ENROLLED
2023 Regular Session
HOUSE RESOLUTION NO. 141
BY REPRESENTATIVE HILFERTY
A RESOLUTION
To recognize May 2023 as Ehlers-Danlos Syndromes Awareness Month.
WHEREAS, Ehlers-Danlos Syndromes (EDS) are a group of disorders that affect the
body's connective tissue including the skin, joints, blood vessels, gut, and many other organs
and tissues; and
WHEREAS, EDS affects more than one in five thousand people of all ages, races,
and genders and is a chronic, lifelong condition; and
WHEREAS, Hypermobility Spectrum Disorder (HSD) is diagnosed when the
musculoskeletal complications of joint hypermobility and joint stability (ease of injury, joint
pain, and dislocations) arise in a person who does not have the defining features of another
underlying syndrome; and
WHEREAS, a network of EDS and HSD support groups help connect those
managing life with these conditions as well as better informing the healthcare community
and the public; and
WHEREAS, early and accurate diagnosis can provide the opportunity to create
life-saving medical plans and improved quality of life; and
WHEREAS, there is currently no treatment or cure for EDS or HSD; and
WHEREAS, further medical research and awareness can bring hope for treatment
and a cure.
THEREFORE, BE IT RESOLVED that the House of Representatives of the
Legislature of Louisiana does hereby recognize May 2023 as Ehlers-Danlos Syndrome
Awareness month.
SPEAKER OF THE HOUSE OF REPRESENTATIVES
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