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Regular Session, 2013 ENROLLED
SENATE RESOLUTION NO. 49
BY SENATOR RISER
A RESOLUTION
To commend the Jeffery Modell Diagnostic Center for Primary Immunodeficiencies and the
Louisiana Primary Immunodeficiency Network for their efforts to improve the
recognition, diagnosis, treatment and quality of lives of people with primary
immunodeficiency diseases.
WHEREAS, it is with great pride that the citizens of Louisiana and the Senate of the
Legislature of Louisiana commend and recognize the extraordinary work being done at the
Jeffrey Modell Diagnostic Center for Primary Immunodeficiencies at the Louisiana State
University Health Sciences Center in New Orleans, as well as the Louisiana Primary
Immunodeficiency Network, for their tremendous efforts improving the recognition,
diagnosis, treatment and quality of lives of people with primary immunodeficiency; and
WHEREAS, primary immunodeficiency diseases are disorders in which part of the
body's immune system is missing or does not function properly; and
WHEREAS, these disorders are caused by intrinsic or genetic defects in the immune
system, many of which require chronic replacement therapy consisting of immune globulin
administration, gamma interferon, antibiotic therapy, bone marrow or stem cell
transplantation, or gene therapy to protect individuals from frequent life-threatening
infections and debilitating illnesses; and
WHEREAS, there can sometimes be a delay of more than twelve years from the
onset of symptoms to diagnosis, resulting in permanent functional impairments; and
WHEREAS, the World Health Organization recognizes more than 150 primary
immunodeficiency diseases; and
WHEREAS, there may be as many as 250,000 people living in the United States
today with diagnosed primary immunodeficiency diseases and many require specialized
health care and treatment; and SR NO. 49 ENROLLED
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WHEREAS, the Jeffery Modell Diagnostic Center for Primary Immunodeficiencies
and the Louisiana Primary Immunodeficiency Network use every opportunity to increase
awareness of these disorders and to educate the public on the diagnosis, treatment and
challenges faced by those who suffer from the disorder and shared by their families; and
WHEREAS, widespread public support is needed to understand primary
immunodeficiency diseases, find cures and provide access to all available life-saving
therapies; and
WHEREAS, the Jeffrey Modell Center for Primary Immunodeficiency in New
Orleans, Louisiana, and the Louisiana Primary Immunodeficiency Network deserve special
recognition for their initiatives to improve the recognition, diagnosis, treatment and quality
of lives of people with primary immunodeficiency diseases.
THEREFORE, BE IT RESOLVED that the Senate of the Legislature of Louisiana
does hereby honor and commend the tremendous work being done at the Jeffery Modell
Center for Primary Immunodeficiencies and the Louisiana Primary Immunodeficiency
Network for their efforts to improve the recognition, diagnosis, treatment and quality of lives
of people with primary immunodeficiency diseases.
BE IT FURTHER RESOLVED that a copy of this Resolution be transmitted to
Jeffrey Modell Diagnostic Center for Primary Immunodeficiencies at the Louisiana State
University Health Sciences Center in New Orleans.
PRESIDENT OF THE SENATE