New York 2025-2026 Regular Session

New York Senate Bill S07431

Introduced
4/16/25  

Caption

Establishes a state frontotemporal degeneration advisory committee which shall be charged with recommending to the department long range objectives, goals and priorities, and provide advice on the planning, coordination and development of needed services.

Impact

The bill mandates that the advisory committee will recommend long-range objectives and priorities for managing FTD in the state. It requires the committee to focus on various aspects such as diagnosis rates, advancements in treatment options, and the accessibility of healthcare resources. Importantly, the committee will collect data on demographic factors and regional disparities in service availability, contributing to a more informed and tailored healthcare approach for affected individuals.

Summary

Senate Bill S07431 proposes the establishment of a Frontotemporal Degeneration Advisory Committee within the New York State health framework. This initiative aims to address the specific needs and challenges associated with frontotemporal degeneration (FTD), a group of disorders characterized by progressive degeneration of the frontal and temporal lobes of the brain. By creating this committee, the bill intends to enhance the planning and coordination of health services aimed at serving patients diagnosed with FTD and their families.

Contention

While the bill aims to improve support for individuals suffering from frontotemporal degeneration, it may face scrutiny regarding the allocation of resources and the effectiveness of the advisory committee's recommendations. Critics may question whether sufficient measures will be taken to address the burdens faced by patients and their families or whether the committee will have adequate authority and resources to implement necessary changes. The effectiveness of the committee's work in influencing state health policy and service availability for FTD is yet to be fully determined.

Companion Bills

NY A08243

Same As Establishes a state frontotemporal degeneration advisory committee which shall be charged with recommending to the department long range objectives, goals and priorities, and provide advice on the planning, coordination and development of needed services.

Previously Filed As

NY S07874

Establishes a state frontotemporal degeneration registry; designates frontotemporal degeneration and related dementias as diseases required to be reported in the state; establishes a frontotemporal degeneration registry advisory committee to assist in the development and implementation of the registry; allows a patient to opt out of participation in the registry; requires annual reports to the legislature and governor on the incidents and prevalence of frontotemporal degeneration in the state by county; requires the department of health to create and maintain a webpage.

NY A09938

Establishes a state frontotemporal degeneration registry; designates frontotemporal degeneration and related dementias as diseases required to be reported in the state; establishes a frontotemporal degeneration registry advisory committee to assist in the development and implementation of the registry; allows a patient to opt out of participation in the registry; requires annual reports to the legislature and governor on the incidents and prevalence of frontotemporal degeneration in the state by county; requires the department of health to create and maintain a webpage.

NY S09672

Updates the membership, powers, duties and procedures of the commission on forensic science; establishes the scientific advisory committee, the social justice, ethics, and equity assessment committee and the forensic analyst license advisory committee; makes conforming changes.

NY A06543

Renames the developmental disabilities planning council to be the state council on developmental disabilities; changes membership.

NY S07094

Renames the developmental disabilities planning council to be the state council on developmental disabilities; changes membership.

NY A05516

Provides that a community which is underbanked shall be criteria for the establishment of banking development districts.

NY S06270

Provides that a community which is underbanked shall be criteria for the establishment of banking development districts.

NY A10705

Designates the Nassau-Suffolk transportation coordinating committee as the metropolitan planning organization for Long Island; provides for the withdrawal of the Nassau-Suffolk coordinating committee from the New York Metropolitan transportation council.

NY S09918

Designates the Nassau-Suffolk transportation coordinating committee as the metropolitan planning organization for Long Island; provides for the withdrawal of the Nassau-Suffolk coordinating committee from the New York Metropolitan transportation council.

NY J02122

Memorializing Governor Kathy Hochul to proclaim September 22-29, 2024, as Frontotemporal Degeneration Awareness Week in the State of New York

Similar Bills

NY A08243

Establishes a state frontotemporal degeneration advisory committee which shall be charged with recommending to the department long range objectives, goals and priorities, and provide advice on the planning, coordination and development of needed services.

CA SCR116

Frontotemporal Degeneration Awareness Week.

CA SCR80

Frontotemporal Degeneration Awareness Week.

OK HR1020

Resolution; Frontotemporal Dementia Awareness Week.

NJ SJR142

Designates last full week of September of each year as "Frontotemporal Degeneration Awareness Week" in NJ.

NJ AJR201

Designates last full week of September of each year as "Frontotemporal Degeneration Awareness Week" in NJ.

TN HJR0680

A RESOLUTION to honor and recognize Rex Teixeira and the Association for Frontotemporal Degeneration on their efforts to raise awareness of Frontotemporal Degeneration.

VA HJR551

Commending the Edwards family.