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2 | 2 | | HOUSE DOCKET, NO. 3244 FILED ON: 1/16/2025 |
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3 | 3 | | HOUSE . . . . . . . . . . . . . . . No. 2398 |
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4 | 4 | | The Commonwealth of Massachusetts |
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5 | 5 | | _________________ |
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6 | 6 | | PRESENTED BY: |
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7 | 7 | | Marjorie C. Decker |
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8 | 8 | | _________________ |
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9 | 9 | | To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General |
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10 | 10 | | Court assembled: |
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11 | 11 | | The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: |
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12 | 12 | | An Act to strengthen our public health infrastructure to address Alzheimer’s and all dementia. |
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13 | 13 | | _______________ |
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14 | 14 | | PETITION OF: |
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15 | 15 | | NAME:DISTRICT/ADDRESS :DATE ADDED:Marjorie C. Decker25th Middlesex1/16/2025 1 of 5 |
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16 | 16 | | HOUSE DOCKET, NO. 3244 FILED ON: 1/16/2025 |
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17 | 17 | | HOUSE . . . . . . . . . . . . . . . No. 2398 |
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18 | 18 | | By Representative Decker of Cambridge, a petition (accompanied by bill, House, No. 2398) of |
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19 | 19 | | Marjorie C. Decker for legislation to strengthen the public health infrastructure to address |
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20 | 20 | | Alzheimer’s Disease and dementia. Public Health. |
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21 | 21 | | The Commonwealth of Massachusetts |
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22 | 22 | | _______________ |
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23 | 23 | | In the One Hundred and Ninety-Fourth General Court |
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24 | 24 | | (2025-2026) |
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25 | 25 | | _______________ |
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26 | 26 | | An Act to strengthen our public health infrastructure to address Alzheimer’s and all dementia. |
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27 | 27 | | Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority |
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28 | 28 | | of the same, as follows: |
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29 | 29 | | 1 SECTION 1. Chapter 111 of the General Laws, as appearing in the 2022 Official Edition, |
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30 | 30 | | 2is hereby amended by inserting after section 24N the following section:- |
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31 | 31 | | 3 24P: Alzheimer’s Disease and Related Dementias Awareness |
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32 | 32 | | 4 Section 24P. (a) The Department of Public Health, in partnership with the Executive |
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33 | 33 | | 5Office of Elder Affairs and the Massachusetts Advisory Council on Alzheimer’s Disease and All |
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34 | 34 | | 6Other Dementias, shall develop a public awareness campaign on brain health, Alzheimer’s |
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35 | 35 | | 7disease and related dementias, and incorporate the campaign into its existing, relevant public |
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36 | 36 | | 8health outreach programs on an ongoing basis. The public awareness campaign shall: |
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37 | 37 | | 9 (i) educate health care providers on the importance of early detection and timely |
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38 | 38 | | 10diagnosis of cognitive impairment, validated cognitive assessment tools, current and emerging |
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39 | 39 | | 11treatment options, the value of a Medicare Annual Wellness visit for cognitive health, and the |
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40 | 40 | | 12Medicare care planning billing code for individuals with cognitive impairment; 2 of 5 |
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41 | 41 | | 13 (ii) increase public understanding and awareness of early warning signs of Alzheimer's |
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42 | 42 | | 14disease and other types of dementia, the value of early detection and diagnosis, and how to |
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43 | 43 | | 15reduce the risk of cognitive decline, particularly among persons in diverse communities who are |
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44 | 44 | | 16at greater risk of developing Alzheimer's disease and other types of dementia; and |
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45 | 45 | | 17 (iii) inform health care professionals and the general public of dementia care coordination |
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46 | 46 | | 18services for those living with Alzheimer’s disease and related dementias and other resources and |
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47 | 47 | | 19services available to individuals living with dementia and their families and caregivers, in |
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48 | 48 | | 20partnership with the Executive Office of Elder Affairs, and the Massachusetts Advisory Council |
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49 | 49 | | 21on Alzheimer’s Disease and All Other Dementias. |
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50 | 50 | | 22 (b). The department shall strive to provide uniform, consistent guidance on Alzheimer’s |
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51 | 51 | | 23and other dementia in nonclinical terms, with an emphasis on cultural relevancy and health |
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52 | 52 | | 24literacy, specifically targeting diverse populations who are at higher risk for developing dementia |
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53 | 53 | | 25in its public awareness and educational outreach programs. |
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54 | 54 | | 26 SECTION 2. Section 16AA of Chapter 6A of the General Laws, as amended by Section 7 |
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55 | 55 | | 27of Chapter 154 of the Acts of 2018 is hereby further amended in subsection (f) by inserting after |
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56 | 56 | | 28the words “shall detail such progress on a regional basis” the following:- |
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57 | 57 | | 29 The annual report shall include data on the racial and ethnic disparities in morbidity and |
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58 | 58 | | 30mortality rates for Alzheimer’s disease and related dementias and other diseases identified by the |
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59 | 59 | | 31Office of Health Equity. |
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60 | 60 | | 32 SECTION 3. Said section 16AA of Chapter 6A of the General Laws, as amended by |
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61 | 61 | | 33Section 1 of Chapter 2020 of the Acts of 2018, is hereby further amended by inserting after (3) |
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62 | 62 | | 34the following section:- 3 of 5 |
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63 | 63 | | 35 (4) The department of public health shall include the Caregiver Module and Cognitive |
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64 | 64 | | 36Decline Module in the annual Behavioral Risk Factor Surveillance System (BRFSS) survey on a |
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65 | 65 | | 37rotating annual basis to collect prevalence data, track trends over time and analyze data to direct |
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66 | 66 | | 38public health programs and resources. |
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67 | 67 | | 39 SECTION 4. Chapter 6A of the General Laws, as appearing in the 2022 Official Edition, |
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68 | 68 | | 40is hereby amended by inserting after section 16FF the following section:- |
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69 | 69 | | 41 Section 16GG: Massachusetts Director of Dementia Care and Coordination |
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70 | 70 | | 42 Section 16GG. (a) The position of Director of Dementia Care and Coordination is created |
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71 | 71 | | 43within the Executive Office of Health and Human Services. The Secretary of Health and Human |
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72 | 72 | | 44Services shall appoint the director who shall serve at the pleasure of the secretary. The director |
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73 | 73 | | 45may call upon appropriate agencies of the state government for assistance as is needed. Duties |
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74 | 74 | | 46and responsibilities of the director shall include, but not be limited to, the following: |
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75 | 75 | | 47 (b) Coordinate the successful implementation of the Alzheimer’s Disease State Plan. |
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76 | 76 | | 48 (c) In coordination with relevant departments and Chair of the Massachusetts Advisory |
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77 | 77 | | 49Council on Alzheimer’s Disease and All Other Dementias, support the council’s work and |
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78 | 78 | | 50annual updates to the Alzheimer’s state plan. |
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79 | 79 | | 51 (d) Coordinate the public awareness efforts as directed in Section 1; Facilitate and |
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80 | 80 | | 52support coordination of outreach programs and services between agencies, area agencies on |
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81 | 81 | | 53aging, aging services access points and other interested groups for the purpose of fostering public |
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82 | 82 | | 54awareness and education regarding Alzheimer's disease and other forms of dementia. 4 of 5 |
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83 | 83 | | 55 (e) Coordinate with relevant state agencies and organizations to ensure coordination of |
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84 | 84 | | 56services, access to services and a high quality of care for individuals with dementia and their |
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85 | 85 | | 57family caregivers to meet the needs of the affected population and prevent duplication of |
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86 | 86 | | 58services; Facilitate coordination of services and activities between organizations interested in |
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87 | 87 | | 59dementia programs and services, including, but not limited to, area agencies on aging, aging |
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88 | 88 | | 60services access points, service providers, advocacy groups, legal services, emergency personnel |
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89 | 89 | | 61and law enforcement. |
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90 | 90 | | 62 (f) Assess dementia-related training requirements for healthcare, long term care and home |
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91 | 91 | | 63and community based services professionals on a biannual basis, including hours required, |
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92 | 92 | | 64frequency of training required and content of training, to determine whether existing training |
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93 | 93 | | 65requirements meet the needs of the dementia community in Massachusetts; the assessment shall |
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94 | 94 | | 66also include whether trainings incorporate Dementia Care Practice Recommendations and person |
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95 | 95 | | 67centered care best practices; Upon completion of the assessment, provide recommendations to |
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96 | 96 | | 68the Department of Public Health, the Executive Office of Elder Affairs, the Massachusetts |
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97 | 97 | | 69Advisory Council on Alzheimer’s Disease and All Other Dementias, the Board of Registration in |
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98 | 98 | | 70Nursing and the Board of Registration in Medicine for additional training necessary to |
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99 | 99 | | 71adequately support the dementia community in Massachusetts. |
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100 | 100 | | 72 (g) Work with the Commissioner of the Department of Public Health, the Board of |
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101 | 101 | | 73Registration in Nursing and the Board of Registration in Medicine to ensure healthcare |
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102 | 102 | | 74professionals are in compliance with dementia training requirements; work with the |
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103 | 103 | | 75Commissioner of the Department of Public Health to ensure that hospitals are dementia capable |
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104 | 104 | | 76and in compliance with Chapter 220 of the General Laws. 5 of 5 |
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105 | 105 | | 77 (h) Identify and manage grants to assist Massachusetts in becoming dementia-capable. |
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106 | 106 | | 78 (i) Collect, monitor and report on data related to the impact of Alzheimer's disease in the |
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107 | 107 | | 79commonwealth; work with the Department's Behavioral Risk Factor Surveillance System |
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108 | 108 | | 80Coordinator in identifying available funds to execute appropriate modules for critical data |
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109 | 109 | | 81collection and research; coordinate with the Department of Public Health to improve public |
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110 | 110 | | 82health outcomes utilizing relevant dementia data. |
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111 | 111 | | 83 SECTION 6. This act shall take effect upon becoming a law. |
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