New York Senate Bill J00809

New York 2025-2026 Regular Session

• Introduced: 4/15/25
• Refer: 4/15/25
• Report Pass: 4/29/25
• Passed: 4/29/25

Caption

Memorializing Governor Kathy Hochul to proclaim May 15, 2025, as Prader-Willi Syndrome Awareness Day in the State of New York

Impact

The proclamation of Prader-Willi Syndrome Awareness Day may bolster initiatives related to the condition, including increased research funding and improved access to treatment and support services. Since the state recognized Prader-Willi syndrome as a developmental disability in 2017, this resolution emphasizes the importance of early diagnosis and intervention, which can significantly improve the quality of life for affected individuals. By promoting awareness, the resolution intends to foster collaboration among healthcare providers, families, and advocacy organizations, ensuring that better resources and education are made available for those affected.

Summary

Senate Resolution No. 809, introduced by Senator Ashby, seeks to memorialize Governor Kathy Hochul to proclaim May 15, 2025, as Prader-Willi Syndrome Awareness Day in the State of New York. The resolution aims to increase public awareness about Prader-Willi syndrome, a genetic disorder characterized by an insatiable appetite, leading often to life-threatening obesity and various cognitive and behavioral challenges. By dedicating a day to this cause, the resolution is intended to spotlight the needs of individuals affected by the syndrome and to encourage support and understanding from the general public.

Contention

Although the resolution is mostly a gesture of support, it also highlights ongoing conversations about the need for more effective treatments and the challenges faced by families living with this disorder. Advocates for individuals with Prader-Willi syndrome emphasize that increased awareness can lead to more comprehensive care, which is crucial given the complexities surrounding the syndrome. While there are no known oppositions recorded against the resolution, discussions around resource allocation and the adequacy of current healthcare provisions for developmental disabilities might arise as a result of the heightened awareness the day will bring.