1 of 1 HOUSE DOCKET, NO. 1255 FILED ON: 1/14/2025 HOUSE . . . . . . . . . . . . . . . No. 202 The Commonwealth of Massachusetts _________________ PRESENTED BY: Christine P. Barber and Sean Garballey _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act to close the achievement gap by addressing disparities in children's vision. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :DATE ADDED:Christine P. Barber34th Middlesex1/14/2025Sean Garballey23rd Middlesex1/30/2025Paul J. Donato35th Middlesex2/3/2025Carmine Lawrence Gentile13th Middlesex2/15/2025Patrick Joseph Kearney4th Plymouth1/31/2025Mary S. Keefe15th Worcester3/4/2025Jason M. LewisFifth Middlesex2/18/2025Bud L. Williams11th Hampden2/11/2025 1 of 5 HOUSE DOCKET, NO. 1255 FILED ON: 1/14/2025 HOUSE . . . . . . . . . . . . . . . No. 202 By Representatives Barber of Somerville and Garballey of Arlington, a petition (accompanied by bill, House, No. 202) of Christine P. Barber, Sean Garballey and others for legislation to establish a children’s vision and eye health advisory council. Children, Families and Persons with Disabilities. [SIMILAR MATTER FILED IN PREVIOUS SESSION SEE HOUSE, NO. 2132 OF 2023-2024.] The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Fourth General Court (2025-2026) _______________ An Act to close the achievement gap by addressing disparities in children's vision. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 SECTION 1. Section 57 of chapter 71, as appearing in the 2022 Official Edition, is 2hereby amended by striking out, in line 4, the words “the individual request of a parent or 3guardian of a pupil in”. 4 SECTION 2. Said section 57 of said chapter 71, as so appearing, is hereby further 5amended by inserting after the word “entering”, in line 27, the following words:- “preschool or”. 6 SECTION 3. Said section 57 of said chapter 71, as so appearing, is hereby further 7amended by striking out the second paragraph. 2 of 5 8 SECTION 4. Said section 57 of said chapter 71, as so appearing, is hereby further 9amended by inserting, in line 52, after the word “personnel”, the following words:- “and the 10children’s vision registry established in section 38A of chapter 69.” 11 SECTION 5. Chapter 69 of the General Law, as so appearing, is hereby amended by 12adding after section 37 the following section:- 13 Section 38. There shall be a children’s vision and eye health advisory council within the 14department. 15 The council shall be appointed by the commissioner, who shall serve as chair, and shall 16consist of 13 additional members, including the commissioner of the Department of Public 17Health, or a designee; the Commissioner of Early Education and Care, or a designee; the 18Assistant Secretary for MassHealth, or a designee; 1 member of the Massachusetts School Nurse 19Organization; 1 member of the Massachusetts Society of Optometrists; 1 member of the 20Massachusetts Society of Eye Physicians and Surgeons; 1 member of the Massachusetts Chapter 21of the American Academy of Pediatrics; 1 member of the Massachusetts Academy of Family 22Physicians; 1 representative from the Massachusetts League of Community Health Centers; 1 23member of the Massachusetts Federation for Children with Special Needs; 1 member of the 24Children’s Vision Massachusetts Coalition; 3 parents to be appointed by the commissioner, one 25of whom shall be a recipient of MassHealth, and one of whom shall reside in a gateway city. The 26commissioner may appoint additional members that the commissioner deems appropriate. 27 Council members shall receive no compensation for their services but shall be allowed 28actual and necessary expenses in the performance of their council duties. 3 of 5 29 The council shall consult with and advise the department on matters related to the 30establishment, maintenance, operation and evaluation of children’s vision and eye health in the 31Commonwealth, including but not limited to the universal children’s vision surveillance registry, 32public health campaigns designed to encourage improved children’s eye health, and expansion of 33screening systems to other age groups. The council shall establish recommendations for 34improved children’s vision and eye health to facilitate short and long-term vision and eye health 35goals. 36 The advisory council shall report findings and recommendations annually to the Joint 37Committee on Public Health and Joint Committee on Ways and Means. 38 SECTION 6. Chapter 69 of the General Laws, as so appearing, is further amended by 39adding after section 38 the following section:- 40 Section 38A. The department shall establish, maintain, and operate a computerized 41registry of children’s vision screening and eye care. The registry shall record the results of vision 42and eye health screenings and follow-up eye care and shall include appropriate controls to 43protect the security of the system and the privacy of the information. 44 The department shall promulgate rules and regulations to implement children’s vision 45registry. 46 All licensed healthcare providers practicing who administer vision and eye health 47screenings and eye exams shall report to the registry such data related to screenings as the 48department determines is necessary to ensure adequate and equitable eye care. 4 of 5 49 Information in the registry shall only be released from the registry to the following 50individuals and agencies without further express consent of the individual or the individual’s 51parent or guardian if the individual is a minor, unless the individual or the parent or guardian 52objects to such disclosure: (1) licensed health care providers providing direct care to the 53individual patient; (2) preschool, elementary and secondary school nurses; (3) staff of state 54agencies or state programs whose duties include education and outreach related to the 55improvement of children’s eye care amongst their clients. 56 The department may designate appropriate users who shall have access only to the 57individually identifiable information for which access is authorized. Authorized users, including 58employees of the department, who in good faith disclose or refuse to disclose information to the 59immunization registry, shall not be liable in any cause of action arising from the disclosure or 60nondisclosure of such information. The department may revoke access privileges for just cause. 61 Persons authorized by the commissioner may conduct research studies to further enhance 62understanding of children’s vision needs in the Commonwealth; provided, however, that the 63researcher shall submit a written request for information and shall execute a research agreement 64that protects the confidentiality of the information provided. 65 Information contained in the children’s vision registry shall be confidential, shall not 66constitute a public record, and shall not otherwise be disclosed, except in accordance with this 67section. Such confidential information shall not be subject to subpoena or court order and shall 68not be admissible as evidence in any action of any kind before a court, tribunal, agency, board or 69person. 5 of 5 70 The department shall establish procedures that allow for an individual, or if the individual 71is a minor, then the individual’s parent or guardian to amend incorrect information in the 72children’s vision registry and shall provide, upon request, a record of all individuals and agencies 73that have accessed an individual’s information.