SSHB883 4465 5142
HOUSE SUMMARY OF SENATE AMENDMENTS
HB 883 2024 Regular Session Phelps
HEALTH CARE/FACILITIES: Allows the provision of data relative to sickle cell disease
Synopsis of Senate Amendments
1.Removes the requirement that the La. Dept. of Health use existing software to
expedite the transfer of patient information contemplated by proposed law.
2.Changes a party to the agreement to transfer patient contact information
described in proposed law from a healthcare provider to a sickle cell clinic.
3.Adds that a school nurse in public schools, including charter schools, shall
participate in a one hour training program on caring for students with sickle cell
disease.
4.Adds that the La. Sickle Cell Commission shall develop the training materials
to be used in the training required by proposed law.
Digest of Bill as Finally Passed by Senate
Proposed law requires that school nurses in public schools, including charter schools,
participate in a one hour, in-service training program on caring for students with sickle cell
disease.
Proposed law provides that the training program required by proposed law shall include
information on all of the following:
(1)The medical needs of students with sickle cell disease.
(2)The possible accommodations a student with sickle cell disease may require.
(3)The methods required to communicate with parents and other school personnel to
support positive academic outcomes for students with sickle cell disease.
Proposed law requires the La. Sickle Cell Commission to develop instructional materials,
which shall be made available on the La. St. Bd. of Nursing's website.
Present law establishes a registry to record data related to individuals diagnosed with sickle
cell disease in this state.
Present law requires a healthcare provider to provide the La. Dept. of Health with patient
data when an individual is diagnosed with sickle cell disease.
Present law directs the La. Dept. of Health (LDH) to promulgate rules to govern the
collection of data.
Proposed law directs LDH to facilitate an agreement between sickle cell clinics and sickle
cell associations to communicate patient information.
Proposed law directs LDH to utilize existing software to expedite the communication
between healthcare providers and the sickle cell associations.
(Amends R.S. 40:1125.13; Adds R.S. 17:436.5 and 3996(B)(82))
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