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| 2 | 2 | | HOUSE DOCKET, NO. 4592 FILED ON: 9/28/2023 |
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| 3 | 3 | | HOUSE . . . . . . . . . . . . . . . No. 4145 |
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| 4 | 4 | | The Commonwealth of Massachusetts |
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| 5 | 5 | | _________________ |
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| 6 | 6 | | PRESENTED BY: |
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| 7 | 7 | | Jessica Ann Giannino |
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| 8 | 8 | | _________________ |
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| 9 | 9 | | To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General |
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| 10 | 10 | | Court assembled: |
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| 11 | 11 | | The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: |
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| 12 | 12 | | An Act improving pediatric cancer research. |
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| 13 | 13 | | _______________ |
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| 14 | 14 | | PETITION OF: |
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| 15 | 15 | | NAME:DISTRICT/ADDRESS :DATE ADDED:Jessica Ann Giannino16th Suffolk9/28/2023Joseph D. McKenna18th Worcester10/1/2023Marcus S. Vaughn9th Norfolk10/1/2023Hannah Kane11th Worcester10/1/2023Jennifer Balinsky Armini8th Essex10/1/2023Francisco E. Paulino16th Essex10/4/2023David F. DeCoste5th Plymouth10/12/2023Ryan C. FattmanWorcester and Hampden10/12/2023 1 of 3 |
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| 16 | 16 | | HOUSE DOCKET, NO. 4592 FILED ON: 9/28/2023 |
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| 17 | 17 | | HOUSE . . . . . . . . . . . . . . . No. 4145 |
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| 18 | 18 | | By Representative Giannino of Revere, a petition (subject to Joint Rule 12) of Jessica Ann |
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| 19 | 19 | | Giannino and others relative to pediatric cancer research. Public Health. |
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| 20 | 20 | | The Commonwealth of Massachusetts |
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| 21 | 21 | | _______________ |
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| 22 | 22 | | In the One Hundred and Ninety-Third General Court |
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| 23 | 23 | | (2023-2024) |
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| 24 | 24 | | _______________ |
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| 25 | 25 | | An Act improving pediatric cancer research. |
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| 26 | 26 | | Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority |
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| 27 | 27 | | of the same, as follows: |
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| 28 | 28 | | 1 SECTION 1. Chapter 29 of the General Laws is hereby amended by inserting after |
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| 29 | 29 | | 2section 2AAAAAA the following section:- |
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| 30 | 30 | | 3 Section 2BBBBBB. (a) There is hereby established and set up on the books of the |
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| 31 | 31 | | 4commonwealth a Pediatric Cancer Research and Resource Project Trust Fund for the purpose of |
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| 32 | 32 | | 5providing grants for pediatric cancer research projects and pediatric cancer resource projects in |
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| 33 | 33 | | 6the commonwealth. |
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| 34 | 34 | | 7 (b) The fund shall be credited with: (i) appropriations or other money authorized or |
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| 35 | 35 | | 8transferred by the general court and specifically designated to be credited to the fund; (ii) funds |
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| 36 | 36 | | 9from public and private sources, including, but not limited to gifts, grants and donations; and (iii) |
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| 37 | 37 | | 10any interest earned on such money. 2 of 3 |
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| 38 | 38 | | 11 (c) Subject to appropriation, amounts credited to the fund shall be used for grants for |
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| 39 | 39 | | 12pediatric cancer research and pediatric cancer resource projects in the commonwealth. Money |
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| 40 | 40 | | 13remaining in the fund at the end of a fiscal year shall not revert to the General Fund. |
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| 41 | 41 | | 14 (d) As uses in this section, the following words shall have the following meanings unless |
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| 42 | 42 | | 15the context clearly requires otherwise: |
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| 43 | 43 | | 16 “Pediatric cancer research project”, a scientific research project focusing on the causes, |
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| 44 | 44 | | 17prevention, education, screening, treatment or cure of pediatric cancer, or the symptoms or |
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| 45 | 45 | | 18effects experienced by patients following completion of a course of treatment for pediatric |
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| 46 | 46 | | 19cancer, and may include basic, clinical and epidemiologic research. |
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| 47 | 47 | | 20 “Pediatric cancer resource project”, a community-based educational, informational, |
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| 48 | 48 | | 21awareness and financial resource project that improves the lives of individuals afflicted by |
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| 49 | 49 | | 22pediatric cancer through an enhanced understanding of the diagnosis, treatment and long-term |
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| 50 | 50 | | 23impacts of childhood cancer and provides support to reduce its emotional, educational and |
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| 51 | 51 | | 24financial burden. |
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| 52 | 52 | | 25 SECTION 2. The executive office of health and human services shall establish a |
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| 53 | 53 | | 26permanent advisory committee to award and allocate grants for pediatric cancer research and |
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| 54 | 54 | | 27pediatric cancer resource projects in the commonwealth. The advisory committee’s membership |
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| 55 | 55 | | 28shall consist of 7 members appointed by the secretary of health and human services 2 of whom |
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| 56 | 56 | | 29shall be survivors of pediatric cancer or caregivers to individuals with pediatric cancer, 1 of |
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| 57 | 57 | | 30whom shall be a representative of a nationwide childhood cancer advocacy non-profit and 4 of |
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| 58 | 58 | | 31whom shall be professionals from the childhood cancer field. 3 of 3 |
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| 59 | 59 | | 32 Not later than August 1, the executive office of health and human services shall submit an |
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| 60 | 60 | | 33annual report to the House and Senate Committees on Ways and Means, Joint Committee on |
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| 61 | 61 | | 34Public Health, And Joint Committee on Healthcare Finance detailing the number, amounts and |
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| 62 | 62 | | 35recipients of the grants awarded pursuant to section 2BBBBBB of chapter 29 of the General |
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| 63 | 63 | | 36Laws, the resulting research and other relevant information as requested by the special |
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| 64 | 64 | | 37committee. |
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