ENROLLED
ACT No. 507
2016 Regular Session
HOUSE BILL NO. 283
BY REPRESENTATIVES EMERSON AND DUSTIN MILLER
1 AN ACT
2 To amend and reenact R.S. 40:1081.2(A)(1) and to enact R.S. 40:1081.11, relative to
3 newborn screening; to require all newborns to be screened for Krabbe disease; to
4 make technical changes; to require information on Krabbe disease to be posted on
5 the Department of Health and Hospitals' website; and to provide for related matters.
6 Be it enacted by the Legislature of Louisiana:
7 Section 1. R.S. 40:1081.2(A)(1) is hereby amended and reenacted and R.S.
8 40:1081.11 is hereby enacted to read as follows:
9 §1081.2. Tests
10 A.(1) The physician attending a newborn child, or the person attending a
11 newborn child who was not attended by a physician, shall cause the child to be
12 subjected to tests for phenylketonuria, congenital hypothyroidism, sickle cell
13 diseases, biotinidase deficiency, congenital adrenal hyperplasia, carnitine uptake
14 defect, long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency, medium-chain
15 acyl-CoA dehydrogenase deficiency, trifunctional protein deficiency, very long-
16 chain acyl-CoA dehydrogenase deficiency, glutaric acidemia type I, 3-hydroxy-3-
17 methylglutaryl-CoA lyase deficiency, isovaleric acidemia, 3-methylcrotonyl-CoA
18 carboxylase deficiency, methylmalonic acidemia (CBL A,B), beta ketothiolase,
19 methylmalonic acidemia (MUT), propionic acidemia, multiple carboxylase
20 deficiency, argininosuccinate acidemia, citrullinemia type I, homocystinuria, maple
21 syrup urine disease, tyrosinemia type I, cystic fibrosis, Krabbe disease, and other
22 genetic conditions that have been approved by the Department of Health and
23 Hospitals; however, no such tests shall be given to any child whose parents object
24 thereto. Effective July 1, 2007, cystic fibrosis shall be included in the tests that the
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1 newborn child shall be subject to by the physician attending the newborn child or the
2 person attending the newborn child who was not attended by a physician.
3 * * *
4 §1081.11. Krabbe disease; public information
5 A. The Department of Health and Hospitals shall develop and maintain
6 information regarding Krabbe disease on its website.
7 B. The information provided by the department pursuant to this Section shall
8 include, at a minimum, all of the following:
9 (1) An explanation of Krabbe disease symptoms, diagnosis, and treatment
10 options.
11 (2) Information on relevant state agency and nonprofit resources, parent
12 support groups, and available Medicaid waiver services.
13 Section 2. This Act shall be known and may be cited as "The Anniston Bazar Act".
14 Section 3. R.S. 40:1081.2(A)(1) as enacted by this Act shall be effective subject to
15 specific appropriation by the legislature.
SPEAKER OF THE HOUSE OF REPRESENTATIVES
PRESIDENT OF THE SENATE
GOVERNOR OF THE STATE OF LOUISIANA
APPROVED:
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