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HOUSE DOCKET, NO. 2499 FILED ON: 1/16/2025
HOUSE . . . . . . . . . . . . . . . No. 3366
The Commonwealth of Massachusetts
_________________
PRESENTED BY:
Kristin E. Kassner and Bruce E. Tarr
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To the Honorable Senate and House of Representatives of the Commonwealth of Massachusetts in General
Court assembled:
The undersigned legislators and/or citizens respectfully petition for the adoption of the accompanying bill:
An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day.
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PETITION OF:
NAME:DISTRICT/ADDRESS :DATE ADDED:Kristin E. Kassner2nd Essex1/16/2025Bruce E. TarrFirst Essex and Middlesex1/16/2025Jillian Kavanagh33 Crescent Road, Hamilton, MA
01982
1/16/2025Christopher Hendricks11th Bristol1/23/2025 1 of 1
HOUSE DOCKET, NO. 2499 FILED ON: 1/16/2025
HOUSE . . . . . . . . . . . . . . . No. 3366
By Representative Kassner of Hamilton and Senator Tarr, a joint petition (accompanied by bill,
House, No. 3366) of Kristin E. Kassner, Bruce E. Tarr and others for the issuance of an annual
proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental
Syndrome awareness day. State Administration and Regulatory Oversight.
[SIMILAR MATTER FILED IN PREVIOUS SESSION
SEE HOUSE, NO. 4070 OF 2023-2024.]
The Commonwealth of Massachusetts
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In the One Hundred and Ninety-Fourth General Court
(2025-2026)
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An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day.
Be it enacted by the Senate and House of Representatives in General Court assembled, and by the authority
of the same, as follows:
1 Chapter 6 of the General Laws, as appearing in the 2022 Official Edition, is hereby
2amended by inserting after section 15ZZZZZZ, the following section:-
3 Section 15AAAAAAA. The governor shall annually issue a proclamation setting apart
4April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day, to raise
5awareness of this rare genetic disorder caused by heterozygous mutations in the CSNK2A1 gene
6on chromosome 20 and manifesting as developmental delay or differences in brain function,
7which can be managed with early therapy, and recommending that the day be observed in an
8appropriate manner by the people.