ENROLLED
2016 Regular Session
HOUSE RESOLUTION NO. 103
BY REPRESENTATIVE EMERSON
A RESOLUTION
To designate Wednesday, April 27, 2016, as Krabbe Disease Awareness Day at the state
capitol.
WHEREAS, Krabbe Disease is a genetic disorder that affects the central and
peripheral nervous systems; and
WHEREAS, those affected by Krabbe Disease typically appear healthy until onset
or when an individual experiences symptoms of the disease; the onset of the disease can vary
from the first few weeks or months of life into adulthood; and
WHEREAS, those who suffer from Krabbe Disease have a deficiency of an
important enzyme called Galactosylceramidase; and
WHEREAS, Hunter's Hope is an organization that raises awareness for the disease
and provides hope to suffering children and their families; and
WHEREAS, Anniston Bazar, a two-year-old girl from Louisiana, is bravely battling
Krabbe Disease; her parents are Corey and Reesa Bazar, and they established Always
Anniston to spread awareness for the disease; and
WHEREAS, Anniston and her parents deserve honor and recognition for the
dedication that they have shown towards a future free of Krabbe Disease.
THEREFORE, BE IT RESOLVED that the House of Representatives of the
Legislature of Louisiana does hereby designate Wednesday, April 27, 2016, as Krabbe
Disease Awareness Day at the state capitol and does hereby encourage all Louisianans to
learn more about Krabbe Disease and what can be done to support individuals with Krabbe
Disease and their families.
Page 1 of 2 HR NO. 103 ENROLLED
BE IT FURTHER RESOLVED that a suitable copy of this Resolution be transmitted
to Corey and Reesa Bazar.
SPEAKER OF THE HOUSE OF REPRESENTATIVES
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