1 of 2 HOUSE DOCKET, NO. 3407 FILED ON: 1/17/2025 HOUSE . . . . . . . . . . . . . . . No. 261 The Commonwealth of Massachusetts _________________ PRESENTED BY: Jay D. Livingstone and Michael J. Finn _________________ To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General Court assembled: The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill: An Act relative to supported decision-making agreements for certain adults. _______________ PETITION OF: NAME:DISTRICT/ADDRESS :DATE ADDED:Jay D. Livingstone8th Suffolk1/17/2025Michael J. Finn6th Hampden1/17/2025Sean Garballey23rd Middlesex2/4/2025Susannah M. Whipps2nd Franklin2/10/2025Natalie M. Higgins4th Worcester2/10/2025David Paul Linsky5th Middlesex2/25/2025Christopher Hendricks11th Bristol2/25/2025Colleen M. Garry36th Middlesex2/25/2025James K. Hawkins2nd Bristol2/25/2025John J. Marsi6th Worcester2/25/2025Daniel Cahill10th Essex2/25/2025Vanna Howard17th Middlesex2/25/2025Joanne M. ComerfordHampshire, Franklin and Worcester2/25/2025Erika Uyterhoeven27th Middlesex2/25/2025James Arciero2nd Middlesex2/25/2025William C. Galvin6th Norfolk2/26/2025Bruce E. TarrFirst Essex and Middlesex2/28/2025Manny Cruz7th Essex2/28/2025 2 of 2 Thomas M. Stanley9th Middlesex3/6/2025Steven Ultrino33rd Middlesex3/6/2025 1 of 14 HOUSE DOCKET, NO. 3407 FILED ON: 1/17/2025 HOUSE . . . . . . . . . . . . . . . No. 261 By Representatives Livingstone of Boston and Finn of West Springfield, a petition (accompanied by bill, House, No. 261) of Jay D. Livingstone, Michael J. Finn and others relative to supported decision-making agreements for certain adults with disabilities. Children, Families and Persons with Disabilities. The Commonwealth of Massachusetts _______________ In the One Hundred and Ninety-Fourth General Court (2025-2026) _______________ An Act relative to supported decision-making agreements for certain adults. Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority of the same, as follows: 1 SECTION 1. Chapter 6A of the General Laws is hereby amended by inserting after 2section 16F the following section:- 3 Section 16F½. The executive office of health and human services shall establish a 4training program on supported decision-making. The training program shall include instruction 5by state agencies including, but not limited to, the department of developmental services, the 6department of mental health and the executive office of elder affairs. The training program shall 7be provided to any supporter or decision-maker pursuant to section 5-601 of chapter 190B and 8shall include instruction on the rights and obligations contained in section 5-602 of chapter 190B 9and dispute resolution. The executive office of health and human services shall consult with the 10executive office of elder affairs, the department of developmental services, the department of 11mental health, the department of public health, the Disability Law Center, the Massachusetts 12Health and Hospital Association, the Massachusetts Medical Society, the Massachusetts Bankers 2 of 14 13Association and adults who receive supported decision-making assistance and supporters who 14assist in decision-making pursuant to a supported-decision making agreement in the development 15of the training. The training shall be in a format accessible to the individuals receiving the 16training. 17 SECTION 2. Section 2 of chapter 71B of the General Laws, as appearing in the 2022 18Official Edition, is hereby amended by inserting, in line 86, after the words “et sec.” the 19following paragraph:- The department of elementary and secondary education shall promulgate 20regulations in consultation with the department of higher education requiring school districts, as 21part of their transitional planning process for students with disabilities, to inform students and 22their families of the availability of supported decision-making as an alternative to adult 23guardianship and conservatorship for students with disabilities that are receiving services at age 24sixteen. The department shall provide supported decision-making agreement training to schools 25and post all training materials on the department’s website including a sample form for a 26decision-maker to request the release of educational records. 27 SECTION 3. Section 3 of said chapter 71B of the General Laws, as so appearing, is 28hereby amended by inserting, in line 301 after the word “program.” the following paragraph:- At 29the first IEP meeting after a student has turned age sixteen or older, the IEP team shall inform the 30student and their family or guardian, of the availability of supported decision-making agreements 31as an alternative to guardianship and conservatorship. The IEP team shall assist the child and 32their family or guardian in locating resources to assist in establishing a supported decision- 33making plan if the child and their family or guardian are interested in supported decision- 34making. 3 of 14 35 SECTION 4. Section 5-303 of said chapter 190B, as appearing in the 2022 Official 36Edition, is hereby amended by inserting, in line 50, after the word “guardianship”, the following 37words:- or a supported decision-making agreement. 38 SECTION 5. Subsection (b) of section 5-303 of said chapter 190B, as so appearing, is 39hereby amended, by inserting after paragraph (9) the following paragraph:- 40 (9½) a copy of any supported decision-making agreement executed by the person alleged 41to be incapacitated, if available:- 42 SECTION 6. Subsection (c)(3) of section 5-404 of said chapter 190B, as so appearing, is 43hereby amended, by inserting after the word “conservatorship” in the first instance, the following 44words:- “or a supported decision-making agreement”. 45 SECTION 7. Subsection (b) of section 5-404 of said chapter 190B, as so appearing, is 46hereby amended, by inserting after paragraph (8) the following paragraph:- 47 (8½) a copy of any supported decision-making agreement executed by the person alleged 48to be incapacitated, if available: 49 SECTION 8. Chapter 190B of the General Laws is hereby amended by inserting after 50section 5-507 the following sections:- 51 Section 5-601. Definitions: 52 As used in this section, the following words shall have the following meaning unless the 53context clearly requires otherwise: 54 “Adult”, an individual 18 years of age or older. 4 of 14 55 “Coercion”, the use of force or threats to persuade someone to do something. 56 “Decision-maker”, an adult who seeks to execute, or has executed, a supported decision- 57making agreement with 1 or more supporters under this chapter. 58 “Executed”, a supported decision-making agreement that is signed by both the decision 59maker and all supporters in accordance with requirements set forth in this chapter. 60 “Supported decision-making”, the process of supporting and accommodating the 61decision-maker, without impeding the self-determination of the decision-maker, in making life 62decisions, including, but not limited to: (i) decisions related to where the decision-maker wants 63to live; (ii) the services, supports, financial decisions and medical care the decision-maker wants 64to receive; (iii) whom the decision-maker wants to live with; and (iv) where the decision-maker 65wants to work. 66 “Supported decision-making agreement”, a voluntary, written agreement, written in plain 67language that is accessible and understood by the decision-maker and entered into by the 68decision-maker with one or more supporters pursuant to section 5-602 used to support decision- 69making. 70 “Supporter”, an adult who meets the requirements of section 5-602 and has executed a 71supported decision-making agreement with a decision-maker. 72 Section 5-602. 73 (1)(a) A decision-maker may voluntarily enter into a supported decision-making 74agreement with 1 or more supporters. 5 of 14 75 (b) The decision-maker may amend or terminate a supported decision-making agreement 76at any time pursuant to section 5-602(3)(e). 77 (2)(a) Any person, eighteen years of age or older, may be a supporter. 78 (b) A person shall not serve as a supporter in a supported decision-making agreement 79when: 80 (1) The decision-maker previously made, or makes, an allegation of elder abuse against 81the supporter. 82 (2) The decision-maker has obtained or obtains a Protection from Abuse Order against 83the supporter or a harassment prevention order against the supporter under chapter 258 of the 84General Laws. 85 (3) The supporter is the subject of a civil or criminal order prohibiting contact with the 86decision-maker; 87 (4) The supporter has been removed as the conservator of the decision-maker, based upon 88a finding that they did not act in the conservatee’s best interest; or 89 (5) The supporter is found criminally, civilly, or administratively liable for abuse, 90neglect, mistreatment, coercion, or fraud. 91 (3)(a) Except as limited by a supported decision-making agreement, a supporter shall do 92all the following: 93 (1) Respect the values, beliefs, and preferences of the decision-maker. 94 (2) Act honestly, diligently, and in good faith. 6 of 14 95 (3) Act within the scope identified by the decision-maker. 96 (4) Support and implement the direction, will, and preferences of the decision-maker. 97 (5) Maintain confidentiality of any information obtained by a supporter, unless the 98decision-maker specifically authorizes its disclosure. 99 (6) Exercise only the authority granted to the supporter in the supported decision-making 100agreement. 101 (b) Except as limited by a supported decision-making agreement, a supporter may, with 102the consent of the decision-maker, provide to the decision-maker decision-making assistance 103regarding the decision-maker’s affairs, including, but not limited to: (i) communicating decisions 104and understanding information about, options for, the responsibilities of and the consequences of 105decisions; (ii) accessing, obtaining and understanding information that is relevant to decisions, 106necessary for the decision-maker to manage their affairs, including, but not limited to, medical 107records, including protected health information under the Health Insurance Portability and 108Accountability Act of 1996 (Pub. L. 104-191); psychological and financial records; educational 109records under the Family Education Rights and Privacy Act of 1974 (20 U.S.C. s. 1232g), or 110information protected by 42 U.S.C.A. s. 290dd-2, 4 C.F.R. Part 2; as well as other educational 111records including Individualized Education Programs, transcripts, a transition plan, a student 112summary of performance and any other materials as requested; (iii) ascertaining the wishes and 113decisions of the decision-maker, assisting in communicating those wishes and decisions to other 114persons and assisting to ensure the decision-maker’ wishes and decisions are implemented; and 115(iv) accompanying the decision-maker and participating in discussions with other persons when 7 of 14 116the decision-maker is making decisions or attempting to obtain information needed to make 117decisions. 118 (c) Unless the supporter has a valid legal authorization to do so and the action is within 119the scope of their authority, a supporter shall not do either of the following: (i) make decisions 120for, or on behalf of, the decision-maker, or (ii) sign documents on behalf of the decision-maker. 121 (d) A supporter shall not participate in any life decision in which they have a conflict of 122interest. This includes, but is not limited to, any decision in which the supporter, his or her 123immediate family or partner, a business organization in which he or she is serving as officer, 124director, trustee, partner or employee has a financial interest or other direct and substantial 125interest in the outcome. 126 (e) A supporter shall only be authorized to assist the decision-maker in accessing, 127collecting or obtaining information that is relevant to a decision authorized under the supported 128decision-making agreement and to which the decision-maker agrees that the supporter should 129have access pursuant to a written authorization in accordance with the applicable federal or state 130privacy laws. The decision-maker may withdraw the authorization at any time in whatever 131manner is authorized by applicable state or federal law. A supporter shall keep confidential any 132information obtained in the process of assisting the decision-maker. 133 (f) A decision-maker may bring a civil action for damages and equitable relief, including 134injunctive relief, resulting from a violation of this section or a regulation promulgated under this 135section in any court of competent jurisdiction. 136 (4) The existence of a supported decision-making agreement shall not preclude a 137decision-maker from seeking personal information without the assistance of a supporter. 8 of 14 138 (5) To be valid, a supported decision-making agreement shall be signed and dated by the 139decision-maker and each applicable supporter in the presence of a notary public. The decision- 140maker may use reasonable modifications, such as assistive technology or physical assistance, to 141sign the agreement. 142 (6) Evidence of undue influence or coercion in the creation or signing of a supported 143decision-making agreement shall render the supported decision-making agreement invalid. 144 (7) A supported decision-making agreement shall be personalized by the decision-maker 145to reflect the decision-maker’s personal circumstances. A supported decision-making agreement 146shall: 147 (a) be in writing in plain language that is accessible and understood by the decision- 148maker; 149 (b) identify the decision-maker and all supporters; 150 (c) describe the types of decisions with which each supporter shall assist the decision- 151maker. If the decision-maker wants assistance to access their medical records, the agreement 152must specifically reference that the supporter shall have access to protected health information 153under the Health Insurance Portability and Accountability Act of 1996 (Pub. L. 104-191). If the 154decision-maker wants assistance to access their education records, the agreement must 155specifically reference that the supporter shall have access to protected education records under 156the Family Education Rights and Privacy Act of 1974 (20 U.S.C. s. 1232g) or information 157protected by 42 U.S.C. a. s. 290dd-2, 4 C.F.R. Part2; as well as other education records including 158Individualized Education Programs, transcripts, a transition plan, a student summary of 159performance and any other materials. 9 of 14 160 (d) indicate that all supporters agree to assist the decision-maker in making such 161decisions, to respect the decision maker's decisions and to assist the decision-maker in 162communicating such decisions; 163 (e) state that supporters shall not make decisions for the decision-maker; 164 (f) indicate that the decision-maker may amend or terminate the supported decision- 165making agreement at any time and for any reason subject to the requirements of section 5- 166602(3)(e); 167 (g) list contact information for the disabled persons protection commission, the elder 168abuse hotline and all programs providing services to the decision-maker; and 169 (h) include a statement from each supporter that they understand and accept their roles, 170responsibilities and limitations as outlined in section 5-602(3)(a). 171 (8) A person who receives the original or a copy of a supported decision-making 172agreement shall rely on the agreement and recognize a decision, request or communication made 173with the decision-making assistance of a supporter as the decision, request or communication of 174the decision-maker. A written confirmation from the decision-maker may be required affirming 175that the supported decision-making agreement presented is current. 176 (9) A person or entity that, in good faith, acts in reliance on a decision made pursuant to a 177supported decision-making agreement shall not be subject to civil or criminal liability or to 178professional discipline. 179 (10)(a) The supported decision-making agreement shall remain in effect until it is 180terminated or expires. 10 of 14 181 (b) A supportive decision-making agreement shall be terminated as follows: 182 (1) On any termination date set forth in the agreement but no more than a term of three 183years, unless extended by agreement, in writing, of the decision-maker and supporters, pursuant 184to section 5-602 with terms of execution. 185 (2) A supporter may terminate participation in a supported decision-making agreement at 186any time, by written notice to the decision-maker and any other supporters to the agreement; 187provided, however, that if the agreement has more than 1 supporter, the agreement shall remain 188valid as to all other supporters. 189 (3) A decision-maker may terminate a supported decision-making agreement at any time 190by written notice to all supporters to the agreement. 191 (4) Notice of the suspension of a supporter pursuant to section 5-602 shall be given in 192writing and delivered in hand to said person or his or her attorney, or sent by registered mail to 193said person at his or her residence or his place of business. Such notice so given, delivered or 194sent shall automatically suspend the authority of such person to perform the duties of his or her 195office or employment until he or she is notified in like manner that his or her suspension is 196removed. 197 (5) The death or incapacitation of the decision-maker. 198 (6) In the event that the decision-maker becomes subject to a guardianship and 199conservatorship order, the scope of the supported decision-making agreement may be limited in 200whole or in part by the probate and family court to those decisions reserved for the decision- 201maker after the issuance of the guardianship or conservatorship order. 11 of 14 202 (11)(a) The disabled persons protection commission, an elder protective services agency, 203the department of developmental services, the department of mental health or any person 204interested in the decision-maker's welfare may petition the probate and family court to revoke or 205suspend the role of the supporter within one or more supported decision-making agreements on 206the grounds of abuse, neglect, exploitation or failure of the supporter to follow their roles and 207responsibilities resulting in serious physical, emotional, or financial harm to the decision-maker, 208or on the grounds that the supporter is not qualified pursuant to section 5-602(2)(b). The court 209shall provide notice to the decision-maker and supporter and provide an opportunity for the 210decision-maker and supporter to be heard. The court shall revoke or suspend the role of the 211supporter within the supported decision-making agreement, in whole or in part, if the court 212makes a finding under any grounds set forth in this paragraph. The court shall not order a 213supported decision-making agreement to remain in effect over the objection of the decision- 214maker. If the decision-maker is indigent, the court shall appoint counsel for the decision-maker 215upon the filing of any petition under this paragraph. 216 The court shall tally the number of individuals who appear before the court on supported 217decision-making agreement issues. A report of the court’s findings shall be submitted annually, 218as of June 30, to the clerks of the senate and house of representatives, the joint committee on 219committee on children, families and persons with disabilities and the senate house committees on 220ways and means. 221 (b)(1) If a person who receives a copy of a supported decision-making agreement or is 222aware of the existence of a supported decision-making agreement has cause to believe that the 223decision maker is being abused, neglected or exploited by a supporter, the person may report the 12 of 14 224alleged abuse, neglect or exploitation to the disabled persons protection commission pursuant to 225chapter 19C or the elder abuse prevention hotline pursuant to chapter 19A. 226 (2) If a mandated reporter pursuant to subsection (a) of section 15 of said chapter 19A or 227said chapter 19C has reasonable cause to believe that the decision-maker has been abused, 228neglected or exploited by a supporter, the mandated reporter shall make a report to the disabled 229persons protection commission or an elder protective services agency, as applicable. 230 (c) Execution of a supported decision-making agreement shall not be a condition of 231participation in any activity, service or program. 232 (d) Nothing in this section shall be interpreted to limit or restrict the right of an individual 233to execute a health care proxy pursuant to chapter 201D or a power of attorney pursuant to this 234chapter. 235 SECTION 8. There shall be established pursuant to section 2A of chapter 4 of the 236General Laws a special legislative commission, known as the Supported Decision-Making 237Commission, to study, examine and make recommendations regarding: (i) the expansion of the 238authorized state registry for health care authorizations to tally the number of individuals with a 239supported decision-making agreement and that enables providers to verify that the supported 240decision-making agreement presented by a decision-maker or a supporter is current; or (2) the 241creation of one or more new online registries for authorizations for educational, financial, and 242other information, including supported decision-making agreements, and that enables providers 243to verify that the authorization, including supported decision making agreements, presented is 244current. 13 of 14 245 (a) The commission shall consist of: the chairs of the joint committee on children, 246families and persons with disabilities, who shall serve as co-chairs; 1 member to be appointed by 247the senate president; 1 member to be appointed by the speaker of the house of representatives; 1 248member to be appointed by the minority leader of the senate; 1 member to be appointed by the 249minority leader of the house of representatives; the secretary of health and human services or a 250designee; the secretary of the executive office of technology services and security or a designee; 251the commissioner of public health or a designee; the commissioner of the division of insurance 252or designee; the commissioner of the division of banks or designee; the chief justice of the trial 253court or a designee; the chief justice of probate and family court or a designee; 1 member 254representing the Massachusetts Health and Hospital Association; 1 member representing the 255Massachusetts Bankers Association; 1 member representing The Arc of Massachusetts; and 1 256member representing the Disability Law Center. 257 (b) State agencies shall make available to the commission any documents, data or 258materials in a timely manner when reasonably requested by the commission. 259 (c) The commission shall submit a report of its findings and recommendations to the 260clerks of the senate and house of representatives, the joint committee on committee on children, 261families and persons with disabilities and the senate house committees on ways and means not 262later than June 1, 2027. 263 SECTION 9. A supported decision-making agreement executed before July 31, 2026, 264shall be valid until July 31, 2027. Thereafter, only supported decision-making agreements that 265conform to the requirements of section 5-602 of chapter 190B of the General Laws shall be 266valid. 14 of 14 267 SECTION 10. Section 6 shall take effect on July 31, 2026. 268 SECTION 11. The training program required by section 16F½ of chapter 6A of the 269General Laws shall be implemented by the department of health and human services no later 270than 6 months after the passage of this act. 271 SECTION 12. The department of elementary and secondary education shall promulgate 272regulations pursuant to section 2 of chapter 71B of the General Laws no later than 6 months after 273passage of this act. 274 SECTION 13. The executive office of health and human services shall promulgate 275regulations no later than 6 months after the passage of this act.