Us Congress 2023-2024 Regular Session

Us Congress House Bill HR404

Introduced
5/15/23  
Refer
5/15/23  

Caption

Expressing support for the designation of May 15, 2023, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

Impact

HR404 aims to create a national platform for educating the public and advocating for those affected by PWS, emphasizing the importance of early diagnosis and intervention. Recognizing 'Prader-Willi Syndrome Awareness Day' is a symbolic act that can lead to increased funding for research and better support services for families. Moreover, the resolution acknowledges the vital role of organizations, such as the Prader-Willi Syndrome Association, in supporting advocacy and care efforts.

Summary

House Resolution 404 expresses support for the designation of May 15, 2023, as 'Prader-Willi Syndrome Awareness Day.' This resolution aims to raise awareness and promote research on Prader-Willi Syndrome (PWS), a rare genetic disorder characterized by insatiable appetite and severe obesity, affecting approximately 10,000 to 20,000 individuals in the United States. The resolution highlights the need for greater awareness, research, and effective treatment options for individuals suffering from PWS and also acknowledges the challenges associated with obtaining a diagnosis and accessing care.

Contention

While the resolution itself is largely celebratory, it raises important discussions about the sufficiency of current resources and services for individuals with PWS. Stakeholders may debate the effectiveness of awareness days in leading to tangible improvements in healthcare outcomes for those with rare genetic disorders. There may also be discussions surrounding the funding of research initiatives that could provide new treatments or therapies for the condition, given that no known cure exists for PWS.

Companion Bills

No companion bills found.

Previously Filed As

US HR253

Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

US HCR1008

Raise awareness for Prader-Willi Syndrome; designating the month of May as Prader-Willi Syndrome Awareness Month.

US HCR1008

Raise awareness for Prader-Willi Syndrome; designating the month of May as Prader-Willi Syndrome Awareness Month.

US HR678

Recognizing the seriousness of polycystic ovary syndrome (PCOS) and expressing support for the designation of the month of September 2023 as "PCOS Awareness Month".

US HR276

Expressing support for the designation of April 5, 2023, as "Barth Syndrome Awareness Day".

US HR209

Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".

US HR1025

Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".

US HR361

Expressing support for the designation of May 7 each year as "Brain Donation Awareness Day".

US SR28

Relative to Prader-Willi Syndrome Awareness Month.

US HR372

Expressing support for the designation of May 2023 as "Mental Health Awareness Month".

Similar Bills

No similar bills found.