1 of 1 SENATE DOCKET, NO. 2236 FILED ON: 1/20/2023 SENATE . . . . . . . . . . . . . . No. 1266 The Commonwealth of Massachusetts _________________ PRESENTED BY: Patrick M. O'Connor _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act relative to PANDAS/PANS. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :Patrick M. O'ConnorFirst Plymouth and NorfolkJason M. LewisFifth Middlesex1/24/2023 1 of 2 SENATE DOCKET, NO. 2236 FILED ON: 1/20/2023 SENATE . . . . . . . . . . . . . . No. 1266 By Mr. O'Connor, a petition (accompanied by bill, Senate, No. 1266) of Patrick M. O'Connor and Jason M. Lewis for legislation relative to PANDAS/PANS. Mental Health, Substance Use and Recovery. The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Third General Court (2023-2024) _______________ An Act relative to PANDAS/PANS. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 (a) Notwithstanding any special or general law to the contrary, the Department of Mental 2Health, in conjunction with the Department of Education shall conduct a study of pediatric and 3adolescent psychiatric hospital settings and therapeutic day schools to determine if any children 4within these settings have root causes in missed or known neuroimmune issues or pediatric 5autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric 6acute-onset neuropsychiatric syndrome. 7 (b) In conducting the study, the Department of Mental Health and Department of 8Education shall use established clinical criteria developed by the PANS/PANDAS Consortium 9available through the PANDAS Physicians Network, and other experts specializing in the 10treatment and diagnosis of pediatric autoimmune neuropsychiatric disorders associated with 11streptococcal infections and pediatric acute-onset neuropsychiatric syndrome. The Departments 12shall interview children and families who had previously been misdiagnosed and subsequently 2 of 2 13found to have pediatric autoimmune neuropsychiatric disorders associated with streptococcal 14infections and pediatric acute-onset neuropsychiatric syndrome while they were accessing 15support through the Department of Mental Health. Further, the departments shall consult with the 16Department of Public Health’s PANDAS/PANS Advisory Council and professionals in pediatric 17and adolescent psychiatric hospital settings and therapeutic day schools. 18 (c) The findings of the study shall include, but no limited to, the following: 19 (i) Identify the prevalence of pediatric autoimmune neuropsychiatric disorders associated 20with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome in pediatric 21and adolescent psychiatric hospital settings and therapeutic day schools. 22 (ii) Report outcomes of interviewed children & families who had been previously 23misdiagnosed and subsequently found to have pediatric autoimmune neuropsychiatric disorders 24associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome. 25 (d) By December 31, 2023, the Department of Mental Health and the Department of 26Education shall report the findings of the study to the Joint Committee on Public Health, the 27Joint Committee on Mental Health and Substance Use and Recovery, the Department of Public 28Health, the PANDAS/PANS Advisory Council and the Clerk of the Senate and Clerk of the 29House of Representatives.