Recognizes the week of April 22nd thru 29th, 2013, as The World Primary Immunodeficiency Week.
Impact
By officially recognizing this week, the resolution seeks to enhance public awareness about primary immunodeficiency diseases, which affects an estimated 250,000 individuals in the United States. The initiative encourages education on the diagnosis, treatment options, and the challenges faced by those living with these conditions. It also highlights the importance of public support to advance research, improve treatment accessibility, and ultimately aim for cures for these disorders.
Summary
Senate Resolution No. 44, sponsored by Senator Walsworth, advocates for the recognition of April 22nd through 29th, 2013, as World Primary Immunodeficiency Week. This resolution aims to bring attention to primary immunodeficiency diseases, a group of disorders where part of the immune system is absent or functioning improperly. The resolution acknowledges the significant impact these diseases have on individuals, the requirement for chronic medical therapies, and the lengthy delay that often occurs before diagnoses are made, which can lead to serious health complications.
Sentiment
The sentiment surrounding SR44 is largely positive, with consensus on the importance of raising awareness about a group of diseases that are often overlooked. Advocates for the resolution support the notion that increased publicity can lead to more understanding and better health outcomes for those affected. The recognition week serves as a platform for raising awareness about the challenges faced by individuals with primary immunodeficiencies and their families.
Contention
Though the resolution promotes awareness and education, it may also spur discussions on healthcare policy and the accessibility of treatments for individuals with primary immunodeficiency diseases. There could be concerns regarding funding for research and necessary therapies, as well as the need for systematic approaches to improve diagnosis times and treatment availability in the healthcare system.
Commends the Jeffrey Modell Diagnostic Center for Primary Immunodeficiences and the Louisiana Primary Immunodeficiency Network for their efforts to improve the recognition diagnosis, treatment and quality of lives of people with primary immunodeficiency diseases.
Commends the Jeffrey Modell Diagnostic Center for Primary Immunodeficiences and the Louisiana Primary Immunodeficiency Network for their efforts to improve the recognition diagnosis, treatment and quality of lives of people with primary immunodeficiency diseases.
Education: curriculum; sex education, instruction in reproductive health, and instruction concerning communicable diseases; limit to grades 4 and above and allow for the provision of certain educational materials to parents and legal guardians. Amends secs. 1169, 1506, 1507 & 1507b of 1976 PA 451 (MCL 380.1169 et seq.).