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Regular Session, 2014 ENROLLED
SENATE RESOLUTION NO. 67
BY SENATOR WALSWORTH
A RESOLUTION
To recognize the week of April 22nd through the 29th, 2014, as The World Primary
Immunodeficiency Week.
WHEREAS, primary immunodeficiency diseases are disorders in which part of the
body's immune system is missing or does not function properly; and
WHEREAS, these disorders are caused by intrinsic or genetic defects in the immune
system, many of which require chronic replacement therapy consisting of immune globulin
administration, gamma interferon, antibiotic therapy, bone marrow or stem cell
transplantation, or gene therapy to protect individuals from frequent life-threatening
infections and debilitating illnesses; and
WHEREAS, there can sometimes be a delay of more than twelve years from the
onset of symptoms to diagnosis, resulting in permanent functional impairments; and
WHEREAS, the World Health Organization recognizes more than 150 primary
immunodeficiency diseases; and
WHEREAS, there may be as many as 250,000 people living in the United States
today with diagnosed primary immunodeficiency diseases and many require specialized
health care and treatment; and
WHEREAS, primary immunodeficiency awareness week is an opportunity to
increase awareness of these disorders and to educate the public on the diagnosis, treatment,
and challenges faced by those who suffer from the disorder and shared by their families; and
WHEREAS, widespread public support is needed to understand primary immune
deficiency diseases, find cures, and provide access to all available life-saving therapies; and
WHEREAS, the Jeffrey Modell Center for Primary Immunodeficiency in New
Orleans, Louisiana, and the Louisiana Primary Immunodeficiency Network (LAPIN) deserve
special recognition for their initiatives to improve the recognition, diagnosis, treatment, and
quality of lives of people with primary immunodeficiency diseases. SR NO. 67 ENROLLED
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THEREFORE, BE IT RESOLVED that the Senate of the Legislature of Louisiana
does hereby recognize the week of April 22nd through 29th, 2014, as The World Primary
Immunodeficiency Week.
BE IT FURTHER RESOLVED that a copy of this resolution be transmitted to the
Jeffrey Modell Center for Primary Immunodeficiencies and the Louisiana Primary
Immunodeficiency Network at the Louisiana State University Health Sciences Center in
New Orleans, Louisiana.
PRESIDENT OF THE SENATE