Expressing support for the designation of April 5, 2024, as "Barth Syndrome Awareness Day".
Expressing support for the designation of April 5, 2023, as "Barth Syndrome Awareness Day".
Expressing support for the designation of February 29, 2024, as "Rare Disease Day".
Expressing support for the designation of May 15, 2023, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.
Expressing support for the designation of February 28, 2023, as "Rare Disease Day".
Expressing support for the designation of July 17, 2024, as "Glioblastoma Awareness Day".
Expressing support for the designation of October 2023 as "National Down Syndrome Awareness Month".
Expressing support for designation of the month of April 2024 as "Parkinson's Awareness Month".
Supporting the designation of October 23, 2023, as "AADC Deficiency Awareness Day".
Expressing support for the designation of June 20, 2024, as "World FSHD Day".