1 of 1 HOUSE DOCKET, NO. 3278 FILED ON: 1/20/2023 HOUSE . . . . . . . . . . . . . . . No. 201 The Commonwealth of Massachusetts _________________ PRESENTED BY: Christopher M. Markey _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act relative to supported decision making. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :DATE ADDED:Christopher M. Markey9th Bristol1/20/2023Vanna Howard17th Middlesex2/2/2023Marc T. Lombardo22nd Middlesex2/23/2023 1 of 8 HOUSE DOCKET, NO. 3278 FILED ON: 1/20/2023 HOUSE . . . . . . . . . . . . . . . No. 201 By Representative Markey of Dartmouth, a petition (accompanied by bill, House, No. 201) of Christopher M. Markey, Vanna Howard and Marc T. Lombardo relative to supported decision- making agreements. Children, Families and Persons with Disabilities. [SIMILAR MATTER FILED IN PREVIOUS SESSION SEE HOUSE, NO. 272 OF 2021-2022.] The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Third General Court (2023-2024) _______________ An Act relative to supported decision making. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 SECTION 1. Chapter 190B is hereby amended, after section 5-507, by inserting the 2following new section:- 3 Section 5-508. Supported Decision-Making Agreements 4 (a) As used in this section, the following words shall have the following meanings unless 5the context clearly requires otherwise:- 6 "Adult" means an individual 18 years of age or older. 7 “Coercion” means use of force or threats to persuade someone to do something. 2 of 8 8 "Decision-maker" means an adult who seeks to execute, or has executed, a supported 9decision-making agreement with one or more supporters under this chapter. 10 "Supported decision-making" means the process of supporting and accommodating the 11decision-maker, without impeding the self-determination of the decision-maker, in making life 12decisions, including, but not limited to, decisions related to where the decision-maker wants to 13live; the services, supports, financial decisions, and medical care the decision-maker wants to 14receive; whom the decision-maker wants to live with; or where the decision-maker wants to 15work. 16 "Supported decision-making agreement" is an agreement a decision-maker enters into 17with one or more supporters under this section to use supported decision-making. 18 "Supporter" means an adult who has entered into a supported decision-making agreement 19with a decision-maker. 20 (b) A decision-maker may voluntarily, without undue influence or coercion, enter into a 21supported decision-making agreement with a supporter or supporters. The decision-maker may 22change or terminate a supported decision-making agreement at any time, per the procedure(s) 23outlines in section (e). 24 (c) Except as limited by a supported decision-making agreement, a supporter may 25provide to the decision-maker the following decision-making assistance with the decision- 26maker’s affairs with the consent of the individual with the disability: 27 (1) assisting with making decisions, communicating decisions, and understanding 28information about, options for, the responsibilities of, and the consequences of decisions; 3 of 8 29 (2) accessing, obtaining, and understanding information that is relevant to decisions 30necessary for the decision-maker to manage his or her affairs, including medical, psychological, 31financial, and educational information; and medical and other records; 32 (3) ascertaining the wishes and decisions of the decision-maker; assisting in 33communicating those wishes and decisions to other persons; and advocating to ensure their 34implementation; and 35 (4) accompanying the decision-maker and participating in discussions with other persons 36when the decision-maker is making decisions or attempting to obtain information for decisions. 37 (d) A supporter may exercise only the authority granted to the supporter in the supported 38decision-making agreement. 39 (e) The supported decision-making agreement shall remain in effect until it is revoked, 40suspended, or terminated in accordance with the provision of this section. 41 (1) If the agreement sets forth a termination date, the supported decision-making 42agreement shall not be effective after the termination date. 43 (2) The decision-maker may revoke a supported decision-making agreement by notifying 44the supporters orally or in writing or by any other act evidencing a specific intent to revoke the 45agreement. 46 (3) Supporter may terminate participation in the agreement by written or oral notice to the 47decision-maker and the remaining supporters. If the supported decision-making agreement 48includes more than one supporter, the supported decision-making agreement shall survive for 4 of 8 49supporters who have not terminated their participation unless it is otherwise terminated or 50revoked in a manner set forth by this section. 51 (4) The disabled persons protection commission, an elder protective services agency, the 52department of developmental services, the department of mental health, or an interested person 53may petition the probate and family court to terminate, revoke, or suspend the operation of a 54supported decision-making agreement. If, after notice to decision-maker and a hearing at which 55the decision-maker shall have the right to be present and to be heard, the Court finds by clear and 56convincing evidence that that the decision-maker has been abused, neglected, or exploited by a 57supporter or supporters, the court may revoke, terminate, or suspend for a time to be determined 58by the court, the supported decision-making agreement. The agreement may survive if one or 59more supporters who were not found to have abused, neglected, or exploited the adult with a 60disability continues to be willing to serve as a supporter and the decision-maker agrees. If the 61decision-maker is indigent, the court shall forthwith appoint counsel for the decision-maker upon 62the filing of any petition under this paragraph. 63 (f)(1) A supporter is only authorized to assist the decision-maker in accessing, collecting, 64or obtaining information that is relevant to a decision authorized under the supported decision- 65making agreement and to which the decision-maker agrees that the supporter should have access. 66 (2) If a supporter assists the decision-maker in accessing, collecting, or obtaining 67personal information, including protected health information under the Health Insurance 68Portability and Accountability Act of 1996 (Pub. L. No. 104-191) or educational records under 69the Family Educational Rights and Privacy Act of 1974 (20 U.S.C. section 1232g), the supporter 5 of 8 70shall ensure the information is kept privileged and confidential, as applicable, and is subject to 71neither unauthorized access, nor use, nor disclosure. 72 (g) The existence of a supported decision-making agreement does not preclude a 73decision-maker from seeking personal information without the assistance of a supporter. 74 (h) A supported decision-making agreement must be signed voluntarily, without coercion 75or undue influence, by the decision-maker and the supporter or supporters in the presence of two 76or more witnesses who are at least 18 years of age, and unrelated to the decision-maker and who 77are not supporters of the decision-maker, or a notary public. 78 (i)(1) A supported decision-making agreement is intended to be personalized by the 79decision-maker to reflect his or her personal circumstances. 80 (2) A supported decision-making agreement shall be in writing and shall: 81 (i) identify the decision-maker and the supporters; 82 (ii) describe the kinds of decisions with which the decision-maker wants assistance from 83each respective supporter; 84 (iii) indicate that the supporters agree to assist the decision-maker to make decisions, to 85respect the decision-maker's decisions, and, if necessary, to assist the decision-maker to 86communicate decisions, and, further, agree not to make decisions for the decision-maker; 87 (iv) indicate that the decision-maker may change, amend, or revoke the supported 88decision-making agreement at any time for any reason subject to the requirements of section (g); 6 of 8 89 (v) include a statement that if any person suspects the decision-maker has been abused, 90neglected or exploited by a supporter or supporters, the person may report the suspicion to, as 91applicable, the disabled persons protection commission or an elder protective services agency 92and shall include the contact information for the disabled persons protection commission, the 93elder abuse hot line, and, the human rights officer of any program providing services to the 94decision-maker; and 95 (vi) be signed by the decision-maker and the supporters, the decision-maker’s signature 96to be attested to by a notary public or, in the alternative, by two witnesses who are unrelated to 97the decision-maker and who are not supporters of the decision-making. 98 (j)(A) A person who receives the original or a copy of a supported decision-making 99agreement shall rely on the agreement and recognize a decision or request made or 100communicated with the decision-making assistance of a supporter under this chapter as the 101decision or request of the decision-maker. 102 (B) A person who, in good faith, acts in reliance on an authorization in a supported 103decision-making agreement is not subject to civil or criminal liability or to discipline for 104unprofessional conduct for relying on a decision made in accordance with a supported decision- 105making agreement. 106 (k) Execution of a supported decision-making agreement may not be a condition of 107participation in any activity, service, or program. 108 (l) If a person who receives a copy of a supported decision-making agreement or is aware 109of the existence of a supported decision-making agreement has cause to believe that the decision- 110maker is being abused, neglected, or exploited by the supporter, the person may report the 7 of 8 111alleged abuse, neglect, or exploitation to the disabled persons protection commission in 112accordance with chapter 19D or the Elder Abuse Prevention Hotline in accordance with chapter 11319C. 114 (m) Nothing in this section shall be interpreted to limit or restrict any individual’s right to 115execute a health care proxy pursuant to chapter 201D or a power of attorney pursuant to sections 1165-501 through 5-507 of chapter 190B. 117 SECTION 2. Chapter 190B of the General Laws is hereby amended in section 5-303, 118paragraph (b)(10) by inserting at the end thereof the following:- 119 whether alternatives to guardianship and available supports and services to avoid 120guardianship, including a supported decision-making agreement, were considered; and why such 121alternatives to guardianship and supports and services are not feasible or would not avoid the 122need for guardianship. 123 SECTION 3. Chapter 6A of the General Laws is hereby amended by inserting after 124section 16F the following section:- 125 Section 16F ½. The executive office of health and human services shall establish a 126training program on supported decision-making. The training program shall include instruction 127by state agencies including the department of developmental services, the department of mental 128health, the executive office of elder affairs and a non-profit corporation or corporations. 129 The training program on supported decision-making shall be provided to a supporter or a 130decision-maker receiving decision-making assistance, and shall include the rights and obligations 131contained in section 5-508 of chapter 190B. The training shall be in any format accessible to the 8 of 8 132individuals receiving such training. Such training shall include trainers with disabilities and 133adults who receive or might receive supported decision-making assistance. 134 SECTION 4. Section 2 of chapter 71B of the General Laws is hereby amended by 135inserting at the thereof the following:- 136 The department of elementary and secondary education shall promulgate regulations 137requiring school districts and charter schools to be part of the transitional planning process to 138inform students and families of the availability of supported decision-making as an alternative to 139guardianship in such cases where adult guardianship is being contemplated. 140 SECTION 5. Section 3 of chapter 71B of the General Laws is hereby amended by 141inserting the following at the end thereof:- 142 For any student for whom adult guardianship is being considered at the Individual 143Educational Program (IEP) team meeting, the IEP team shall inform the student and family (or 144guardian if there is a guardian of the minor) at the earliest possible meeting of the availability of 145supported decision-making as an alternative to guardianship. The IEP team shall assist the child 146and his or her family or minor guardian in locating resources to assist in establishing a supported 147decision-making plan if the child and family are interested in supported decision-making. If a 148supported decision-making agreement is executed, the IEP team shall abide by decisions made 149by the student pursuant to the supported decision-making agreement. 150 SECTION 6. This act shall take effect six months from the date of its passage.