HLS 23RS-404 ORIGINAL 2023 Regular Session HOUSE BILL NO. 122 BY REPRESENTATIVE HORTON Prefiled pursuant to Article III, Section 2(A)(4)(b)(i) of the Constitution of Louisiana. CHILDREN/NEWBORNS: Provides relative to the mandatory screening of all newborns for early detection of the cytomegalovirus (CMV) 1 AN ACT 2To amend and reenact R.S. 40:1081.2(A)(1), relative to the state's newborn screening panel; 3 to add cytomegalovirus to the state's newborn screening panel; and to provide for 4 related matters. 5Be it enacted by the Legislature of Louisiana: 6 Section 1. R.S. 40:1081.2(A)(1) is hereby amended and reenacted to read as follows: 7 ยง1081.2. Tests 8 A.(1) The physician attending a newborn child, or the person attending a 9 newborn child who was not attended by a physician, shall cause the child to be 10 subjected to tests for phenylketonuria, congenital hypothyroidism, sickle cell 11 diseases, biotinidase deficiency, congenital adrenal hyperplasia, carnitine uptake 12 defect, long-chain 3-hydroxyacyl-CoA dehydrogenase deficiency, medium-chain 13 acyl-CoA dehydrogenase deficiency, trifunctional protein deficiency, very long- 14 chain acyl-CoA dehydrogenase deficiency, glutaric acidemia type I, 3-hydroxy-3- 15 methylglutaryl-CoA lyase deficiency, isovaleric acidemia, 3-methylcrotonyl-CoA 16 carboxylase deficiency, methylmalonic acidemia (CBL A,B), beta ketothiolase, 17 methylmalonic acidemia (MUT), propionic acidemia, multiple carboxylase 18 deficiency, argininosuccinate acidemia, citrullinemia type I, homocystinuria, maple 19 syrup urine disease, tyrosinemia type I, mucopolysaccharidosis type I (MPS I), 20 glycogen storage disorder type II (Pompe), cytomegalovirus (CMV), and other Page 1 of 2 CODING: Words in struck through type are deletions from existing law; words underscored are additions. HLS 23RS-404 ORIGINAL HB NO. 122 1 genetic conditions that have been approved by the Louisiana Department of Health; 2 however, no such tests shall be given to any child whose parents object thereto. 3 Effective July 1, 2007, cystic fibrosis shall be included in the tests that the newborn 4 child shall be subject to by the physician attending the newborn child or the person 5 attending the newborn child who was not attended by a physician. 6 * * * 7 Section 2. This Act shall be known and may be cited as "Journie's Law". DIGEST The digest printed below was prepared by House Legislative Services. It constitutes no part of the legislative instrument. The keyword, one-liner, abstract, and digest do not constitute part of the law or proof or indicia of legislative intent. [R.S. 1:13(B) and 24:177(E)] HB 122 Original 2023 Regular Session Horton Abstract: Provides that cytomegalovirus (CMV) shall be added to the list of genetic conditions tested by physicians attending newborn children. Present law provides that a physician attending to the care of a newborn child shall cause the child to be subjected to a list of genetic conditions provided for in present law that has been approved by the La. Dept. of Health (LDH). Present law further provides that the genetic conditions shall be tested upon approval by the newborn child's parents. Proposed law retains present law and adds cytomegalovirus (CMV) to the list of genetic conditions to be approved and tested by LDH. Proposed law shall be known and may be cited as "Journie's Law". (Amends R.S. 40:1081.2(A)(1)) Page 2 of 2 CODING: Words in struck through type are deletions from existing law; words underscored are additions.