1 of 1 HOUSE DOCKET, NO. 2576 FILED ON: 1/19/2023 HOUSE . . . . . . . . . . . . . . . No. 964 The Commonwealth of Massachusetts _________________ PRESENTED BY: Daniel R. Carey _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act relative to ensuring treatment for genetic craniofacial conditions. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :DATE ADDED:Daniel R. Carey2nd Hampshire1/19/2023Thomas M. Stanley9th Middlesex1/25/2023Patricia A. Duffy5th Hampden2/17/2023Brian W. Murray10th Worcester2/22/2023David Paul Linsky5th Middlesex2/23/2023Hannah Kane11th Worcester2/24/2023James C. Arena-DeRosa8th Middlesex2/27/2023 1 of 6 HOUSE DOCKET, NO. 2576 FILED ON: 1/19/2023 HOUSE . . . . . . . . . . . . . . . No. 964 By Representative Carey of Easthampton, a petition (accompanied by bill, House, No. 964) of Daniel R. Carey and others relative to healthcare coverage for treatment for genetic craniofacial conditions. Financial Services. The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Third General Court (2023-2024) _______________ An Act relative to ensuring treatment for genetic craniofacial conditions. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 Section 1. Chapter 32A of the General Laws is hereby amended by inserting after section 217N as appearing in the 2014 Official Edition, the following section:- 3 Section 17O. Any coverage offered by the commission to an active or retired employee 4of the commonwealth insured under the group insurance commission shall provide coverage for 5medically necessary functional repair or restoration of craniofacial disorders, with the exception 6of coverage for cleft lip and cleft palate which is prescribed elsewhere in the General Laws, to 7improve the function of, or to approximate the normal appearance or any abnormal structures 8caused by congenital disease of anomaly. Coverage under this section shall include the necessary 9care and treatment of medically diagnosed congenital disease or anomaly. Including, but not 10limited to, ectodermal dysplasia, dentinogenesis imperfecta, amelogenesis imperfecta. Coverage 11shall not include cosmetic surgery or for dental or orthodontic treatment unrelated to congenital 12disease or anomaly. The benefits in this section shall not be subject to any greater deductible, 2 of 6 13coinsurance, copayments or out-of-pocket limits than any other benefit provided by the 14commission. 15 SECTION 2. Chapter 118E of the General Laws is hereby amended by inserting after 16section 10I, inserted by section 105 of chapter 46 of the acts of 2015, the following section:- 17 Section 10J. The division shall provide coverage for medically necessary functional 18repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and 19cleft palate which is prescribed elsewhere in the General Laws, to improve the function of, or to 20approximate the normal appearance of any abnormal structures caused by congenital disease or 21anomaly. Coverage under this section shall include the necessary care and treatment of medically 22diagnosed congenital disease or anomaly, including ectodermal dysplasia, dentinogenesis 23imperfecta, and amelogenesis imperfecta. Coverage shall not include cosmetic surgery or for 24dental or orthodontic treatment unrelated to congenital disease or anomaly. The benefits in this 25section shall not be subject to any greater deductible, coinsurance, copayments or out-of-pocket 26limits than any other benefit provided by the division. 27 SECTION 3. Chapter 175 of the General Laws is hereby amended by inserting after 28section 47GG, as appearing in the 2014 Official Edition, the following section:- 29 Section 47HH. The following shall provide coverage for medically necessary functional 30repair or restoration of craniofacial disorders; with the exception of coverage for cleft lip and 31cleft palate which is prescribed elsewhere in the General Laws, to improve the function of, or to 32approximate the normal appearance of any abnormal structures caused by congenital disease or 33anomaly. Coverage under this section shall include the necessary care and treatment of medically 34diagnosed congenital disease or anomaly, including ectodermal dysplasia, dentinogenesis 3 of 6 35imperfecta, and amelogenesis imperfecta. Coverage shall not include cosmetic surgery or dental 36or orthodontic treatment unrelated to congenital disease or anomaly.: (i) any policy of accident 37and sickness insurance, as described in section 108, which provides hospital expense and 38surgical expense insurance and which is delivered, issued or subsequently renewed by agreement 39between the insurer and policyholder in the commonwealth; (ii) any blanket or general policy of 40insurance described in subdivision (A), (C) or (D) of section 110 which provides hospital 41expense and surgical expense insurance and which is delivered, issued or subsequently renewed 42by agreement between the insurer and the policyholder in or outside of the commonwealth; or 43(iii) any employees’ health and welfare fund which provides hospital expense and surgical 44expense benefits and which is delivered, issued or renewed to any person or group of persons in 45the commonwealth. The benefits in this section shall not be subject to any greater deductible, 46coinsurance, copayments or out-of-pocket limits than any other benefit provided by the insurer. 47 SECTION 4. Chapter 176A of the General Laws is hereby amended by inserting after 48section 8II, as so appearing, the following section:- 49 Section 8JJ. Any contract between a subscriber and the corporation under an individual or 50group hospital service plan which is delivered, issued or renewed within the commonwealth shall 51provide coverage for medically necessary functional repair or restoration of craniofacial 52disorders; with the exception of coverage for cleft lip and cleft palate which is prescribed 53elsewhere in the General Laws, to improve the function of, or to approximate the normal 54appearance of any abnormal structures caused by congenital disease or anomaly. Coverage under 55this section shall include the necessary care and treatment of medically diagnosed congenital 56disease or anomaly, including, ectodermal dysplasia, dentinogenesis imperfecta, and 57amelogenesis imperfecta. Coverage shall not include cosmetic surgery or dental or orthodontic 4 of 6 58treatment unrelated to congenital disease or anomaly. The benefits in this section shall not be 59subject to any greater deductible, coinsurance, copayments or out-of-pocket limits than any other 60benefit provided by the insurer. 61 SECTION 5. Chapter 176B of the General Laws is hereby amended by inserting after 62section 4II, as so appearing, the following section:- 63 Section 4JJ. Any subscription certificate under an individual or group medical service 64agreement delivered, issued or renewed within the commonwealth shall provide coverage for 65medically necessary functional repair or restoration of craniofacial disorders; with the exception 66of coverage for cleft lip and cleft palate which is prescribed elsewhere in the General Laws, to 67improve the function of, or to approximate the normal appearance of any abnormal structures 68caused by disease or anomaly. Coverage under this section shall include the necessary care and 69treatment of medically diagnosed congenital disease or anomaly, including, ectodermal 70dysplasia, dentinogenesis imperfecta, and amelogenesis imperfecta. Coverage shall not include 71cosmetic surgery or dental or orthodontic treatment unrelated to congenital disease or anomaly. 72The benefits in this section shall not be subject to any greater deductible, coinsurance, 73copayments or out-of-pocket limits than any other benefit provided by the insurer. 74 SECTION 6. Chapter 176G of the General Laws, as so appearing, is hereby amended by 75inserting after section 4AA, as so appearing, the following section:- 76 Section 4BB. Any individual or group health maintenance contract shall provide 77coverage for medically necessary functional repair or restoration of craniofacial disorders; with 78the exception of coverage for cleft lip and cleft palate which is prescribed elsewhere in the 79General Laws, to improve the function of, or to approximate the normal appearance of any 5 of 6 80abnormal structures caused by congenital disease or anomaly. Coverage under this section shall 81include the necessary care and treatment of medically diagnosed congenital disease or anomaly, 82including, ectodermal dysplasia, dentinogenesis imperfecta, and amelogenesis imperfecta. 83Coverage shall not include cosmetic surgery or dental or orthodontic treatment unrelated to 84congenital disease or anomaly. The benefits in this section shall not be subject to any greater 85deductible, coinsurance, copayments or out-of-pocket limits than any other benefit provided by 86the insurer. 87 SECTION 7. Chapter 176I of the General Laws, as so appearing, is hereby amended by 88inserting after section,12, as so appearing, the following section:- 89 Section 13. An organization entering into a preferred provider contract shall provide 90coverage for medically necessary functional repair or restoration of craniofacial disorders; with 91the exception of coverage for cleft lip and cleft palate which is prescribed elsewhere in the 92General Laws, to improve the function of, or to approximate the normal appearance of any 93abnormal structures caused by congenital disease or anomaly. Coverage under this section shall 94include the necessary care and treatment of medically diagnosed congenital disease or anomaly, 95including, ectodermal dysplasia, dentinogenesis imperfecta, and amelogenesis imperfecta. 96Coverage shall not include cosmetic surgery or dental or orthodontic treatment unrelated to 97congenital defects, developmental deformities, trauma, tumors, infections or disease. The 98benefits in this section shall not be subject to any greater deductible, coinsurance, copayments or 99out-of-pocket limits than any other benefit provided by the insurer. 100 SECTION 8. This act shall apply to all policies, contracts and certificates of health 101insurance subject to chapters 32A, 118E, 175, 176A, 176B, 176G and 176I, of the General Laws, 6 of 6 102as so appearing, issued or renewed, except any entity to the extent it offers a policy, certificate or 103contract that provides coverage for dental care services or vision care services.