29 IDEA.30 ENROLLEDHB NO. 375 Page 14 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (9) During the pendency of any proceeding or action involving a complaint1 by the parents of an infant or toddler with a disability, unless the department and the2 parents otherwise agree, the infant or toddler shall continue to receive the appropriate3 early intervention services currently being provided, or if applying for initial4 services, shall receive the services not in dispute.5 §468. Payor of last resort; nonsubstitution; reduction of other benefits6 A. Funds provided pursuant to this Chapter may not be used to satisfy a7 financial commitment for services that would have been paid for from another public8 or private source, including any medical program administered by the Secretary of9 Defense, but for the enactment of this Chapter; except that whenever considered10 necessary to prevent a delay in the receipt of appropriate early intervention services11 by the infant or toddler or family according to the department's established timeline12 for timely delivery of services, funds provided pursuant to this Chapter may be used13 to pay the provider of services pending reimbursement from the agency that has14 ultimate responsibility for the payment.15 B. Nothing in this Chapter shall be construed to permit the department to16 reduce medical or other assistance available or to alter eligibility pursuant to Title17 V of the Social Security Act, relating to maternal and child health, or Title XIX of18 the Social Security Act, relating to Medicaid for infants or toddlers with disabilities,19 within the state of Louisiana.20 §469. System of payments; authority of the Department of Health and Hospitals;21 cost participation schedule22 A. The department is hereby authorized to establish a statewide system of23 payments in accordance with the provisions of 34 CFR Part 303.24 B.(1) In implementing the system of payments, the department shall25 promulgate rules for the reimbursement of services from all third-party payers, both26 private and public.27 (2) The department or its designee shall seek payment from all third-party28 payers prior to claiming payment from the IDEA-Part C early intervention system29 of this state for services rendered to eligible children.30 ENROLLEDHB NO. 375 Page 15 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (3) The department or its designee may pay directly to a provider any1 required deductible, copayment, coinsurance, or other out-of-pocket expense for a2 child who is eligible for services from the IDEA-Part C early intervention system of3 this state.4 C.(1)(a) The department shall promulgate rules in accordance with the5 Administrative Procedure Act that establish a schedule of monthly cost participation6 for early intervention services per qualifying family. Cost participation shall be7 based on a sliding scale and shall consider elements, including but not limited to8 adjusted gross income, family size, financial hardship, extraordinary expenses9 associated with the child, and Medicaid eligibility. The department shall be subject10 to all of the following limitations and requirements relative to the cost participation11 schedule:12 (i) The department shall utilize the most recent federal poverty guidelines13 issued in the Federal Register by the United States Department of Health and Human14 Services as the basis for determining the income threshold based on family size for15 eligibility for cost participation.16 (ii) The department shall not assess any fee or other charge through the cost17 participation schedule upon a family which has annual income of less than three18 hundred percent of the federal poverty level.19 (iii) In any month, the department shall not assess fees or other charges20 through the cost participation schedule which total more than three percent of the21 monthly income level for a family of four, according to the federal poverty guideline22 schedule.23 (iv) The department shall not assess a fee or other charge through the cost24 participation schedule for any service provided for in Item (c)(ii) of this Paragraph.25 (b) Parents who have public or private insurance and elect not to assign such26 right of recovery or indemnification to the department or choose not to release27 financial information shall be assessed the cost for each early intervention service28 listed on the individualized family service plan according to the most current service29 rate schedule and cost participation schedule promulgated by the department.30 ENROLLEDHB NO. 375 Page 16 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (c) The cost participation schedule promulgated by the department shall1 provide all of the following:2 (i) Procedures by which a service provider may notify the department that3 a family is not complying with the cost participation requirements and procedures4 for suspending services.5 (ii) A statement of assurance that fees are not charged for services which a6 child is otherwise entitled to receive at no cost to parents, including child-find7 activities, evaluation and assessment for eligibility and individualized family service8 planning, service coordination, administrative and coordinative activities related to9 development review, evaluation of individualized family service plans, and10 implementation of procedural safeguards and other components of the statewide11 system provided for in R.S. 28:464.12 (2)(a) The department shall provide prior notification in writing to families13 for use of public or private insurance according to the requirements of 34 CFR14 303.414. Such notification shall include a statement of the general categories of15 costs that the parent would incur and a statement of the process for resolution of a16 dispute regarding decisions related to use of public or private insurance, failure to17 pay for services or the state's determination of a family's ability to pay.18 (b) The department shall ensure that the procedures utilized to resolve such19 disputes will not delay or deny the parents' rights or the child's ability to access20 timely services.21 (3) The aggregate contributions made by the parent shall not exceed the22 aggregate cost of the early intervention services received by the child and family,23 inclusive of any amount received from other sources of payment for a service.24 (4)(a) At least annually, or at any time the department determines is25 warranted, the department shall conduct a reassessment of the parents' financial26 status. A parent may request such reassessment at any time when significant changes27 in financial circumstances may affect the calculation of the cost participation28 amount.29 ENROLLEDHB NO. 375 Page 17 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (b) The department shall not make any administrative decision regarding1 suspension or termination of services for a family prior to the family having been in2 arrears, with respect to fees or other charges assessed pursuant to cost participation,3 for a duration of three months.4 (c) On at least a monthly basis, the department shall send to any family in5 arrears, with respect to fees or other charges assessed pursuant to cost participation,6 notice of the family's right for reconsideration of their financial status and the7 family's right to apply for exemption from cost participation due to financial8 hardship. A copy of the notice shall be sent to the representative and senator in9 whose district the family resides.10 (5) The department shall not limit early intervention services for a child in11 any month if the cost of such services in that month exceeds the maximum monthly12 contribution from the child's family as provided in Item (1)(a)(iii) of this Subsection.13 §470. Louisiana State Interagency Coordinating Council for EarlySteps: Louisiana's14 Early Intervention Program for Infants and Toddlers with Disabilities and15 Their Families16 A. The Louisiana State Interagency Coordinating Council for EarlySteps:17 Louisiana's Early Intervention Program for Infants and Toddlers with Disabilities18 and Their Families is hereby created. All council members shall be appointed by the19 governor who shall also appoint the chairperson. No member of the council who is20 a representative of the department may serve as the chairperson of the council. At21 least twenty percent of the members shall be parents of infants or toddlers with22 disabilities or children with disabilities age twelve or younger, with knowledge of23 or experience with programs for infants and toddlers with disabilities; and at least24 twenty percent of the members shall be public or private providers of early25 intervention services.26 B. The council shall be comprised of the following members:27 (1) At least one member shall be a parent of either of the following:28 (a) An infant or toddler with disabilities.29 (b) A child with disabilities age six or younger.30 ENROLLEDHB NO. 375 Page 18 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (2) At least one member shall be an elected member of the Louisiana1 Legislature.2 (3) At least one member shall be involved in the preparation and training of3 early intervention providers to become qualified to provide services.4 (4) Members in the number of one each from each state agency involved in5 the provision of or payment for early intervention services to infants and toddlers6 with disabilities and their families, including Medicaid, and such members shall have7 sufficient authority to engage in policy planning and implementation on behalf of8 their respective agencies.9 (5) At least one member shall be from the office of the Louisiana10 Department of Education which is responsible for preschool services to children with11 disabilities and who shall have sufficient authority to engage in policy planning and12 implementation on behalf of such agency.13 (6) At least one member shall be from the Louisiana Department of14 Insurance.15 (7) At least one member shall be from a Head Start agency or program.16 (8) At least one member shall be from the Louisiana Department of Children17 and Family Services.18 (9) At least one member designated by the Louisiana Department of19 Education who is responsible for coordination of the education of homeless children20 and youth.21 (10) One member from the Department of Children and Family Services who22 is responsible for foster care.23 (11) One member from the Department of Health and Hospitals, office of24 behavioral health.25 (12) Any other members duly appointed by the governor.26 C. The council shall meet at least quarterly and in such places as it deems27 necessary. The meetings shall be publicly announced and to the extent appropriate,28 open, and accessible to the general public.29 ENROLLEDHB NO. 375 Page 19 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. D.(1) Subject to the approval of the governor, the council may prepare and1 approve a budget using funds provided pursuant to the provisions of this Chapter to2 conduct hearings and forums; to reimburse members of the council for reasonable3 and necessary expenses, including child care for parent representatives, for attending4 council meetings, and performing council duties; and to pay compensation to a5 member of the council if the member is not employed or must forfeit wages from6 other employment when performing official council business.7 (2) The council shall use funds provided pursuant to this Chapter to hire an8 executive director who shall be responsible to and report directly to the council and9 the governor or his designee to carry out its functions pursuant to this Chapter. The10 executive director shall be hired as an unclassified employee of the office of the11 governor. The cost of maintaining the functions of the executive director and council12 shall be specified by an interagency agreement between the department and the13 office of the governor. The council may also use funds provided pursuant to this14 Chapter to obtain the services of other such professional, technical, and clerical15 personnel as may be necessary to carry out its functions as provided in this Chapter.16 E. The council shall have the following duties:17 (1) To advise and assist the department in the performance of responsibilities18 established pursuant to this Chapter, particularly the identification of sources of19 fiscal and other support for services for early intervention programs, assignment of20 financial responsibility to the appropriate agency, and the promotion of interagency21 agreements.22 (2) To advise and assist the department in the preparation of applications and23 amendments thereto.24 (3) To advise and assist the department relative to the transition of toddlers25 with disabilities to preschool and other appropriate services.26 (4) To prepare and submit an annual report to the governor and to the United27 States Secretary of Education on the status of early intervention programs for infants28 and toddlers with disabilities and their families operated within the state.29 ENROLLEDHB NO. 375 Page 20 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. (5) The council may advise appropriate agencies in the state with respect to1 the integration of services for infants and toddlers with disabilities and at-risk infants2 and toddlers and their families, regardless of whether at-risk infants and toddlers are3 eligible for early intervention services in the state.4 (6) To prepare and submit an annual report to the Legislature of Louisiana5 on the status of the early intervention program of this state for infants and toddlers6 with disabilities and their families.7 F. No member of the council shall cast a vote on any matter which would8 provide direct financial benefit to that member or otherwise give the appearance of9 a conflict of interest.10 Section 2. R.S. 36:4(R) is hereby amended and reenacted to read as follows:11 §4. Structure of executive branch of state government12 * * *13 R. The Louisiana State Interagency Coordinating Council for Child Net:14 EarlySteps: Louisiana's Early Intervention Program for Infants and Toddlers with15 Special Needs Disabilities and Their Families (R.S. 17:1979 R.S. 28:470) is placed16 within the office of the governor and shall exercise and perform its powers, duties,17 functions, and responsibilities in the manner provided for agencies transferred under18 the provisions of R.S. 36:802, except that it shall have any other powers, duties,19 functions, and responsibilities specifically provided in R.S. 17:1979 R.S. 28:470.20 * * *21 Section 3. Part III of Chapter 8 of Title 17 of the Louisiana Revised Statutes of 1950,22 comprised of R.S. 17:1971 through 1979, is hereby repealed in its entirety.23 Section 4. All administrative rules relative to ChildNet: Louisiana's Early24 Intervention Program for Infants and Toddlers with Special Needs and Their Families duly25 promulgated by the Department of Education shall remain effective and shall be deemed to26 have been promulgated by the Department of Health and Hospitals until such time as those27 rules may be revised and repromulgated to provide for the EarlySteps program in accordance28 with the provisions of this Act.29 ENROLLEDHB NO. 375 Page 21 of 21 CODING: Words in struck through type are deletions from existing law; words underscored are additions. Section 5. This Act shall become effective upon signature by the governor or, if not1 signed by the governor, upon expiration of the time for bills to become law without signature2 by the governor, as provided by Article III, Section 18 of the Constitution of Louisiana. If3 vetoed by the governor and subsequently approved by the legislature, this Act shall become4 effective on the day following such approval.5 SPEAKER OF THE HOUSE OF REPRESENTATI VES PRESIDENT OF THE SENATE GOVERNOR OF THE STATE OF LOUISIANA APPROVED: