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2 | 2 | | HOUSE DOCKET, NO. 761 FILED ON: 1/13/2025 |
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3 | 3 | | HOUSE . . . . . . . . . . . . . . . No. 203 |
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4 | 4 | | The Commonwealth of Massachusetts |
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5 | 5 | | _________________ |
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6 | 6 | | PRESENTED BY: |
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7 | 7 | | Christine P. Barber |
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8 | 8 | | _________________ |
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9 | 9 | | To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General |
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10 | 10 | | Court assembled: |
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11 | 11 | | The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: |
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12 | 12 | | An Act establishing a designation of a state protection and advocacy system. |
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13 | 13 | | _______________ |
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14 | 14 | | PETITION OF: |
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15 | 15 | | NAME:DISTRICT/ADDRESS :DATE ADDED:Christine P. Barber34th Middlesex1/13/2025Sally P. Kerans13th Essex2/13/2025 1 of 8 |
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16 | 16 | | HOUSE DOCKET, NO. 761 FILED ON: 1/13/2025 |
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17 | 17 | | HOUSE . . . . . . . . . . . . . . . No. 203 |
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18 | 18 | | By Representative Barber of Somerville, a petition (accompanied by bill, House, No. 203) of |
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19 | 19 | | Christine P. Barber and Sally P. Kerans for legislation to establish a protection and advocacy |
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20 | 20 | | system for investigating abuse, neglect, and financial exploitation of persons with disabilities |
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21 | 21 | | occurring and advocating for the civil and human rights of such persons. Children, Families and |
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22 | 22 | | Persons with Disabilities. |
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23 | 23 | | [SIMILAR MATTER FILED IN PREVIOUS SESSION |
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24 | 24 | | SEE HOUSE, NO. 3870 OF 2023-2024.] |
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25 | 25 | | The Commonwealth of Massachusetts |
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26 | 26 | | _______________ |
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27 | 27 | | In the One Hundred and Ninety-Fourth General Court |
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28 | 28 | | (2025-2026) |
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29 | 29 | | _______________ |
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30 | 30 | | An Act establishing a designation of a state protection and advocacy system. |
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31 | 31 | | Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority |
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32 | 32 | | of the same, as follows: |
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33 | 33 | | 1 SECTION 1: Chapter 6 of the General Laws, as appearing in the 2020 Official Edition, is |
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34 | 34 | | 2hereby amended by inserting after section 221 the following section: |
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35 | 35 | | 3 Section 222. (a) There shall be a protection and advocacy system for the purpose of |
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36 | 36 | | 4investigating abuse, neglect, and financial exploitation of persons with disabilities occurring in |
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37 | 37 | | 5the Commonwealth and advocating for the civil and human rights of such persons. For the |
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38 | 38 | | 6purposes of this chapter, the system shall be an independent private nonprofit corporation which |
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39 | 39 | | 7has been designated as the protection and advocacy system for the Commonwealth under the |
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40 | 40 | | 8Protection and Advocacy under the federal Developmental Disabilities Assistance and Bill of 2 of 8 |
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41 | 41 | | 9Rights Act of 2000, 42 U.S.C. 15041 et. seq., and the Protection and Advocacy for Individuals |
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42 | 42 | | 10with Mental Illness Act. 42 U.S.C. 10801 et. seq. |
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43 | 43 | | 11 (b) The protection and advocacy system shall meet all of the requirements of federal law |
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44 | 44 | | 12applicable to such systems, including, but not limited to, the requirement that it establish a |
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45 | 45 | | 13grievance procedure for clients or prospective clients of the system to ensure that people with |
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46 | 46 | | 14disabilities have full access to services of the system. The protection and advocacy system may |
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47 | 47 | | 15receive and expend funds to protect and advocate the rights of persons with developmental |
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48 | 48 | | 16disabilities, emotional and mental health disabilities, and any other disabilities. In a manner |
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49 | 49 | | 17consistent with other statutory responsibilities, the departments, officers, agencies, and |
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50 | 50 | | 18institutions of the Commonwealth shall cooperate with the protection and advocacy system in |
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51 | 51 | | 19carrying out its duties in order to further the purposes of this act. Notwithstanding any other |
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52 | 52 | | 20provision of law, all departments, officers, agencies, and institutions of the Commonwealth may, |
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53 | 53 | | 21on the behalf of a person with a developmental disability, emotional and mental health |
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54 | 54 | | 22disabilities, or any other disability, request the system to provide protection and advocacy |
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55 | 55 | | 23services. The governor may designate an appropriate state official to serve as liaison between the |
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56 | 56 | | 24protection and advocacy system and the state departments and agencies that provide services to |
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57 | 57 | | 25persons with developmental disabilities, emotional and mental health disabilities, or any other |
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58 | 58 | | 26disabilities. |
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59 | 59 | | 27 (c) The protection and advocacy system shall have the authority to: |
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60 | 60 | | 28 (i) Investigate incidents of abuse and neglect of individuals with developmental |
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61 | 61 | | 29disabilities, emotional and mental health disabilities, or any other disabilities if the incidents are |
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62 | 62 | | 30reported to the system or if there is probable cause to believe that the incidents occurred; 3 of 8 |
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63 | 63 | | 31 (ii) Pursue legal, administrative, and other appropriate remedies to ensure the protection |
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64 | 64 | | 32of the rights of persons with developmental disabilities, mental health conditions, or any other |
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65 | 65 | | 33disabilities; |
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66 | 66 | | 34 (iii) Provide information on and referral to programs and services addressing the needs of |
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67 | 67 | | 35persons with developmental disabilities, emotional and mental health disabilities, or any other |
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68 | 68 | | 36disabilities, including information and training regarding individual rights and the services |
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69 | 69 | | 37available from the protection and advocacy system; |
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70 | 70 | | 38 (iv) Have immediate access to any individual with a developmental disability, emotional |
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71 | 71 | | 39and mental health disabilities, or any other disability, regardless of age, who has requested |
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72 | 72 | | 40services or on whose behalf services have been requested from the protection and advocacy |
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73 | 73 | | 41system or concerning whom the protection and advocacy system has reasonable cause to believe |
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74 | 74 | | 42that abuse, neglect, financial exploitation, or a violation of rights of the individual has occurred; |
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75 | 75 | | 43 (v) Have immediate access to any facility, school, jail, hospital, or any other location |
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76 | 76 | | 44where any individual with a developmental disability, emotional and mental health disabilities, |
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77 | 77 | | 45or any other disability is receiving or has received services, where the protection and advocacy |
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78 | 78 | | 46system has received a complaint or where the system has reasonable cause to believe that abuse, |
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79 | 79 | | 47neglect, financial exploitation, or a violation of rights of the individual has occurred, in order to: |
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80 | 80 | | 48 (A) Monitor compliance with respect to the rights and safety of any person receiving |
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81 | 81 | | 49services; |
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82 | 82 | | 50 (B) Communicate privately by mail or orally, and where available, by electronic means, |
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83 | 83 | | 51with any person receiving services; 4 of 8 |
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84 | 84 | | 52 (C) Interview any member of the staff of said facility or other location; |
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85 | 85 | | 53 (D) Inspect all records relating to persons receiving services, provided that said person, or |
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86 | 86 | | 54their guardian, gives written permission; |
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87 | 87 | | 55 (E) Have access to policies, rules, and regulations affecting care, rights, or |
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88 | 88 | | 56responsibilities of persons receiving services; |
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89 | 89 | | 57 (F) Inspect, view, and photograph all areas of the facility or any other locations that are |
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90 | 90 | | 58used by persons receiving services, or that are accessible to them, or which otherwise may affect |
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91 | 91 | | 59their health and safety; |
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92 | 92 | | 60 (G) Take whatever steps are appropriate, including posting notice, to see that persons are |
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93 | 93 | | 61made aware of the services of the protection and advocacy system, its purpose, and how it can be |
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94 | 94 | | 62contacted. Officials in charge of each facility shall cooperate with the protection and advocacy |
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95 | 95 | | 63system in this respect; |
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96 | 96 | | 64 (H) Provide information and training on, and referral to programs addressing the needs |
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97 | 97 | | 65of, persons with disabilities, and information and training on individual rights and services |
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98 | 98 | | 66available from the protection and advocacy system, including, but not limited to, the name, |
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99 | 99 | | 67address, and telephone number of the protection and advocacy system; |
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100 | 100 | | 68 (vi) Have reasonable unaccompanied access to public and private facilities, programs, |
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101 | 101 | | 69and services, and recipients of services therein during normal working hours and visiting hours |
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102 | 102 | | 70for other advocacy services. In the case of information and training services, access shall be at |
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103 | 103 | | 71times mutually agreeable to the protection and advocacy system and facility management; 5 of 8 |
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104 | 104 | | 72 (vii) Upon request, and notwithstanding any other provision of law, the designated |
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105 | 105 | | 73protection and advocacy system shall be entitled to inspect and copy any records or documents, |
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106 | 106 | | 74files, books, charts, or other materials which may further the system's investigation of problems |
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107 | 107 | | 75affecting persons with developmental disabilities, emotional and mental health disabilities, or |
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108 | 108 | | 76any other disabilities. When required by both state and federal law, any personally identifiable |
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109 | 109 | | 77information of said persons with disabilities shall be removed from the records. |
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110 | 110 | | 78 (d) Any individual or entity having knowledge of or reasonable cause to suspect that a |
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111 | 111 | | 79person with a developmental disability, emotional and mental health disabilities, or any other |
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112 | 112 | | 80disabilities, is or has been abused, neglected, or exploited may report those circumstances to the |
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113 | 113 | | 81protection and advocacy system. |
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114 | 114 | | 82 (e) Records maintained by the protection and advocacy system are the property of the |
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115 | 115 | | 83agency, which must protect said records from loss, damage, tampering, or use by unauthorized |
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116 | 116 | | 84individuals. The system must: |
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117 | 117 | | 85 (i) Except as provided elsewhere in this section, keep confidential all records and |
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118 | 118 | | 86information, including information contained in any automated electronic database pertaining to: |
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119 | 119 | | 87 (A) Clients, to the same extent as is required under Federal or State laws for a provider of |
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120 | 120 | | 88services; |
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121 | 121 | | 89 (B) Individuals who have been provided general information or technical assistance on a |
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122 | 122 | | 90particular matter; |
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123 | 123 | | 91 (C) Identities of individuals who report incidents of abuse or neglect or furnish |
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124 | 124 | | 92information that forms the basis for a determination that probable cause exists; 6 of 8 |
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125 | 125 | | 93 (ii) Obtain written consent from the client, if competent, or from their legal |
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126 | 126 | | 94representative, from individuals who have been provided general information or technical |
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127 | 127 | | 95assistance on a particular matter, and from individuals who furnish reports or information that |
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128 | 128 | | 96forms the basis for a determination of probable cause, before releasing information to individuals |
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129 | 129 | | 97not otherwise authorized to receive it. |
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130 | 130 | | 98 (f) On a quarterly basis, the Department of Developmental Disabilities, the Department of |
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131 | 131 | | 99Mental Health, and the Department of Public Health shall provide the protection and advocacy |
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132 | 132 | | 100system all death reports of persons with disabilities who were receiving services of such state |
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133 | 133 | | 101agency after a determination of eligibility or were receiving services in a facility or setting run, |
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134 | 134 | | 102licensed, or funded by such agency. State agencies shall provide access to death reports more |
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135 | 135 | | 103regularly with a specific request by the protection and advocacy system. |
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136 | 136 | | 104 (g) Subject to confidentiality and redisclosure provisions, upon request, the protection |
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137 | 137 | | 105and advocacy system shall be entitled to receive from the Department of Mental Health lists of |
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138 | 138 | | 106all individuals in state operated facilities serving persons with mental health conditions who are |
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139 | 139 | | 107clinically determined to be discharge-ready yet remain being held in such facilities. |
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140 | 140 | | 108 (h) Nothing in this subpart shall prevent the protection and advocacy system from: |
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141 | 141 | | 109 (i) Issuing a public report of the results of an investigation which maintains the |
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142 | 142 | | 110confidentiality of the individuals affected or; |
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143 | 143 | | 111 (ii) Reporting the results of an investigation which maintains the confidentiality of |
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144 | 144 | | 112individual service recipients to responsible investigative or enforcement agencies should an |
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145 | 145 | | 113investigation reveal information concerning the facility, its staff, or employees warranting |
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146 | 146 | | 114possible sanctions or corrective action. This information may be reported to agencies 7 of 8 |
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147 | 147 | | 115responsible for facility licensing or accreditation, employee discipline, employee licensing or |
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148 | 148 | | 116certification, or criminal prosecution. |
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149 | 149 | | 117 (i) No facility or any other location which provides or has provided services to persons |
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150 | 150 | | 118with developmental disabilities, emotional and mental health disabilities, or any other |
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151 | 151 | | 119disabilities shall retaliate or discriminate against any person submitting a complaint to the |
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152 | 152 | | 120protection and advocacy system or cooperating with the system's monitoring, investigation, or |
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153 | 153 | | 121advocacy activities. |
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154 | 154 | | 122 (j) (i) Prior to instituting any legal action in a federal or state court on behalf of a person |
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155 | 155 | | 123with a developmental disability, emotional and mental health disabilities, or any other |
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156 | 156 | | 124disabilities, or on its own behalf, the protection and advocacy system shall exhaust in a timely |
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157 | 157 | | 125manner all administrative remedies when appropriate. If, in pursuing administrative remedies, |
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158 | 158 | | 126the protection and advocacy system determines that any matter with respect to such person will |
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159 | 159 | | 127not be resolved within a reasonable time, it may pursue alternative remedies, including the |
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160 | 160 | | 128initiation of legal action. |
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161 | 161 | | 129 (ii) Subsection (j)(i) of this section shall not apply to any legal action instituted to prevent |
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162 | 162 | | 130or eliminate imminent serious harm to a person with a developmental disability, emotional and |
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163 | 163 | | 131mental health disabilities, or any other disabilities. |
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164 | 164 | | 132 (k) The authority of the protection and advocacy system set forth in this section shall not |
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165 | 165 | | 133diminish its authority under federal statutes pertaining to the authority of protection and |
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166 | 166 | | 134advocacy systems, or under federal rules and regulations adopted in implementation of those |
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167 | 167 | | 135statutes. 8 of 8 |
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168 | 168 | | 136 SECTION 2: Section 5 of Chapter 19C of the General Laws, as appearing in the 2020 |
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169 | 169 | | 137Official Edition, is hereby amended by removing subsection (4) and replacing it with the |
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170 | 170 | | 138following language: |
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171 | 171 | | 139 (4) If there is reasonable cause to believe that a disabled person has died as a result of |
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172 | 172 | | 140abuse, immediately report said death to the commission, the general counsel, the attorney |
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173 | 173 | | 141general, the district attorney for the county in which such death occurred, the state protection and |
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174 | 174 | | 142advocacy system, and to the medical examiner as required by section six of chapter thirty-eight |
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175 | 175 | | 143 SECTION 3: Section 72H of Chapter 111 of the General Laws, as appearing in the 2020 |
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176 | 176 | | 144Official Edition, is hereby amended by removing subsection (5) and replacing it with the |
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177 | 177 | | 145following language: |
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178 | 178 | | 146 (5) if it has reasonable cause to believe that a patient or resident has died as a result of |
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179 | 179 | | 147abuse, mistreatment, or neglect, immediately report such death to the attorney general, the |
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180 | 180 | | 148district attorney for the county in which such death occurred, the state protection and advocacy |
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181 | 181 | | 149system, and the medical examiner as required by section 3 of chapter 38; and |
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