1 of 1 SENATE DOCKET, NO. 2773 FILED ON: 9/28/2023 SENATE . . . . . . . . . . . . . . No. 2496 The Commonwealth of Massachusetts _________________ PRESENTED BY: Patrick M. O'Connor _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act improving pediatric cancer research. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :Patrick M. O'ConnorFirst Plymouth and NorfolkHannah Kane11th Worcester9/29/2023Marc R. PachecoThird Bristol and Plymouth9/29/2023Ryan C. FattmanWorcester and Hampden10/2/2023Jacob R. OliveiraHampden, Hampshire and Worcester10/2/2023Susan Williams Gifford2nd Plymouth10/3/2023Nick CollinsFirst Suffolk10/3/2023Lydia EdwardsThird Suffolk10/4/2023Francisco E. Paulino16th Essex10/4/2023Walter F. TimiltyNorfolk, Plymouth and Bristol10/5/2023Paul J. Donato35th Middlesex10/17/2023 1 of 3 SENATE DOCKET, NO. 2773 FILED ON: 9/28/2023 SENATE . . . . . . . . . . . . . . No. 2496 By Mr. O'Connor, a petition (accompanied by bill, Senate, No. 2496) (subject to Joint Rule 12) of Patrick M. O'Connor, Hannah Kane, Marc R. Pacheco, Ryan C. Fattman and other members of the General Court for legislation to improve pediatric cancer research. Public Health. The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Third General Court (2023-2024) _______________ An Act improving pediatric cancer research. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 SECTION 1. Chapter 29 of the General Laws is hereby amended by inserting after 2section 2AAAAAA the following section:- 3 Section 2BBBBBB. (a) There is hereby established and set up on the books of the 4commonwealth a Pediatric Cancer Research and Resource Project Trust Fund for the purpose of 5providing grants for pediatric cancer research projects and pediatric cancer resource projects in 6the commonwealth. 7 (b) The fund shall be credited with: (i) appropriations or other money authorized or 8transferred by the general court and specifically designated to be credited to the fund; (ii) funds 9from public and private sources, including, but not limited to gifts, grants and donations; and (iii) 10any interest earned on such money. 2 of 3 11 (c) Subject to appropriation, amounts credited to the fund shall be used for grants for 12pediatric cancer research and pediatric cancer resource projects in the commonwealth. Money 13remaining in the fund at the end of a fiscal year shall not revert to the General Fund. 14 (d) As uses in this section, the following words shall have the following meanings unless 15the context clearly requires otherwise: 16 “Pediatric cancer research project”, a scientific research project focusing on the causes, 17prevention, education, screening, treatment or cure of pediatric cancer, or the symptoms or 18effects experienced by patients following completion of a course of treatment for pediatric 19cancer, and may include basic, clinical and epidemiologic research. 20 “Pediatric cancer resource project”, a community-based educational, informational, 21awareness and financial resource project that improves the lives of individuals afflicted by 22pediatric cancer through an enhanced understanding of the diagnosis, treatment and long-term 23impacts of childhood cancer and provides support to reduce its emotional, educational and 24financial burden. 25 SECTION 2. The executive office of health and human services shall establish a 26permanent advisory committee to award and allocate grants for pediatric cancer research and 27pediatric cancer resource projects in the commonwealth. The advisory committee’s membership 28shall consist of 7 members appointed by the secretary of health and human services 2 of whom 29shall be survivors of pediatric cancer or caregivers to individuals with pediatric cancer, 1 of 30whom shall be a representative of a nationwide childhood cancer advocacy non-profit and 4 of 31whom shall be professionals from the childhood cancer field. 3 of 3 32 Not later than August 1, the executive office of health and human services shall submit an 33annual report to the House and Senate Committees on Ways and Means, Joint Committee on 34Public Health, And Joint Committee on Healthcare Finance detailing the number, amounts and 35recipients of the grants awarded pursuant to section 2BBBBBB of chapter 29 of the General 36Laws, the resulting research and other relevant information as requested by the special 37committee.